Radiation in US |
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06/16/2008 01:03
Megan
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06/16/2008 01:03
Megan
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Re: Radiation in US
Hi TrevB,
Thank you so much for sending the link to that article....I looked over it quickly and plan to read it more carefully tonight.
On a fast read, it did ease my concerns. After I read your last posting about this subject, I talked to my husband, and he hypothesized that there were other factors to consider than the amount of radiation (i.e.: the intensity, the frequency, etc.).
quote: I suppose if you haven't seen anyone close to you affected by cancer then you might perhaps be more open minded but if you have then it certainly makes you think!
I agree with you about that! Both of my parents died of cancer. On the other hand, I have known a lot of people who have received radiation for cancer and they are all doing really well.
Thanks again for sending that link....even though I am open to radiation, I am by nature a worry-wort.
- Megan -
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06/16/2008 07:07
TrevB
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06/16/2008 07:07
TrevB
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Re: Radiation in US
Quote:
even though I am open to radiation, I am by nature a worry-wort.
- Megan -
You and me both Megan. Would be nice to find something more recent but most searches bring up journals with abstracts which then require subscription to view the article. I just got lucky with that one.
Cambidgeshire, UK.
Edited at 06/16/08 10:11
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06/16/2008 15:08
Dwilson540not registered
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06/16/2008 15:08
Dwilson540not registered
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Re: Radiation in US
Well I've gone through my first week of radiation. A little different than the photo, I'm lying horizontally with my arms outstretched above me. The first visit took awhile in that they made a mold for me to place my hands in. But each actual radiation treatment has only taken about 15 - 20 minutes. Most of that was positioning. The staff has been great. Hands don't seem to glow in the dark. Seriously I've not had any side effects that I can discern. My next series is in about six weeks. Obviously I'm hoping for the best. Will let everyone know what developments I see as I go along.
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06/16/2008 18:53
TrevB
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06/16/2008 18:53
TrevB
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Re: Radiation in US
Quote:
Will let everyone know what developments I see as I go along.
Thanks for that. More updates would be useful
Cambidgeshire, UK.
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06/16/2008 21:25
Megan
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06/16/2008 21:25
Megan
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Re: Radiation in US
Quote:
Hands don't seem to glow in the dark.
Ha! That's great! I'm glad it's going so well and that you haven't had any side effects. I hope for the best for you, too!
On my way to Boise tomorrow to see Dr. Kline, and will also pass on any new information. Best to all of you,
Megan
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06/20/2008 23:47
Megan
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06/20/2008 23:47
Megan
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Re: Radiation in US
quote: "Anyway, I have been scouring the internet on information for available treatment for Dupuytren. It seems many of you have opted to bypass steroid injections and go directly for radiation treatments. Why? Do they not work well?
I also have read on a site that some doctors do not recommend radiation because they say it makes it harder to do surgery later on. They did not say why though. I assume the radiation changes the skin making it harder for skin grafts to take well."
Hi Lisa,
I just returned from my consulation with Dr. Kline. I am really, really glad I went there. He is the right mix of friendly, professional, understanding...I felt at ease as soon as I met him and his assistant. They were both great. I asked him whether he felt radiation would change the skin, making it difficult for NA or surgery and he said he didn't believe so. I didn't ask specifically about skin grafts (I'm sorry....I had so many questions and a lot to absorb).
I received two steroid injections into the nodule and I will be returning for radiation. If I understood correctly, Dr. Kline said that Dupuytren's can be quite aggressive in women, particularly for those of us under the age of 65 (I am 48), so I am going to go ahead with radiation. I feel really comfortable with my decision, especially after seeing him. If any of you are thinking of getting treated in Boise, just wanted to let you know it is a lovely city; very easy to get around. The hotels in the downtown area are within walking distance of Dr. Kline's clinic. I stayed at the Safari Inn, since it's pet-friendly (I had my dog with me) and only a 1.3 miles walk from Dr. Kline's practice. A lot of the hotels offer a medical discount. There is a lovely greenbelt right through the heart of Boise, lots of restaurants and bakeries, and it's very pleasant for pedestrians.
Dr. Kline also suggested I be easy on my hands...wear gel-cushioned gloves (like the kind bicyclists wear). I bought a couple of pairs of bicycling gloves and made them even more cushiony by cutting up some gel foot insoles. I've been wearing them when I'm driving or vacuuming (because of the vibration) and under my gardening gloves when I'm working outside. - Megan -
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06/24/2008 04:42
Megan
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06/24/2008 04:42
Megan
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Re: Radiation in US
Hi Lisa,
I will keep you in my thoughts and hope everything works out with your husband's job and the insurance. I know what a worry that is. I didn't have health insurance for years as a self-employed musician. Please keep in touch about your situation. I paid for the steroid injections out of pocket, and they were not expensive.
Megan
Edited at 06/24/08 07:44
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06/24/2008 13:12
arogers
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06/24/2008 13:12
arogers
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Re: Radiation in US
All,
I was initially diagnosed with a ganglion cyst. Yesterday, I met with a specialist who immediately diagnosed me with DS. I have nodules in my left hand - first discovered 3-months ago and seem to be progressing quickly. I am male, 37 yrs old. At present no contracture. Questions: 1) How quickly does the disease typically progress? Will it be months years or more before I notice contracture? 2) My doctor did not mention radiation as an option. I live in Atlanta, Georgia, USA. How can I go about finding a doctor in my area that is using radiation? dwilson540 - how did you find your dr. in KS? 3) Is radiation considered experimental - will insurance cover this treatment? It would seem less costly than surgery, but is that right?
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1 2 3 4 5 .. 11
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