| Lost password
885 users onlineYou are not loggend in.  Login
newly diagnosed with DD
 1 2
 1 2
01/25/2011 21:35
Larry 
01/25/2011 21:35
Larry 
Re: newly diagnosed with DD - A case for RT

Yes ! And well confirmed by the others: seems to be a case for RT !!

Need careful palpation to detect "hidden disease" - DD is not WYSIWYG !

WHAT YOU SEE IS WHAT YOU GET !

In my case palpation of the PROF was essential to extend the RT field to
areas which I would not have detected myself - so its WYPIWYR =

WHAT YOU PALPATE IS WHAT YOU RADIATE !

Larry

Edited 01/25/11 23:36

01/26/2011 00:44
Cyclist 
01/26/2011 00:44
Cyclist 

Re: newly diagnosed with DD

dscott:
Well I now know for certain that what I have is DD. Visiting my parents out of state, I asked if they knew of any relatives with it. My dad showed me his his palms and he has significant nodules and cords on both. (both feet as well) Strange that he doesn't seem to have much disease in fingers yet.....

Anyway, he did not develop the disease until he was in his sixties, which does concern me since I'm in my mid forties. I appreciate the advice regarding RT on the forum. I will definitely be looking into it. If anyone knows of a doc in Orange County CA that performs the therapy that can be recommended, I'd appreciate the referral.

Thanks Again!

Hi dscott
I'm on this forum because I'm experiencing similar symptoms in my hands to my feet, without any visible evidence of anything as yet. I wanted to hear how it starts, so I can keep watch for early signs.

I'm also in my mid-forties and developed nodules in both feet about 4 years ago. I empathise with your story as I agree it would have been so much better to have another 20 years before having to deal with this condition. When I looked into family history, no-one reported any other family involvement. However, when I looked at the pictures of knucklepads, I realised my father has them (he still doesn't believe it's not really arthritis).

I'm going to Germany for RT and Prof Seegenschmiedt will check my hands along with treating my feet. I'm hopeful that I can keep this condition in check with the help of RT as most patients report excellent results in terms of reducing symptoms and stopping the progression.

One good thing to say about having this condition in your forties is that the risks associated with RT are even lower (scientific reports document the risks as negligible for our age bracket upwards)

Good luck
Di

 1 2
 1 2
disease   nodules   experiencing   EXTREMITIES   definitely   involvement   condition   diagnosed   consultation   Seegenschmiedt   recommended   developed   information   approximately   significant   appreciate   contracture   Tripuraneni   progression   Aponeurotomies