I'm not sure what to do if anything can be done. Since i've had RT 20 months ago or it will be 2 years in March of 2012. I'm left with cords all over my hands which prevents doing things because i feel like my hands are puppets on strings. Kind of like they have a mind of their own. My skin is very, very tight on my right hand but not so bad on left. Being i have had RT on both hands and my nodules are gone i was wondering is anyone having NA done on these cords that are left behind? And if so do you all worry about the disease waking up from someone poking and fraying cords in your hand? Or are we safe doing NA and not have to worry about it popping out and saying I'M BACK YOU SHOULDN'T HAVE MESSED WITH ME - I'LL SHOW YOU WHO IS IN CONTROL AND ITS NOT YOU!

I had NA before I had RT 2 1/2 years ago. Cords that were left after RT gradually tightened. I had NA again because they were tightening. Cords are/were in my palm and were working up into the first joint of my little finger, so I had NA done again this past July. I expect to need it again but once every 2 1/2-3 years isn't bad.

This time, I asked Dr. Denkler to prescribe a night splint. It took the technician a while to figure out how to make it, but he did a good job. I thought he was very creative, but that's his job. I went back twice for adjustment. I will get pictures posted on the forum. My disease tightens across the palm and up into the fingers from the palm. I hope the night splint extends the period of time between NA. I can tell the difference if I forget to put it on. My hand tightens up during the night without it, and the splint does work to keep it stretched out.

In my other/right hand, I have nodules above and below the CMC joint of my forefinger. I have visible cords, but they haven't changed very much. There has been more tightening of cords across the web of the thumb since the nodules started in the forefinger. I don't think I want to get radiation yet, but I may go for another consultation at Loma Linda UMC. The doctor palpated my hand thoroughly. He may be able to feel something that I can't. I'm good but I can't feel the forefinger on each hand at the same time to compare little differences.

So, I think, yes, I would get NA, but you have to decide what is best for you. We share on this Forum and have our experiences and opinions, but we can only make the decision for ourselves. You have a good point about stirring up the disease, but I don't think NA is that traumatizing. It is not invasive like surgery or an injury.

Let us know what you decide.