Hey, I'm pretty sure I have the early stages of Dupuytren's disease, I have to nodules in both hands under the ring finger and pinky finger and I can feel a cord coming through on my left palm, I'm 24, male, nobody in my family has this condition and after spending my entire weekend googling the disease, I am filled with fear and dread. I really don't want to lose the ability to use my hands, I suffer from anxiety and I can't stop thinking about this condition, the only time I'm happy is when I go to sleep as I'm not worrying or panicking about it.


On top of this, I have now read up on Peyronie's disease, and I'm worried this means what I'll ultimately develop that too. I already suffer from ED (dating back to 2010) I was sent to a specialist by my GP and had an ultrasound test, blood test and a few other tests and they determined that there isn't a physiological reason as to why I shouldn't be able to get an erection, and yet still to this day I can get a full erection, they pinned it down to being psychological reasons.


I have booked an appointment to see my GP tomorrow to be referred to a hand specialist, I'm just worried my ED might be due to Petronie's disease because I might have Dupuytrens Disease..


I should be in bed now but I literally cannot stop googling this, I'm really worried, all I can think about now is never being able to be happy later on in life, not being able to use my hands or even satisfy my future wife.

Any help or advice would be great, thank you for reading.

GaryBall:

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Jesse:

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Hey, I'm pretty sure I have the early stages of Dupuytren's disease, I have to nodules in both hands under the ring finger and pinky finger and I can feel a cord coming through on my left palm, I'm 24, male, nobody in my family has this condition and after spending my entire weekend googling the disease, I am filled with fear and dread. I really don't want to lose the ability to use my hands, I suffer from anxiety and I can't stop thinking about this condition, the only time I'm happy is when I go to sleep as I'm not worrying or panicking about it.


On top of this, I have now read up on Peyronie's disease, and I'm worried this means what I'll ultimately develop that too. I already suffer from ED (dating back to 2010) I was sent to a specialist by my GP and had an ultrasound test, blood test and a few other tests and they determined that there isn't a physiological reason as to why I shouldn't be able to get an erection, and yet still to this day I can get a full erection, they pinned it down to being psychological reasons.


I have booked an appointment to see my GP tomorrow to be referred to a hand specialist, I'm just worried my ED might be due to Petronie's disease because I might have Dupuytrens Disease..


I should be in bed now but I literally cannot stop googling this, I'm really worried, all I can think about now is never being able to be happy later on in life, not being able to use my hands or even satisfy my future wife.

Any help or advice would be great, thank you for reading



Hi Jesse

Please try and relax. I am not a doctor but as a Dups patient I have researched many things regarding this condition and the related disorders. You have found a great resource in finding this site. Please read the many articles in the forum of people's real life experiences and do nt Imagine the worst outcomes.

Peyronieis is indeed linked to DD but it is not common that DD patients inevitably end up with it.....my understanding is that just 1 in 10 patients with DD get peyronies. This is a ballpark number that I extracted from a highly regarded and experienced DD physician. The cause of your condition is unlikely to be Peyronies and even if it is .....treatment options seem to be more favourable than they were in the past....

DD is not the end of the world for most patients....it is a condition that needs to be managed...

All the best

Gazza

The weights could easily stimulate Dupuytren's. Any stress/activity that is out of the ordinary can activate Dupuytren's.

Do not panic ,I have had this for 25 years .I just went in for an NA last week and I am now 60 .That was my first treatment .It seems to move slowly . My Mum has it and she is 85 .It has not slowed her down and she has had no treatment .So relax and start doing the exercises they recommend if it is Dupuytren.There is also a strong chance that it could be a hand injury from your weights . Hope all goes well .

Edited 05/11/14 03:42

Hello Jesse,

Please try not to panic. I know this disease can be scary. It’s a hard thing to accept. It can be life altering but not life threatening. I understand all of the emotions you are experiencing. I too, went through all of this. Thank God I am not a man and do not have to concern myself with peronies. I was extremely freaked out that I would get the frozen shoulder. I Researched like crazy. Went to tons of doctors. I had a binder with all my research information in it. I took it with me to each doctors consultation. One doctor even asked me if I had seen a shrink over this. Of course this angered me. I thought how dare him. He has no clue what it is like to face the fact that I may never walk or have use of my hands. At first all I could do was focus on all the negative. I was making myself miserable, going crazy with worry. I stop living. Thought I would never be able to use my hands and feet again. Yet, although painful at times, I was still able to walk and use my hands. Bottom line: I finally had to stop reading all the negative and find the positive. I began to focus on what I can do today. I had to reprogram my mind. It was hard. But I have finally found peace.

I did opt for radiation. It’s been 8 months since the foot and 6 months since the hands. Although I have not received the results I had hoped for I learned to stop inspecting my limbs. I stop obsessing. I needed peace. Little by little I began to get better. I realized my mind is very powerful. There is much power in the tongue. When I speak the problem it seemed to worsen. When I speak the positive it seem to get better. My condition is much the same but I have found peace. I am sorry my words are probably not much of any comfort. If back when I first was diagnosed someone said these things to me I would have probably wished I could have slap them. For me I learned I had to find peace of mind. I don’t know what my future will hold. Will the condition worsen? Will I have to stay single because I cannot wear the cute shoes to go on dates? All of the crazy thoughts that use to plague me I had to learn to push them out. All we have is today. No one knows what tomorrow holds. I hope you will be able to calm your thoughts down and enjoy the day and do what you are capable of doing each day you wake.

I do hope it’s okay if I keep you in my prayers