| RT in Hamburg by Prof. Seegenschmiedt |
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04/11/2016 07:25
Stefan_K. 
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04/11/2016 07:25
Stefan_K.
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Re: RT in Hamburg by Prof. Seegenschmiedt
spanishbuddha:
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The very next day I had two sore new nodules, quite large and angry ones too, very disappointing! This was October last year. There are now three nodules in that area lining up nicely in the palm to form a cord, which they have not done and I still have the flexion I had before. The soreness has gone, the two nodules not so large and angry, so it seems to be stabilising. I tell people to protect their hands, but regularly fail to do so myself - just been laying paving slabs, so much easier without gloves. Survived that one I think.
Yes, it is one of those things that are easier said than done. I am surprised, though, that large nodules could form overnight. I didn't think it was a process that could go that fast. Do you believe these are typical DD nodules likes others you have or had, since they apparently also shrunk by themselves, or something different? Have you heard of similar cases? Just curious.
Stef
[54 year-old male, DD diagnosis 2006, RH contracture and NA/PNF 2014, RT 2015, wearing night splint glove]
Edited 04/11/16 10:26
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04/11/2016 07:50
Peacefulbird 
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04/11/2016 07:50
Peacefulbird
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Re: RT in Hamburg by Prof. Seegenschmiedt
Stefan_K.:
I didn't think it was a process that could go that fast. Do you believe these are typical DD nodules likes others you have or had, since they apparently also shrunk by themselves, or something different? Have you heard of similar cases? Just curious.
"Not that fast" is what I've read too, Stef. However, my first nodule seemed to appear overnight. One day my hand, as far as I could see, was normal. I notice my hands every night when I message them a bit with cream. Nothing was amiss. The next morning I was aware of a low-level pain in my right palm, and noticed a single, medium-hard, pea-sized bump under my ring finger between the two finger crease horizontal lines. As far as I know, I didn't do anything the day before that "hurt" my palm, or the week before, or even the month before. Except... I am constantly hand-sewing, hand-quilting, hand-embroidering. I had been stitching 8-10 hours/day for the previous 2 months trying to finish a project. The sewing was "heavy," requiring pushing and pulling the needle with my right hand. The second and third nodules also appeared rather suddenly after a particularly frenzied week of stitching.
It's interesting to read in many discussions of DD, that there is no known correlation between use of the hand and development of DD.
It would be very interesting to know if there is a correlation between frequent motorcycle riding and development of DD (I do that too).
Wishing you all the best,
Peacefulbird
Washington state, USA
right hand DD, onset Oct. 2015
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04/11/2016 08:10
spanishbuddha  Administrator
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04/11/2016 08:10
spanishbuddha Administrator
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Re: RT in Hamburg by Prof. Seegenschmiedt
Yes it was that fast, one day, or overnight. It appears at first as a swelling or callus like blister, a soft but sore protrusion following the trauma, so you say to yourself or hope that it's not a DD nodule, but then it settles into the DD nodule.
It happened before with me on the RH the first instance of DD ever in that hand, the day after using loppers in the garden. I thought it would go away then, not realising for sure what it was. But no, that was the start of DD in that hand.
So this quick appearance is not typical development or progression, but a clear reaction to trauma in my case. I play tennis, and continue to do so throughout, and the handling of a racquet and hitting a ball with resultant vibration, albeit with glove, is not enough to create or influence these trauma induced nodules.
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04/11/2016 08:14
mellow 
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04/11/2016 08:14
mellow
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Re: RT in Hamburg by Prof. Seegenschmiedt
jimbob0802:
Thanks for this very helpful reply. I would definitely like to go the RT route if an oncologist deems it helpful - at the age of 33, I've got this thing pretty early on, and would like to halt its progression as early as possible. I just hope that my left hand hasn't gone beyond the stage of RT help - after following the techniques used in Alistair Cook's reports, it's clear that I'm got a contracture when doing the adpated table top test - probably of about 10 degrees, so I would still be in N/1...but the nodule and cord I have is huge. So I need to get on with this straight away.
Jim,
You mention that you believe you have a contracture of about 10 degrees based on the adapted table top test. Is this apparent based on the conventional table top test? Just curious as the conventional table top test (i.e. palm face down on a flat surface) seems to be the only test recognised in medical journals. You may think you have a contracture when you don't really.
Mellow
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04/11/2016 08:23
spanishbuddha Administrator
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04/11/2016 08:23
spanishbuddha Administrator
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Re: RT in Hamburg by Prof. Seegenschmiedt
Peacefulbird:
It's interesting to read in many discussions of DD, that there is no known correlation between use of the hand and development of DD.
Did you read this? http://www.dupuytren-online.info/dupuytr...ure_trauma.html A search on PubMed suggests a suspected statistical link, with certain types of manual work.
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04/11/2016 08:48
Peacefulbird
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04/11/2016 08:48
Peacefulbird
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Re: RT in Hamburg by Prof. Seegenschmiedt
spanishbuddha:
Did you read this? http://www.dupuytren-online.info/dupuytr...ure_trauma.html A search on PubMed suggests a suspected statistical link, with certain types of manual work.
Nope, I thought I'd been through everything on the site, but either I missed this page or was sleep-reading. Thanks so much for the link. Very interesting... glad to see the IDDB has questions on their participant survey that should add to the research on this topic. A side benefit to having active DD is learning about it, and the wider topic of learning how the internet, the world wide scientific community, and ordinary folks like me work together to build knowledge and better treatments. 
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04/11/2016 20:06
jimbob0802 
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04/11/2016 20:06
jimbob0802
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Re: RT in Hamburg by Prof. Seegenschmiedt
Hi Mellow
I see your point - certainly if I place my hand down flat, there's no contracture - it's just the size of the nodule which slightly raises the hand. When doing it by the adapted test, there is about 10%, but this is loosely based on the 30% illustrated in Alistair Cook's photos. So not scientific at all really.
Jim
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07/26/2016 19:55
Telford
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07/26/2016 19:55
Telford
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Re: RT in Hamburg by Prof. Seegenschmiedt
Hello would anyone on this thread mind confirming if the Dr/Mr Morris referred to is Dr Stephen Morris At Guy's Hospital in London? My GP is willing to refer me but hasn't been able to establish if he is the right person. Many thanks.
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07/26/2016 20:01
spanishbuddha Administrator
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07/26/2016 20:01
spanishbuddha Administrator
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Re: RT in Hamburg by Prof. Seegenschmiedt
Telford:
Hello would anyone on this thread mind confirming if the Dr/Mr Morris referred to is Dr Stephen Morris At Guy's Hospital in London? My GP is willing to refer me but hasn't been able to establish if he is the right person. Many thanks.
Yes that's is correct. You or your GP could call his secretary first.
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