peyronie-dupuytren-ledderhose in Washington State |
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01/11/2009 20:17
Issleib
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01/11/2009 20:17
Issleib
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Re: peyronie-dupuytren-ledderhose in Washington State
My total cost for both sessions and my inital consult for my hands was just over 13,000. I think I paid 600-700 out of pocket. Blue Cross paid or negotiated down the rest.
It was similar for my feet.
My insurance didn't question it at all and that surprised me
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01/12/2009 09:20
philwaite
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01/12/2009 09:20
philwaite
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Re: peyronie-dupuytren-ledderhose in Washington State
The original posting/enquiry from 'badchess' raised an interesting point that seems to have been overtaken by specific replies about radiation & costs etc.
The question he raised that I thought might be of wide interest is:
"I developed peyronie's disease. While researching that on the internet I determined that I had both Dupuytren's Contracture and Ledderhose disease (on my right hand and right foot).
I'm going to a doctor later this week, but does anyone know if there is some widespread systemic switch that can be treated for all of these related problems"?
Any ideas or experiences to share anyone? Europe?
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01/12/2009 11:50
wach Administrator
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01/12/2009 11:50
wach Administrator
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Re: peyronie-dupuytren-ledderhose in Washington State
Phil, that really is a good question. I believe if we were able to answer it we would understand these diseases much better. So far the relation between these diseases seems to be empirical. If anyone knows a better answer please do speak up!
Wolfgang
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01/12/2009 15:31
fmerk
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01/12/2009 15:31
fmerk
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Re: peyronie-dupuytren-ledderhose in Washington State
You're right, I answered the 'implicit' question, not the direct one. Frankly I know of no systemic treatment for any of these diseases. So far all that is available is various symptom treatments. We don't seem to understand the disease, cause, or how to stop it.
So the only thing I know available is treatment and I know of no progressive treatment in Seattle.
Fritz
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01/15/2009 12:48
badchessnot registered
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01/15/2009 12:48
badchessnot registered
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Re: peyronie-dupuytren-ledderhose in Washington State
Talked to the doctor he knew the Dupuytren right away, had never seen Ledderhose before. He basically said "wait until it is really bad then operate." but I got three referrals anyway (one for each part of my body afflicted).
Boise doesn't sound too bad, depending on how my insurance handles something like this.
After radiation does the Dupuytren process stop Or move slower or pause for a while?
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01/15/2009 13:16
badchessnot registered
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01/15/2009 13:16
badchessnot registered
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Re: peyronie-dupuytren-ledderhose in Washington State
OK, I read the radiation tab and it sounds nice. I'll try to push my next couple of doctors in that direction.
Does Kline in Boise do radition too? I don't see anything about it on his web site
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01/15/2009 15:57
fmerk
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01/15/2009 15:57
fmerk
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Re: peyronie-dupuytren-ledderhose in Washington State
He doesn't do it. There is a facility he uses. Kline only does NA. Megan can probably help with that. Fritz
Edited 01/15/09 17:58
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01/15/2009 19:28
Megan
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01/15/2009 19:28
Megan
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Re: peyronie-dupuytren-ledderhose in Washington State
Hi all,
Right...Dr. Kline performs NA and also give steroid injections. I saw him for an exam and after determining that I was a good candidate for radiation, he referred me to Dr. Kuhn, who is a radiation oncologist at St. Luke's Mountain States Tumor Institute, which is just a few blocks away from his office. You need to see a radiation oncologist for radiation therapy. I initially saw Dr. Kline in June; his office sent all my paperwork over to St. Luke's and I made all the necessary appointments for the consult with Dr. Kuhn and the subsequent radiation by phone. They were very helpful at St. Luke's.
let me know whether you want the phone number for Dr. Kuhn - you can email me directly at meganlyden@msn.com.
Megan
Edited 01/15/09 21:32
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01/23/2009 04:06
shantidognot registered
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01/23/2009 04:06
shantidognot registered
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Re: peyronie-dupuytren-ledderhose in Washington State
I am trying to contact Dr Kline for NA and I can't get an answer at his office. I have left messages on an answering machine, but no one returns my phone calls. Also I can't access his website any more. I was treated by Dr Eaton about 4 yrs ago and my hands need more NA treatments. I thought I would stay closer to home this time, but am disappointed by my failure to connect with Dr Kline. Does any one know how I can reach him or what the problem is with his office?
Thank-you
Marilyn
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01/23/2009 04:22
Megan
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01/23/2009 04:22
Megan
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Re: peyronie-dupuytren-ledderhose in Washington State
HI Marilyn,
Dr. Kline's office is only open part-time; he is also an emergency room doctor. You'll have to be a little persistent....I think they are usually open on Friday mornings. Jill, who does Dr. Kline's scheduling, works from a different location. It's possible she is on a vacation, or maybe Dr. Kline is away for a break.
I had trouble reaching them a couple of times!
Megan
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