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I think I'm gonna cry...
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05/13/2010 04:01
Now-what 
05/13/2010 04:01
Now-what 
I think I'm gonna cry...

And I'm pretty tough.
A little history...female, 56 years old.
Back surgery (herinated disk) exactly one year ago.
5 months later...shoulder surgery. Doc released bicep tendon that was shredded.
3 months later, other shoulder...same pain, still haven't seen doc yet...trying to wait it out to see if it gets better.
2 weeks ago.....small, hard nodule to right foot to instep...now with mild pain.
2 days ago...burning *pulling* type pain to palm of left hand and slight pain to right hand also. No nodule yet, but I can barely see and feel a cord.
So, I see family doc today...who diagnosed me with Dupuytens.
My father had it badly in one hand, also my older brother...although at that time, I didn't know the name of the disease.
I am so overwhelmed. I actually ache over my entire body especially at night.
I found the board and honestly don't know where to even start. Doc told me there is really no good treatment. I assume he would refer me to someone if things get worse.
I didn't even know (and I'm not sure he did) about the shoulder connection until I read it on this site.
Any ideas...tips at this stage?
Thanks

05/13/2010 05:14
LubaM. 
05/13/2010 05:14
LubaM. 
Re: I think I'm gonna cry...

I'm sorry about your surgeries and new diagnosis, but .... First thing is first....don't despair !!! you have come to the right place and are lucky to find this forum in the early stages of Dupuytrens... you will find tons of information on the menu to the left. Read all you can about radiotherapy and needle aponeurotomy and use the search feature on this forum to find out what others have gone through and how they have handled their problems.

Consider RT (radiotherapy) and NA (needle aponeurotomy) as your first choices should your Dupuytrens begin to progress. Keep a close watch or take photographs to document the progression. Post your questions on this forum and you will get alot of good advice to help you make decisions.

Personally, I have been lucky with successful RT for my nodules on right hand and RT for nodules on my left foot (Ledderhose disease). I have also had two NA's on my right pinkie finger, but I let it get contracted too much because I had been told by surgeons to wait in order to do surgery (that was before I found this forum in 2006).

Good luck to you and don't hesitate to ask questions.

LubaM.

05/13/2010 16:31
David26

not registered

05/13/2010 16:31
David26

not registered

Re: I think I'm gonna cry...

I was in your shoes about a month ago. I'm starting radiation next week and hope it helps some.

With all the data that says this affects males at a much higher number I wonder why there aren't more male posters. Just something I've noticed.

05/13/2010 16:42
Now-what 
05/13/2010 16:42
Now-what 
Re: I think I'm gonna cry...

As much as I hate that there are other people suffering with this, I am happy to have a group to comisserate with.
Another interesting thing I've found (after the fact) is that there may be a connection between glucosamine/chondrotin. Funnily enough I had started taking this a few weeks before the foot nodules/palm pain began. I'm sure the disease was probably already there, but I do feel it accelerated it. Something I thought would be beneficial to my various aches and pains may have in fact helped them along

05/13/2010 17:28
wach 

Administrator

05/13/2010 17:28
wach 

Administrator

Re: I think I'm gonna cry...

You may be right that glucosamine/chondrotin accelerated the disease. But too late anyway. Did you see the last section of
http://www.dupuytren-online.info/dupuytr...therapies.html?

Wolfgang

Now-what:
As much as I hate that there are other people suffering with this, I am happy to have a group to comisserate with.
Another interesting thing I've found (after the fact) is that there may be a connection between glucosamine/chondrotin. Funnily enough I had started taking this a few weeks before the foot nodules/palm pain began. I'm sure the disease was probably already there, but I do feel it accelerated it. Something I thought would be beneficial to my various aches and pains may have in fact helped them along

05/15/2010 06:14
deeproot 
05/15/2010 06:14
deeproot 
Re: I think I'm gonna cry...

Very strange disease, kind of interesting how you stated you ache all over. Im going through back and neck pain, tendinitis in shoulder and elbow, fascitis in feet, and tmj problems. Really sucks sometimes, I kind of know how feel. Take care

05/31/2010 12:43
Pearl 
05/31/2010 12:43
Pearl 
Re: I think I'm gonna cry...

I have also just been diagnosed and don't know where to begin. I am a 59 year old female. My right hand is involved and have had problems with my feet for nearly 4 years. I am a cancer survivor and many of these symptoms have occured after taking a powerfull chemothearapy drug. I am also on medication that causes me to loose calcium. At present they are monitoing my blood sugars. I exercise regularily several times a week.
Where do I begin?

12/27/2010 08:39
pauljackson 
12/27/2010 08:39
pauljackson 
Re: I think I'm gonna cry...

according to me Regular exercise relieves back pain by strengthening and stretching the muscles that support the spine and helps to prevent future injury Studies have shown that yoga is the number one most effective exercise for relieving back pain. Posture Exercise designed for your body to retrain poor patterns of body motion.chiropractic treatment technique involves manual therapy, including manipulation of the spine you should consult an expert.


Chiropractor Lawrenceville GA

12/31/2010 21:22
JoanneH 
12/31/2010 21:22
JoanneH 
Re: I think I'm gonna cry...

Really sorry to hear about all the problems you are having at once. Please take a look at my earlier post titled "lack of sunlight and auto-immune disease. There is a growing evidence that all these problems could be a result of chronic low levels of Vitamin D. Get your level checked as soon as possible. Below is a recent article from CNN's Sanjay Gupta about the Vitamin D deficiency -Auto-immune disease link. Hope the info helps.

http://pagingdrgupta.blogs.cnn.com/2010/...?iref=allsearch

Edited 12/31/10 23:28

01/01/2011 02:38
Cyclist 
01/01/2011 02:38
Cyclist 

Re: I think I'm gonna cry...

Pearl:
I have also just been diagnosed and don't know where to begin. I am a 59 year old female. My right hand is involved and have had problems with my feet for nearly 4 years. I am a cancer survivor and many of these symptoms have occured after taking a powerfull chemothearapy drug. I am also on medication that causes me to loose calcium. At present they are monitoing my blood sugars. I exercise regularily several times a week.
Where do I begin?

Hi Pearl
From what I've been reading, the condition is understood to be hereditary, so you probably would have got it anyway (although that's not to say a shock to the system like a powerful chemo drug might not have brought it on earlier??)

Good on you for keeping up the exercise through all you have been through! I have found it challenging at times, but now thanks to this web forum, I have learned from other experiences that exercising doesn't make it worse and I suspect it probably helps. Some people are running marathons with LD.

You should look into what you can do about those Calcium levels

All the best of luck!

Di

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