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Dupuytren's flare and scar tissue
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02/18/2008 16:03
m.e. 
02/18/2008 16:03
m.e. 
Dupuytren's flare and scar tissue

Thanks newman for your assistance regarding the use of this forum. This is my first attempt to get interactive information regarding Dupuytren's. I have reposted my original question from Saturday. I live in Massachusetts and my surgeries have been done by a very well respected local doctor.



I am looking for information regarding successful treatment for scar tissue that has developed after a dupuytren's flare, which I experienced after surgery in June. I have had 2 operations on my non-dominant hand (zig zag cut). The operations were both performed on my first finger. The second surgery was extremely successful with total mobility returning.(The first surgery was successful, but I believe the Dr. who was older, missed some of the Dupuytren's. The first surgeon retired and his protegy did the next surgery.) My next surgical procedure took place this past June. This surgery was performend on my dominant hand, ring and baby finger. This surgery was much more involved than the prior two surgical procedures. The surgery allowed me to straighten both fingers post surgery. I did however develop a flare which slowed down the recovery process. I cannot straighten either finger at this time. The degree of bend in both fingers is actually worse than before the surgery. My Dr. says that the bend is caused by scar tissue and not dupuytren's. I am wondering if anyone has used any non-traditional techniques to treat their dupuytren's. I am especially interested in acupuncture.

I did go through two rounds of physical therapy with a hand specialist. They tried iontofarisis as well as untrasound and massage. I was given a series of exercises to perform as well. I was faithful to the exercises until recently.

02/28/2008 11:23
newman 
02/28/2008 11:23
newman 

Re: Dupuytren's flare and scar tissue

Hi Australia Calling.
You say in you posting that the scar tissue is limiting your movement. This did happen to me and I had to have the fingers reoperated on with a skin graft. Unfortunately this happens to some patients. One of my grafts covers two fingers (little and ring) up to the seond joint on the ring and to the first joint on my little finger and some 20 mm down the face of the palm. How much contraction do you have. Do the table top test. Place the hand with the palm up on a flat surface and measure the distance from the finger nail to the flat surface. Are you doing stretching exercises a few times a day every day. Regards.

03/09/2008 22:59
Barb

not registered

03/09/2008 22:59
Barb

not registered

Re: Dupuytren's flare and scar tissue

Hello to everyone out there who suffers from DC or has had DC surgery. I had my (left pinky) Fasciectomy December 21st., '07...coming up on 3 months ! I have had numerous surgeries (I'm 54) but this was so painful ! I was faithful about therapy and positive thinking (feeling it couldn't get any worse!) when at 7 weeks, I felt the return of my finger again and the my life coming back to me as I knew it before. I was gripping a broom (exciting)and performing daily tasks without pain.

I can't say that I am without discomfort....my nerve involvement was extensive so it will be some time until I feel the end of my finger again but it is growing like a new life ! The scar feels like a 3rd degree burn still.....I keep it covered. I wear a splint at night or whenever I am doing nothing. My "table test" is perfect.

The deal with scar was not getting the stitches wet, keeping them in for 2+ weeks and then not getting the hand wet for another week. After that......keep it well nourished with HAND LOTION ! Too much vitamin E will make it TOO moist Massage, massage massage!! And, do the work. Therapy. 4 sessions should be enough for you to learn what you need to do at home.

I had a 45 degree contracture....PIP. NA was not for me. I, by the way, inherited this from my Grandfather.....

I wish you all well ! I love this site. I was so scared going into my surgery. Be sure you explore all options.

01/29/2011 18:27
caseywolf

not registered

01/29/2011 18:27
caseywolf

not registered

Re: Dupuytren's flare and scar tissue

i am going through this.....flare...right now. surgery was done 3.5 weeks ago and i seemed to be progressing very well but about 7 days ago, my hand swelled up, the incision site became very,very painful, etc. i go to PT twice a week and do my exercises, massage, etc. religiously.

if you have a flare after surgery and continue to follow the treatment protocol exactly, can you still make a very good recovery even if it takes longer? also have a lot of scar tissue and fingers/palm are stiffer now than they were 10 days ago before the flare reaction. surgery was 90% in palm and the rest in index finger. trying to stay positive but i am nervous about this now. also...with the flare has come a lot of pain. really bad pain that i've had to take leftover pain meds for.

i'm experiencing much, much more pain than i'd anticipated. help !

thanks

01/29/2011 20:13
callie 
01/29/2011 20:13
callie 
Re: Dupuytren's flare and scar tissue

Are you overdoing the PT? I only went to PT twice after my surgery to get a night time splint. After that I did the PT on my own. I did mostly flex exercises constantly during the day. I kept the incision moist 24 hours a day with lotion. My healing went very well. Surgeon told me that PT by a PT is not necessary as long as a person will do it on their own. In my case he was right. Nine years later I am still having no problem with Dupuytren's.

01/30/2011 03:03
newman 
01/30/2011 03:03
newman 

Re: Dupuytren's flare and scar tissue

Hi caseywolf,I've had may surgeries and it is important to keep the hand moving to maintain the flexibility of the fingers. At this stage you should be keeping you hand up basically resting on your shoulder for most of the day to assist in the recirculation.(Reduce any swelling) Whilst in this position you can move the fingers like playing a piano. How are progressing by making a closed fist? First thing in the morning I used to place my hand in the warm water of the hand basin , palm down and exert a downward pressure.(dont' over do it -Gentle long stretch) The shape of the basin helps to create the upward pressure on the fingers and stretch the palm. Try adding some Bi-Carbonate of Soda (Baking Powder) to the water. Are you using a Vitemin E cream on the scar tissue. Hope this helps- Let nature take its course.

Edited 01/30/11 05:04

01/30/2011 23:43
caseywolf 
01/30/2011 23:43
caseywolf 
Re: Dupuytren's flare and scar tissue

thanks callie and newman for answering me.

about pt..... i was told months ago....before surgery...that i would be going to pt twice a week and then down to once a week after 4-6 weeks in addition to being expected to do the pt exercises at home each day. the pt place is upstairs from this orthopedic grp's offices.

with the addition of using a heating pad for the past week and putting vitamin e... and massaging.....on the site several times a day, i am feeling a bit better today but still in pain. the stiffness is quite severe, too ..... way worse than it was two weeks ago.....but that will improve with time, hopefully.

i did soak my hand in warm water first thing today and it seemed to help. will get some baking soda,yoo.

now.... just to let you know....... i am still supposedly wearing my splint 22 hours a day. only off for exercises, etc. i told the pt about 6 days ago that i felt that was part of the problem as its hurting me and making my fingers super stiff. anything touching the scars on my palm really makes it hurt. she made me a scar pad to help with this but it only very minimally helps..... and that might be for 10 min or so. so i'm not using it. will see her and maybe doctor on tuesday.

when i told her how much my hand/palm hurt on thurs., she told me i could stop wearing the splint so much..... and i could take it off for a few hours a day.

sounds like you guys got different instructions. when i read from newman to move the fingers as if playing the piano, i figured you got different advice. with my fingers rendered motionless with the splint on all the time, there was no way to move my fingers like that. but i've done so several times since yesterday and i must say that it helps a lot. i was told to wear the slint 24/7 for 6 full weeks.

i was also told after 2 weeks....when i had the stitches removed, that i no longer had to elevate my hand although i did so half the time..... hand on shoulder......because it felt better.

any other advice would be appreciated........ but your suggestions have already helped.

i would think that it is not unusual to have the scar hurt if pressure from fabric, a bandage or splint is put on it. especially if it's almost non-stop pressure.

did others have a flare reaction like me? callie..... i,too, thought i might be overding the pt at home so i cut back a bit about 4-5 days ago. keep in mind that i was doing well for almost 3 weeks when i developed this flare reaction. it's a real bummer. i feel like i am almost back to square one in the recovery process.

the pt told me they have no idea what causes a flare but that i didn't do anything wrong and it just happens once in a great while. my pt only works with hand patients and says i'm only the 2nd dupuytren's patient this has happened to in 12 years.

i feel better hearing from others who have actually had this surgery and have lived through the rehab. phase.

thanks sooo much and if yoou have any more advice, please send it along. your support and advice is more appreciated than you could know.

caseywolf

01/30/2011 23:48
caseywolf 
01/30/2011 23:48
caseywolf 
Re: Dupuytren's flare and scar tissue

one more thing..... despite real tightness in the fingers and palm. i am actually doing quite well with making a fist. takes 4-5 manipulations of each finger and holding in position for 10-20 sec..... but after they are loosened, i probably, with a lot of effort, can get fingers 75-80% of the way to the middle of palm.

01/30/2011 23:55
caseywolf 
01/30/2011 23:55
caseywolf 
Re: Dupuytren's flare and scar tissue

<<<<<< I kept the incision moist 24 hours a day with lotion>>>>

callie,

how did you do that? did you put lotion.....and what kind of lotion..... on a gauze pad or something? right now, i really have off the chart pain if anything touches my palm.....the two long scars. that wasn't the case two to three weeks ago. only since the flare reaction 6-7 days ago. also my hand is inflamed..... swelled and puffy on the top with puffed fingers..... as a result of the flare.....but swelling is coming down a bit in last day or two.

thanks

01/31/2011 02:01
callie 
01/31/2011 02:01
callie 
Re: Dupuytren's flare and scar tissue

caseywolf,

I had my hand wrapped with a self adhering elastic wrap during the day for about three to four weeks with a pad that had lotion on it. After that time, I carried a small tube of Aveeno lotion with me all the time in my pocket. Every hour or two I would rub it into the scar tissue and do a 20 second massage of the tissue to work the lotion in. The Aveeno lotion was all I used the whole time. I only wore a brace at night with a pad in the brace. When I took the brace off in the morning my fingers were stiff and I slowly flexed the fingers for a minute or two to get them loosened up. At about one month the most important (for me) thing that I did was to cut about a 10 inch strip of the 1 1/2" self adhesive bandage and wrap it around my fist like a rubber band. I would leave it on for about five minutes and then take it off and flex the hand. I would do this about every two hours during the day. It got so I could make a fist fairly well.

My hand was swelled for about a week at about the four week mark. It slowly got better. I thought it might be infected because it was tender to the touch. I was glad when it improved. For me it was all worth it because my hand is still as good as before Dupuytren's nine years later.

Edited 01/31/11 04:06

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Massachusetts   conservative   through   Elastowrap-self   Unfortunately   massage   swelling   appreciated   fingers   surgery   recurrence   “Dicioefnac”   Dupuytren   exercises   manipulations   contraction   anti-inflammatory   strengthening   recirculation   non-traditional