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Did your surgeon tell you about NA?
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08/19/2009 05:14
Randy_H 
08/19/2009 05:14
Randy_H 

Did your surgeon tell you about NA?

For years I and others like me arm wrestled on-line with other anonyms posters regarding the safety and effectiveness of NA. We had comparatively little in those days to convince our fellows that NA was a viable option to traditional invasive Open Surgery. Then Charles Eaton became the first American hand surgeon to offer the procedure and things began to change. But not all that much. The anti NA mantra espoused by all other CHS in North American was defining. So we had a lot of rhetoric but not much substance.

Now the Jury is in and we can point to countless sites to verify our claims. Being now lazy, here are just a few off the top:

http://my.clevelandclinic.org/disorders/...ns_disease.aspx

http://www.doctormahoney.com/dupy/dupyna.htm

http://orthopedics.about.com/od/dupuytre...se/p/needle.htm

http://www.doctorgrabow.com/index.aspx/D...le_Aponeurotomy

I like the one on About.com. Who can argue with that?

Sadly I'll tell you who. You local hand surgeon. Almost to a man they still want to have someone spend seven thousand dollars to cut you open. Given what is now proven, this is just *nuts*.

I'm curious, how many of you were told buy a surgeon that your only option would be Open Surgery? How many even mentioned NA as an option? Are things better now than I fear, or are we still waiting for most hand surgeons to wake up.

08/19/2009 06:05
wach 

Administrator

08/19/2009 06:05
wach 

Administrator

Re: Did your surgeon tell you about NA?

One of the nice things on the about.com page is the link to our web site ...

Wolfgang

08/19/2009 13:02
terry 
08/19/2009 13:02
terry 
Re: Did your surgeon tell you about NA?

Two quite reputable hand surgeons said nothing about NA. Their combined fees for consultation: $500. Total face time 30 min.

The third, Dr Grabow, 30 min telephone consultation, $0. He did NA on both hands at the beginning of May. I'm doing what I wanted to do this summer instead of recovering from one surgery and anticipating another.

08/19/2009 13:56
lori 
08/19/2009 13:56
lori 
Re: Did your surgeon tell you about NA?

When I went to see the hand surgeon, all he told me to do was to wait until contracture occurred and when "I couldn't take it anymore" to come back to see him for surgery. He not only did not mention NA but did not mention anything other than a steroid shot for pain. When I found this site, read about RT and NA I called back to ask about other treatment options, he called back and really would not answer the questions, only that "nothing was available in this area". That was in March and I am still not over his response

Lori.

08/19/2009 16:57
timconnery

not registered

08/19/2009 16:57
timconnery

not registered

Re: Did your surgeon tell you about NA?

I went to the Dr. for a trigger thumb on my right hand. While there I asked if he knew what was going on with the fingers on my left hand. I learned a new word that day. Duputrens. He said they could fix it with surgery and that I could read about the procedure on the clinics web site. I went way beyond researching it on their web site and thank goodness I did. I had my NA two weeks ago. This past weekend I built a new pergola over my deck that included lifting four 16' 4"x10" beams in place. I would have still had a dressing on my hand from surgery. Actually my hand is still bandaged because I got a large skin tear but it is healing nicely. This only happens in a small % of cases. Hooray for the internet and web sites like this. The clinical trials for Xiaflex and cologenase are done and I think FDA approval is not too many months away so by the time my Duputrens comes back, if it does, there will be an alternate treatment. I had my NA done by Dr. Benheim at the UCLA medical plaza. I think he did a great job. He told me he has now done over 400 of these. If you look at his web site he has a short video of the procedure.

08/19/2009 19:47
Randy_H 
08/19/2009 19:47
Randy_H 

Re: Did your surgeon tell you about NA?

Tim,

Congratulation on being proactive and doing a little research. You'd be doing PT for months and still be in pain.

The *only* reason that NA is available in the US is the Internet. Some 5 years ago a patient scheduled for Open Surgery with Eaton gave him a DVD of a French NA procedure. She had learned about NA from a now defunct Internet forum and requested this DVD from another patient who had been to France. Eaton watched the DVD was enticed to try NA on her............Bingo! He doesn't even do OS anymore (though there is still a place for that procedure) .

Dr. Benheim was the first CHS in Southern California to try NA. However, he practices out of UCLA and was under the influence of a former head of the American Society for Surgery of the Hand (Dr. "X") . This renowned surgeon was **very** skeptical of NA. I know because I talked to him numerous times. So at first Dr. Benheim was extremely conservative in his approach. I did not give up easily and went back to "Dr. X" just to show him my hand before and after Eaton's NA. Finally things have changed at UCLA, in no small to Dr. Benheim who persisted. This is great because a lot of hand surgeons do look to their leadership over there.

Still, amazingly, the average CHS in So. Cal is still going to want to go *streight* for the knife. Am I wrong? Are there any LA surgeons outside of UCLA doing NA?

08/20/2009 12:27
ladwil 
08/20/2009 12:27
ladwil 
Re: Did your surgeon tell you about NA?

My hand specialist told me that I had to wait until my little finger PIP had contracted to 30 degrees before he would perform surgery to straighten the finger. He warned me that although the finger would be straight after surgery, the incidence of recurrence was very high and that he might have to use skin grafting or possibly leave an open wound to create a firewall to try to prevent the recurrence that happens very frequently with surgical correction of the PIP. When I asked about the needle procedure I had read about on the internet, he expressed surprise (and some dismay) that I knew about it. He then told me that since I was aware of NA, he would spend extra time with me to explain why he did not recommend it - going into the finger blindly, possible nerve damage, etc. Three months later at follow up, he pronounced the now 60 degree contracture as operable. I thanked him for his time, paid another copay and sent photos of my hand to Dr. Eaton. The photos posted by scion111 of his little finger PIP after NA by Dr. Pess and the postings of brian123 about the success of his NA with Dr. Eaton convinced me to go for it.

It has now been a month since my trip to Jupiter. In one hour, Dr. Eaton educated me thoroughly on Dups and successfully straightened my finger (66 degrees to 0). That afternoon I was driving my rental car around Jupiter seeing the sights. After a good night's sleep, I flew home handling my own luggage. My finger is straight, the nodule is greatly reduced in size and my hand is pain free with full mobility - a result better than I expected. I would not hesitate to have NA again if it recurs and will avoid surgery as long as I can. This forum has been a great source of information and support to me. This website and all the information Dr. Eaton takes the time to post on his site allowed me to access what I needed to make an informed decision. Thank you!

08/20/2009 16:25
Randy_H 
08/20/2009 16:25
Randy_H 

Re: Did your surgeon tell you about NA?

ladwid,

Your almost hand surgeon has that string tied to his knee that apparently jerks it every time someone mentions NA. The scalpels in his cabinet probably call out to him. The "blind procedure" / "nerve damage" argument is now completely discredited. NA has a record *less* damage. This is an unassailable fact. Apparently he didn't read the article in About.com :) Does he suspect the moon landings were done a sound stage as well?

This is just so typical. Their intransigence is frankly awe inspiring.

Yep, the Internet has saved thousands of patient from the knife, including me. He is right about this though. If NA is overrun by the aggressiveness of your disease then you will need OS. Let's hope not. But if that ever happened to me, I'd certainly go all the way to skin grafting. It is the skin in your palm itself that has the disease, so replace it. If you do need OS, don't mess around. A graft may be unsightly, but multiple OS will destroy your hands. You get 3 shots at OS and you are done. Only the resurrection can help then :)

All the Best.

08/20/2009 17:18
Michael916 
08/20/2009 17:18
Michael916 
Re: Did your surgeon tell you about NA?

Is there a way to find surgeons in a particular area (Southern Tier of New York) who do NA? I have been unsuccessful so far.
Michael

08/20/2009 17:37
ladwil 
08/20/2009 17:37
ladwil 
Re: Did your surgeon tell you about NA?

Hi Michael -

I live in the Albany NY area. I did not find any NA docs upstate but Dr. Pess in Central NJ has a great deal of experience with NA and is highly recommended.

I decided to make the trip to Jupiter because Dr. Eaton has the most experience and has trained so many of the NA practitioners in the U.S. It was a great decision for me. I uploaded several photos of my hand on Dr. Eaton's website and someone from his staff contacted me the next day. The trip was very easy and quite enjoyable. Southwest Air makes several one-stop flights right to Palm Beach airport from Albany and the fare was very low for a flight to Florida in July. The Hand Center is about 25 minutes from the airport and the roads were easy to navigate. I stayed at the Holiday Express in Juno Beach and drove the beautiful shore route a few miles up to Jupiter for my NA. Several of us Dupers have made this pilgrimage to Jupiter!

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