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09/08/2011 16:53
debrr 
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09/08/2011 16:53
debrr
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Re: idea
I would be willing to start something in AZ if it would help....Anybody out there in AZ?
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09/09/2011 19:14
Eaton 
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09/09/2011 19:14
Eaton
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Re: idea
I would be happy to talk anywhere, any time at a patient oriented Dupuytren event.
Charles Eaton MD
Dupuytren Foundation
http://Dupuytrens.org
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09/14/2011 10:42
Cyclist 
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09/14/2011 10:42
Cyclist
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Re: idea
How are you going to fund this event? You'll need to think about venue hire (size dependent on number of attendees), refreshments, food and beverages (depending on duration), sound people (depending on numbers), conference organisers to handle the registration process, amongst other things. You could cover costs with registration fees, but this might be prohibitive for some health consumers, depending on the total cost of running the event.
No impossible if you can find sponsors, but much easier to piggy-back on another existing event. You could consider contacting cancer conferences as these conditions are effectively benign tumours and they might have an interest in supporting a consumer forum.
Just a few thoughts...
All the best
Di
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09/14/2011 11:05
wach  Administrator
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09/14/2011 11:05
wach Administrator
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Re: idea
Good point! Our Miami conference had turned out fairly expensive.
Wolfgang
Cyclist:
How are you going to fund this event? You'll need to think about venue hire (size dependent on number of attendees), refreshments, food and beverages (depending on duration), sound people (depending on numbers), conference organisers to handle the registration process, amongst other things. You could cover costs with registration fees, but this might be prohibitive for some health consumers, depending on the total cost of running the event.
No impossible if you can find sponsors, but much easier to piggy-back on another existing event. You could consider contacting cancer conferences as these conditions are effectively benign tumours and they might have an interest in supporting a consumer forum.
Just a few thoughts...
All the best
Di
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09/14/2011 16:16
Wildjean62
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09/14/2011 16:16
Wildjean62
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Re: idea
Welcome Wildjean, I have sent you a private message with your post included. It was not posted in the right place so please create a new thread with it. spanishbuddha
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09/14/2011 19:46
Wildjean62
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09/14/2011 19:46
Wildjean62
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Re: idea
[Location and price would make a big difference. I would also hope it was in laymen's terms. I am not crazy about medicalese and when it would take place.
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09/15/2011 01:55
flojo
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09/15/2011 01:55
flojo
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Re: idea
Wow, Dr. Eaton! Thank you for being willing to go to that extent to support patients.
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09/15/2011 21:57
moondanc
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09/15/2011 21:57
moondanc
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Re: idea
Eaton:
I would be happy to talk anywhere, any time at a patient oriented Dupuytren event.
Charles Eaton MD
Dupuytren Foundation
http://Dupuytrens.org
Thanks much Dr. Eaton-- I was going to lobby you for this when I see in you two weeks. I'd be more than happy to work with you, Valerie or any forum members on organizing an event of this type. As patients I think we need to advocate more for research and a cure for this disease and I hope everyone on this forum who isn't already a contributor to the US Dupuytren's Foundation will consider joining.
Check out not only the the webpage:
http://dupuytrens.org/Donate.html
but also the Facebook page
http://www.facebook.com/pages/Dupuytren-...on/163484943750
and Twitter:
http://twitter.com/#!/dupuytren
@dupuytren
And please make a tax deductible donation!
Diane/Moondanc
Edited 09/16/11 01:09
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