Asking about an DCI- Dupuytren Contracture Institute
Hi everybody,
I have just been diagnosed with Dupuytren today and found this "Dupuytren Contracture Institute" online. It's an USA (IL) company which propose treatment slow down the progress of the lump. Is there anyone who knows this company. Is that kind of serious or online magical treatment making money on people who are psychologically fragilised and wanting to try any way to get cured?
Many thanks,
Thierry
PS : I do not put the web links because I guess there might a policy against that on this forum, which would be fair indeed.
Re: Asking about an DCI- Dupuytren Contracture Institute
Hi Thierry, welcome.
I had not heard of that company. After looking at their website, I would not put any trust in their alternative products or methods. It seems to me that they are taking advantage of the exhorbitant cost of medical treatment in the U.S. to make their offer appear like a bargain ("But the cost for four months of a natural DCI-based medium treatment plan would be $520"), with no proof of any effectiveness.
If you tell us some more about yourself and your current condition (age, size and location of nodules/lumps and cords) you will get more specific advice in this forum.
Stef
[54 year-old male, DD diagnosis 2006, RH contracture and NA/PNF 2014, RT 2015, wearing night splint glove]
Re: Asking about an DCI- Dupuytren Contracture Institute
Dear Stefan,
Hi - Many thanks for your reply and support.
Yes, I usually do not trust this kind of altenative treatment. However as it looked quite serious I was wandering about it.
So here I am :
Male, Belgian based in UK, 44, vegeterian, quite healthy. Care worker. Got a Lapeyronie Disease 2 years ago, but very light. So when I felt the nodule in my hand I directly reminded that could be a Dupuytren
I thought I could get a diabetes 2, so I tested it 2 years ago : Negative..
I got a nodule within a week more or less...
I noticed it on the 11 July. Since then looks quite stable. Maybe a bit bigger and stronger.
I arrived to the GP well inform from internet... so basically I got a 10 min GP appointments... Very nice guy but the only information I got was "wait and see" and a random blood test (cholesterol, diabetes, etc)...
So here I am searching on internet for more details. At the moment I am taking Vit E, turmeric and devil's claw supplement. I do a lot of massage and stretching. I do not have cord... Only one nodule about 2 cm from top to bottom and 1 cm from left to right (see photo).
I heard about siclicium balm as well... Could help but no relevant results.
I understood that every case is different and the evolution could take months or years. However it seems getting it at an early age will more likely going to a worst results.
Next week I am going to a 30 days meditation retreat so I was wondering about having a glove. But I heard that there are diiferent types of glove and better to get advice from a professional.
Is it relevant to wear glove at this level? I have no finger distorsions yet... so it would be preventively.
Again many thanks for your support. I do psychologically feel ok with this but would like to put all the chance on my side asap.
Re: Asking about an DCI- Dupuytren Contracture Institute
Hi Thierry,
developing a nodule at the age of 44 is not VERY early, the average age of onset for men being 46 http://www.dupuytren-online.info/patient_survey.html. In the early stage I personally had good results with radiotherapy (I developed my first nodule at the age of 35).
I believe that what the Dupuytren Contracture Institute is offering is lacking evidence of its effectiveness. It is serving a market for "healthy", "alternative" medicine but that's all.
Re: Asking about an DCI- Dupuytren Contracture Institute
Thierry:[...] Male, Belgian, 44, vegeterian, quiet healthy. Care worker. Got a Lapeyronie Disease 2 years ago, but very light. So when I felt the nodule in my hand I directly reminded that could be a Dupyutren
I thought I could get a diabetes 2, so I tested it 2 years ago : Negatives..
I got a nodule within a week more or less...
I noticed it on the 11 July. Since then looks quite stable...
[...]
I understood that every case is different and the evolution could take months or years. However it seems getting it at an early age will more likely going to a worst results.
Is it relevanat to wear glove at this level?
Thierry
Hi Thierry, I just wanted to give you quick feedback on selected points I quote, more perhaps later:
Your onset is pretty much the average age for men (46), not particularly early. My first nodule also showed up at age 44, ten years ago.I don't know anything about Lapeyronie Disease and its possible influence on DD evolution.
In short, what I would do keep informing myself and monitoring the hand (looks like the nodule is on the tendon of the pinky, like in my case?), consider RT if it grows fast, and use a night splint as soon as tension starts on the finger to prevent it from curling. There's no point in splinting as long as you don't even have a cord.
Perhaps have your palm examined by an expert from time to time, who usually feels more nodules and cords than you can through self-examination. I was sceptical about massage for some time, but now wouldn't exclude that it can be effective in getting rid of fresh nodules or cords. So that's the first thing I'd look into before worrying about nutrition etc.
By any chance, did you have a bleeding wound recently that could have triggered the formation of the nodule?
Hope this helps,
Stef
[54 year-old male, DD diagnosis 2006, RH contracture and NA/PNF 2014, RT 2015, wearing night splint glove]
Re: Asking about an DCI- Dupuytren Contracture Institute
Does RT stand for Radio Therapy?
Not very clear on the photo, it feels like the nodule is between the pinky and ring finger (a bit more on the ring one)
About the glove, I think I will wait untill the end of this 30 days retreat before considering it.
Is that right that it is better to get prescribed the glove or I can buy online what I feel would be the best? Is that something easy to find (LONDON) or better to order online?
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