I am not sure if this is the right place to post this story but i would like some input, I am 36 years old I first got a small nodule in my foot when I was 15, surgically removed at 17, another removed at 19, 20, and a fairly major attempt(really big scar) at removing the mass at 22, none of this worked and I decided the surguries were just giving me scars not a cure. I have a fairly large mass in my foot and now have the condition in my hand. I had a contracture surgically removed from my little finger 2 years ago and it has now developed in my middle finger. I have read this is a man's disorder and usually doesn't occur untill later in life.. I am a woman and I have had this since I was a young girl..

None of the contractures or masses have hurt much until this middle finger, right now I am waiting for it to bend more than 30% so I can have surgury to release contracture I have a knuckle pad on the middle finger too and it DEFINATELY hurts when impacted. I have been told to expect surgury every 3-5 years. The mass in my foot involves two of my toes, and is quite large what could I expect from surgury. I have already had 4 surguries and the last ones scar runs from my my big toe to my heel it was serious hospital for 4 -5 days a drainage tube lots of time off in recovery very sensitive scar. I know that I throw my weight to my other foot and I do not run or really extend/stretch the bottom of my foot for any reason other than an emergency.

Also, for contracture releases in your hands, please look into NA and/or Xiaflex injections as possible alternatives to fare more invasive open hand surgery.

kcrandall:

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i live in Ontario Canada, I have asked about alternatives to surgury and been told there is nothing in Canada. I have family in Florida so I can try treatments there if they are available. where is the best place for treatment

Edited 09/30/10 22:43