| Appears I am developing Dupuytren's and would like to hear from others |
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06/16/2009 11:25
KatherineG 
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06/16/2009 11:25
KatherineG
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Re: Appears I am developing Dupuytren's and would like to hear from others
Well thank you TrevB and Wolfgang for replying and to everyone else too. I would certainly be prepared to try radiology or whatever, before undertaking surgery. Just in my opinion I don't see why doctors allow it to develop into a contracture. It seems sometimes surgery triggers fresh nodules. Let's us hope they find a cure for it soon.
The other thing I should pass on, is I mentioned accident and trauma, my head and neck were injured in a whiplash and I was given pills for epilepsy, although only for nerve pain. I have read there is an opinion that epilepsy medication can trigger it.
I Looked at the doctors' websites in the UK, one in particular was quite depressing as he considers N/A is not so good as there are complications and it does not last, I felt quite down afterwards. The US doctors' seem far more up beat and Eaton suffered from DC himself before he went to France for N/A surgery.
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06/16/2009 11:28
KatherineG
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06/16/2009 11:28
KatherineG
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Re: Appears I am developing Dupuytren's and would like to hear from others
TrevB, How long ago did you have radiotherapy?
K
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06/16/2009 12:02
TrevB 
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06/16/2009 12:02
TrevB
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Re: Appears I am developing Dupuytren's and would like to hear from others
Quote:
TrevB, How long ago did you have radiotherapy?
K
January & March this year
Cambidgeshire, UK.
Edited 06/16/09 15:03
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06/16/2009 13:17
brian123not registered
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06/16/2009 13:17
brian123not registered
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Re: Appears I am developing Dupuytren's and would like to hear from others
Eaton did my na as I have mentioned 6 months still perfect..
Do you say Eaton had Dups......never knew that
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06/16/2009 14:10
wach  Administrator
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06/16/2009 14:10
wach Administrator
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NA and surgery side effects
Katherine, regarding the risks you might compare surgery side effects, on http://www.dupuytren-online.info/surgery...s_denkler_2.htm, with NA side effects on http://www.dupuytren-online.info/NA_side_effects.html. Overall NA seems to have less effects. Neither surgery nor NA avoid later recurrence. There is indication that the disease on anaverage will come back earlier after NA but NA can easily be repeated while surgery gets very difficult after the 2nd surgery, due to scarring.
Wolfgang
Quote:
... I Looked at the doctors' websites in the UK, one in particular was quite depressing as he considers N/A is not so good as there are complications and it does not last, I felt quite down afterwards. ...
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06/16/2009 18:05
SteveAbramsnot registered
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06/16/2009 18:05
SteveAbramsnot registered
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Re: Appears I am developing Dupuytren's and would like to hear from others
Katherine -
I don't think there is any question that the risk of side effects is considerably greater from surgery than from NA. The negatives of NA are: 1) a small increase in the risk of recurrence, and 2) certain forms of dupuytrens are not particularly well-addressed by NA.
Steve Abrams
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06/17/2009 06:37
KatherineG
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06/17/2009 06:37
KatherineG
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Re: Appears I am developing Dupuytren's and would like to hear from others
Thank you once again for all the replies. Steve, do you know what the different kinds of Dupuytren's are and how they present themselves?
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06/17/2009 14:55
Jill 
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06/17/2009 14:55
Jill
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Re: Appears I am developing Dupuytren's and would like to hear from others
Just a quick correction here, Dr. Eaton does not have Dupuytrens disease.
Dr. Kline is the one who has it and had his hands treated in Gagny by Dr. Lermesiaux in 2002. Dr. Lermesiaux is the French rheumatologist who invented the needle technique. Dr. Kline went back to France and trained with Dr. L and started doing NA here in the USA.
Here's his story: http://www.dupuytrenscenter.com/dupuytrenscenter/DrKline.htm
You really have to be careful about misinformation that spreads like wildfire on the Internet.
That's about it!
-Jill at Dupuytrens Center
www.dupuytrenscenter.com
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06/17/2009 17:12
KatherineG
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06/17/2009 17:12
KatherineG
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Re: Appears I am developing Dupuytren's and would like to hear from others
Sorry about the confusion. Yes things can spread like wildfire on the internet.
K
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06/22/2009 19:07
bstenman
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06/22/2009 19:07
bstenman
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Re: Appears I am developing Dupuytren's and would like to hear from others
The average general practitioner in the USA has no experience with Dupytren's and as a result will not encourage early treatment. X-ray treatment has proven to be quite effective in slowing or halting the progression if done at the early stages. If I lived in the UK I would not hesitate going to be treated by Dr. Seegenschmiedt in Essen, Germany, and I actually traveled from California to get XRT at the clinic there. The cost for two hands was 400 Euros or half the cost of NA. NA is effective for treating contractures by severing the chords but it only deals with the symptoms.
With NA as with any invasive surgery it pays to go to the doctor who has the most experience and in the USA this means one of 4 doctors. In France I would expect there to be more surgeons with experience and possibly in the UK as well. The disease is genetic and most prevalent wherever the Vikings settled which would include the UK. The farther east or south you travel from Scandinavia the less prevalent the disease.
But consider X-ray treatment without further delay. Getting is a year from now may be a waste of time.
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