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Australian Experience
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04/06/2009 12:18
crt 
04/06/2009 12:18
crt 
Re: Australian Experience

Just a short note to let you know that I have finished the RT on my hand.

Not too much to report at this stage.

On positive side the lump on my pinky proximal phalange (which caused a slight 15 degree bend) has reduced in size and the the bend has also reduced (I can almost straighten the finger).

The next observation is slightly confused, given the context of a rapidly enlarging lump in my hand (before RT).
Since the RT, I now have the sense the true scope of the DC like an image being developed from a photographic film. What was not initially apparent has now become very apparent with cords and nodules running almost the full length between the first finger joint to my wrist. During the RT the cords and nodules become much larger. In the 4 weeks since my last RT the size of the DC structure seems to be reducing, but is still quite painful when pressure is applied. It was also quite painful before the RT.

I will wait for the end of the year before attempting any judgement on the RT.

Interesting during the time of my rapidly enlarging DC lump, the previously dormant LD on my right foot is now "ichy" and presumably enlarged, as my shoes (and walking barefoot) are noticeably less comfortable.


Regards,

Chris.

05/06/2009 11:50
crt 
05/06/2009 11:50
crt 
Re: Australian Experience

It's been about 7 or 8 weeks since my last and final RT session.

Whilst I would argue that it is still somewhat early to claim success, I can say that:

1. The lump on my finger has diminished to an almost undetectable size (in comparison with the other normal hand), and the curvature has slightly reduced. The area is also much less painful.

2. The lumps/cords in my palm have reduced in size to be less than before the RT was commenced, and are much less painful.

So I am in reality claiming a very positive outcome (at this stage).

It is looking very favourable, if it remains dormant for a reasonable time.

I might add that the RT showed up much greater area of disease than was apparent from my (and GP's) naive physical examination. It's seems reasonable to argue that early treatment using RT is quite important.

Regards,

Chris.

05/06/2009 12:48
patandpaula 
05/06/2009 12:48
patandpaula 
Re: Australian Experience

Hi Chris, thanks for posting and please keep us posted on your outcome. May I ask, how did they determine the area that needed therapy? Did they do an ultrasound to determine where the disease was? Thanks






Paula

05/07/2009 10:57
crt 
05/07/2009 10:57
crt 
Re: Australian Experience

Hi Paula,

I first saw a "hand therapist" who confirmed to me that I had DC. She simply felt my hand, and I guess from experience was able to make some estimate of the extent. She mentioned that there might be some more, but not apparent at the time.

By the time I got to the radiologist the DC was much more advanced and it was pretty obvious (by feeling it) it was running from my finger up toward my wrist. Just below my wrist there was an area of discomfort, but I did not think this was related to the DC (I think a long standing injury of some kind). The radiologist was happy to irradiate this area too, as he did not think it would do any harm if it was not DC.

It was interesting to see the DC area enlarge and become more painful, whilst non DC was not affected. It became much more apparent. This gets back to your question however, as it is logically possible that an area of DC that was not discernible by physical examination would become apparent after RT, or might be missed altogether.

It turns out that the (relatively) narrow, and long area of RT exposure managed to contain all the DC associated with that finger. The "undiscovered" part involved the cord that was significantly longer that I had thought it was. The area exposed for RT extended from (including finger) up to the wrist, so it caught it. If the "undiscovered" area went across the hand, instead of longitudinally it would have been missed. It is also possible that some DC currently exists, but is undetected with other fingers, but hopefully this will be a separate area for RT.

Regards,

Chris.

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