I haven't posted in quite a while--since I was a couple of weeks out from my first experience with Xiaflex. Quick recap...

DD in right hand. Surgery 8 or so years ago. 3 NA treatments since, with the last treatment not relieving the contracture--too much scar tissue. Xiaflex treatment straightened the finger!! Not 100%, but at least I can grip a football now. I did have some pretty significant tenderness at the MIP joint (which was below the nodule) for over a month. That pain is now gone.

DD beginning in left hand. Nodules on palm & contracture at PIP of the pinky. RT treatment (2 rounds of 5 days) for the palm as the nodules were fairly small. RT seems to have slowed the progress of the nodules, though I continue to have severely dry skin--not a big deal in the whole scheme of things.

Decided to deal with the pinky as it was getting worse rather quickly. Went to Dr. Hutson in Walla Walla, WA. He had a hard time injecting Xiaflex as the nodule was quite dense. The injection was VERY painful. Went back for release the next day. He had done a few releases since my last visit & had some tearing of the skin, so he was prepared for mine to do the same as a precaution. But, no tear just a great release! 5 days later the finger is still pretty swollen & bruised (there is a nasty pinpoint bruise from the Xiaflex injection). Still some pain in the joint from straightening, but not bad.

All in all I am very happy with my results from Xiaflex. I was very skeptical about Xiaflex at the beginning, but being relatively young (46 right now) I was willing to give it a shot. I'm almost certain I'll be back for more treatments over the coming years & decades.

Ditto to what Tam1 says.

Thanks!

Coach, we wish you the best with your healing process and thank you again for sharing the details on your experience with Xiaflex. It will be interesting to see how long it takes before all the discomfort is gone and you can also return to sleeping normally, without a splint.

To answer flojo:
No, the nodules I mentioned aren't new. I have 3 on my palm & one on the side of my pinky MIP joint. The 3 on the palm seem to have slowed or stoppe progressing--I'm hoping the RT worked it's magice there. The nodule on the side of my pinky I'm thinking is active. There seems to be a nodule growing between the MIP & PIP joints on the pinky, basically right beside the nodule that the Xiaflex took care of. However, that nodule may just be swelling or some scar tissue???