I'm weighing up the possible benefits against the possible risks and I can't see any reason why I shouldn't go for RT. There seems to be about a 75% chance of improvement - slowing down or stopping progression from the nodule stage - against a very small and theoretical risk of sarcoma in 20 or 30 years time.

I can't see why the local hospital is so set against RT. It seems to be the only sensible treatment at the nodule stage, and the downside is not significant - and one that I am happy to accept. I presume it's inertia and a reluctance to take on new ideas, or else the natural tendency to defend an established and entrenched position.

I will investigate whether the clinics listed here might take an NHS referral. I suppose I can always step outside the NHS system and pursue the idea of treatment in Germany, but I cannot logically see why in the light of the NICE guidance there is a problem in getting NHS treatment. I'll certainly keep everyone informed of progress.