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New Guy
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04/04/2016 07:19
futurenets 
04/04/2016 07:19
futurenets 
New Guy

Hi

I have dupuytren contracture and would like to ask ...

Our NHS here in the UK has recommended surgery but have been reading up on Xiapex and wondered what the general opinion was?

04/04/2016 07:33
Stefan_K. 
04/04/2016 07:33
Stefan_K. 

Re: New Guy

futurenets:
Hi

I have dupuytren contracture and would like to ask ...

Our NHS here in the UK has recommended surgery but have been reading up on Xiapex and wondered what the general opinion was?

Hello futurenets. There are two main alternatives to open surgery for releasing Dupuytren contractures: needle aponeurotomy (NA) also called percutaneous needle fasciotomy (PNF) and Xiaflex/Xiapex collagenase. You can read up on them here under "Treatment" at the top of this page. Many have excellent results without the risks, pain and long recovery involved in surgery.

We are not doctors here and cannot make a diagnosis or formal recommendation, but if you describe your condition (location, size and evolution of nodules and cord, as well es degree of contracture) we can guide you and make suggestions. Chances are you can avoid surgery.

Stef

[54 year-old male, DD diagnosis 2006, RH contracture and NA/PNF 2014, RT 2015, wearing night splint glove]

04/04/2016 07:34
wach 

Administrator

04/04/2016 07:34
wach 

Administrator

Re: New Guy

Hi, welcome to our forum!

The NHS not only endorsed surgery but also needle fasciotomy (a minimally invasive method, also called needle aponeurotomy) and, in some areas of the UK, also collagenase injection (brandname is Xiapex), which is also considered minimally invasive. If you want to know more about These Options you might read through the according pages (above menu "Treatment"). It's worth it!

Wolfgang

04/04/2016 10:29
spanishbuddha 

Administrator

04/04/2016 10:29
spanishbuddha 

Administrator

Re: New Guy

Hi futurenets

Another welcome to the forum.

Although surgery is often highly successful we suggest leaving it for the most difficult and extreme contractures, and recommend NA/PNF or collagenase (Xiapex) should be explored first. For early cases where there is no contracture and ongoing symptoms of activity of progression then RT may be considered.

In addition to the advice so far offered, check out the ever growing list of clinics, doctors, hospitals in the UK offering the different forms of treatment http://dupuytrens-society.org.uk/treatme...-organisations/ on the BDS website.

Best wishes
SB

Edited 04/04/16 13:29

04/04/2016 12:54
econn 
04/04/2016 12:54
econn 
Re: New Guy

Try to find a practitioner who has successfully performed NA, Xiapex (Xiaflex) and all DC hand surgeries. They can make a determination as to which procedure will work best in your situation. I personally decided not to have surgery and opted for Xiaflex 2 years ago and am very pleased with the results, but it's not the right choice for everyone.

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