Welcome l.hartley

Sorry to hear of your difficulties. There are treatment choices for DD and LD as listed on this website, but no cure, and each treatment has its own pros and cons.

You don't say specifically which treatment you had? Collagenase can take a few weeks and maybe months before swelling goes down, surgery can take six months or so. Everyone reacts differently and for some the recovery is quicker.

Collagenase is now undergoing trial for Peyronies's, so there is some ongoing research into that condition too.

Most of us with various degrees of these conditions end up managing the best to cope and getting on with life. It could be worse.

I think you really need to strike up a good relationship with a hand physician, one who who knows all about the treatments available, and can advise on the best choices to improve quality of life given there is no guarantee of a cure. Same for the feet, and urologist for the penis.

Not sure about your website comment. Can you suggest areas where it can be improved to navigate? Writing can be done by dictation software.

Best wishes

SB

I wonder which device. PC, MAC, tablet, mobile, you are using and with which browser?

On a PC by using the mouse to hover over the items listed on the dark blue bar at the top of the page, Home, Disease, Treatment, Patients, ... you should get a secondary drop down menu, which you can then click on. The same can be achieved on a MAC or iOS tablet with Safari by just clicking on one of the listed items, for example Treatment.

The forum itself has three main sections, listed on the first page of the forum as Dupuytren, Ledderhose and Other Treatments, but you managed to find Dupuytren OK and create a new thread. (Two threads actually, I deleted one since it was a duplicate).

Perhaps you will get familiar with the site, but if there is something specific that is a problem let me know.

By browsing the forum, you will find lots of experiences similar to yours. But, also some good or heartening experiences too.

Your profile says Australia, where? We do have some Australian users on here too occasionally. They may be able to recommended clinics, doctors, although some are already listed on the Treatment pages.

thank you so much for your kind and thoughtful reply. it means a lot to me you replied and has kept my spirits up.

i am resident in perth, western australia. my father & maternal grand father both had DC, but restricted to last two fingers as i recall it. i think my problem is rather worse since i have contractures in thumb and first 2 fingers also in both hands. also 1 repeatedly broken arm which makes arm flexion difficult in my better hand. I am retired emeritus professor of psychology here. that is irrelevant of course!

i have had 1 small operation to provide a bit of release of last two fingers on my better hand to 90 degrees from palm so i can at least wash a bit and wipe my posterior, & poke my eye out!
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my principal concern is my wife, who is simply wonderful and has been wiping my bottom for weeks, whilst looking after the 50 acre property and house and land. what a woman she is.

i have viewed several web sites and the future ops proposed by surgeon look horrible with 6 months rehab. I find the rehab & pressure on my wife intolerable-at least before my first op i could do something like wash face with better hand, now i can do nothing. how will she feel after major surgery with 6 mo rehab?

I suppose my critical question is: is it worth going for for further ops with unknown rehab time for both hands or call it quits and wait for my end? given dupuytren is progressive will my end be before complete closure of both hands to a fist and useless, or will i go first????

I have christian up bringing/quaker/church of england here, but don't follow it now much. Now i am beginning to question my existence seriously but not questioning god. so i am in need of some answers to humanities existence and mine. so i """may"" go catholic for sustenance. I need to have answers.
but i don't seem to get answers to my questions from anywhere.
The best answer i ever heard was from visiting Philippino who replied "we are here to witness & celebrate god's construction of the universe". that is the most sophisticated, convincing answer i have heard.
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I don't disagree that there are many worse things. However each if us can bear a different weight. What crushes one man (or woman) is nothing to another. All we can offer is compassion. But telling someone a crippling disease is not that bad isn't my style.
Just my $0.02

Not trying to get in a cyber debate. You golf, I ride motorcycles. Sounds like neither of us lets this get in out way. Simply saying each of us owns our Health issues and face them differently. Just as you wouldn't or shouldn't diminish a child's feelings, I simply implied the other fellow has a right to their feelings. Opinions are opinions. Any further discussion by PM please.