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should I go under the knife?
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02/01/2011 14:40
cindy850 
02/01/2011 14:40
cindy850 
Re: should I go under the knife?

I am very informed and read about surgery for weeks and weeks and i find that the research that i have found can't back up the results of keeping this disease under control. This is my thought what i think about surgery and i'm not asking anyone to agree with it. But what i would say before you have some doctor cutting on your hand and digging around nerves and tendons and take the chance that you could loose some usage of your hand. I would think long and hard. I'm glad it has seemed to work out for you but for how long. There is not a good percentage rate for surgery. Then you have to ad in all the time you invest for PT and hope you don't get scar tissue and need a graft. I think you are the one not informed and could it be your upset that you didn't investigate further to find out that you should of thought about this before someone cut on your hand. Good luck with your results. Everyone please do your research before the craving!

02/01/2011 14:56
callie 
02/01/2011 14:56
callie 
Re: should I go under the knife?

cindy850,

So are you against all surgery or just a minor surgery such as a fasciectomy? My fasciectomy was nine years ago and my hand is as good as before Dupuytren's. I only had two sessions of PT. Probably every surgeon who does NA would disagree with your assessment of fasciectomies. Most do both NA and hand surgery. Surgery is often the next step after a NA that doesn't work as well as expected. Also, many people like having all of their fingers.

02/16/2011 16:56
richardt 
02/16/2011 16:56
richardt 
Re: should I go under the knife?

Hi Papa,

I had the same debate with myself, whether to amputate or go under the knife. I chose the knife and, 9 surgeries later I would still chose the knife. I'm planning my tenth surgery. The surgeries have varying degrees of success, but the ability to use my hands fully is well worth the trouble of the surgery. I don't bother with PT anymore, and I even pull my own stitches, change the dressings etc. I'm not a suitable candidate for Xiaflex, RT, or the needle faciotomy, but am content with surgery every couple of years. Don't dread the surgery, it is not a bad option. Good luck with your deicision.

richard

02/24/2011 20:30
bstenman 
02/24/2011 20:30
bstenman 
Re: should I go under the knife?

There are several known problems with fasciectomies. The risk of severe complications including amputation is something that only results from this procedure and not from NA or Xiaflex. Recovery time is months and in some cases people find themselves a year later with less use of their hand (due to loss of muscle strength) than before the operation.
There are risks for the tourniquet and risks from the general anesthesia.

The only studies I could find regarding hand surgery and Dupuytren's suggested a recurrence rate of 50%. Out of a thousand patients there are likely to be some people who had full use of their hand after 60 days and after 10 years had no recurrence. But that is not information that you can extrapolate from to predict probable outcomes for different people with different surgeons and different physical therapists.

I do know that anyone who goes to 5 doctors, one who only does fasciectomy, one who does the fasciectomy and NA, one who does NA or Xiaflex, and one who only does Xiaflex, that you are highly likely to get 5 different opinions as to the best course of treatment. With the known risks of a fasciectomy I would want a second and possible a third opinion and even if proceeding with the fasciectomy I would want to find the surgeon who has the most experience successfully performing this operation. The doctors I would select for the additional input would be ones with extensive experience in NA and the use of Xiaflex regardless of how far I had to travel for the consult.

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