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Dr. Rose in Austin
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08/18/2010 21:43
flojo 
08/18/2010 21:43
flojo 
Re: Dr. Rose in Austin

You did all you can do - get the best info that you can and make a decision based on that. I think that I, too, would go with what Dr. E and Dr. D recommend. They both would be at or near the top of any list for NA.
Luba has experienced Dups in the PIP, so she has a different perspective, but I know that she respects both Dr. E
and Dr. D.

09/22/2010 21:20
hrose01 
09/22/2010 21:20
hrose01 
Re: Dr. Rose in Austin

Hello all,

It was very nice meeting Paula in the office and discussing her situation. She has done a wonderful job relaying some important information about Dupuytren's treatment to you and I appreciate her kind comments about me. I wanted to add one important item to the discussion.

In my opinion, the most important factor in deciding to proceed with Dupuytren treatment by any technique is loss of function. I always ask my patients "What tasks can you not perform today that you would like to be able to perform after a procedure?" Answers to this vary according to the individual but common responses that mean surgery or needle aponeurotomy should be helpful include:

1) "I cannot lay my hand flat on a table."
2) "It is difficult to get my hand in my pocket."
3) "I have trouble putting on makeup."
4) "It is difficult to get my hand around or to grip certain objects."

While measurements of range of motion have their role, I have found it much better to focus on function. That way, when one considers the risks and benefits of a procedure, it is much easier to talk about the potential upside. Additionally, patients are always able to point to some function that they would like to gain long before their contractures reach a point that prevents effective treatment.

Thank you all for the interesting discussion and to Wolfgang for maintaining this website with all of its useful patient information.

Regards,

Harris Rose, MD
Austin, Texas
www.harrisrosemd.com

09/23/2010 05:48
LubaM. 
09/23/2010 05:48
LubaM. 
Re: Dr. Rose in Austin

Thank you Dr. Rose for pointing out another factor "loss of function" that can be used in deciding treatment for DD. A very good point. But from my own experience....just as important is "which finger is affected and in which joint"... The PIP joint in the small finger has a memory of its own, you can usually only expect a 50% improvement, so the sooner it is corrected the better chances for long lasting results...

Of course this is one person's experience and opinion. Having had NA twice on the same finger/joint I strongly believe that if I had taken care of it the first time long before the contracture became so severe, I would have had more success.

09/23/2010 12:51
patandpaula 
09/23/2010 12:51
patandpaula 
Re: Dr. Rose in Austin

Thanks for your comments, Dr. Rose. The more information and discussion we can have about this crazy condition, the better.
Wolfgang, would you mind telling me, the pinkie you referred to earlier, how many degrees has it bent approximately? And is it bent from the actual PIP joint like mine is? And also, if you dont mind, why do the docs say that NA is not feasible? Is it because there is no actual cord? Because at this point I am not sure whether there is a cord or just the nodule causing the contraction in my pinkie. Dr. Eaton said it "appeared" there was a cord from my pics, but I have never seen him in person. Anyway, thanks for any help.

Paula

09/23/2010 17:09
Mike S

not registered

09/23/2010 17:09
Mike S

not registered

Re: Dr. Rose in Austin

Paula,

I am no expert but I do have DD. I had a 90-95 degree pinkie contracture successfully released to about 15-20 degrees by Dr. Keith Denkler in Larkspur, CA, using NA. Having a PIP contracture does not NECESSARILY limit the NA correction to 50%.

09/24/2010 00:19
LubaM. 
09/24/2010 00:19
LubaM. 
Re: Dr. Rose in Austin

@Mike S:
Paula,

I am no expert but I do have DD. I had a 90-95 degree pinkie contracture successfully released to about 15-20 degrees by Dr. Keith Denkler in Larkspur, CA, using NA. Having a PIP contracture does not NECESSARILY limit the NA correction to 50%.
Mike,
I'm so happy that your NA was so successful, I hope it lasts forever !

As I said, the opinion expressed above is only the opinion and experience of one person. Could it have something to do with how long one has had the contracture? I wonder.

I know that when I first joined this forum in 2006 I remember someone (can't remember his name) saying that PIP joints have a memory and the sooner the NA the better... It turned out to be true for me.

Edited 09/24/10 03:20

09/24/2010 13:53
patandpaula 
09/24/2010 13:53
patandpaula 
Re: Dr. Rose in Austin

Thanks Mike and Luba for sharing your thoughts and experiences. I guess if I knew for sure if it is a cord or a nodule only in my pinkie, it would help. I feel it must be a cord also somewhere in there because it is contracting. Also wish more docs accepted insurance, but I can't blame them because I know it dealing with the insurance companies are a nightmare.

Paula

09/24/2010 15:37
Mike S

not registered

09/24/2010 15:37
Mike S

not registered

Re: Dr. Rose in Austin

Luba/Pat and Paula,

In my case my PIP contracture had been slowly but steadily progressing for about 8 years when I had NA in Nov. 2006. To this day, I'm not certain if I had a chord or nodules (though I definitely have new nodules/dimples now; maybe chords as well), but I did have a severe (90-95 degrees) contracture. Although the doctor did not accept insurance and asked to be paid up front, my insurance company (Blue Cross POS) surprisingly covered the NA procedure 100% without any inquisitions.

09/24/2010 15:53
LubaM. 
09/24/2010 15:53
LubaM. 
Re: Dr. Rose in Austin

@Mike S:
Luba/Pat and Paula,

In my case my PIP contracture had been slowly but steadily progressing for about 8 years when I had NA in Nov. 2006. To this day, I'm not certain if I had a chord or nodules (though I definitely have new nodules/dimples now; maybe chords as well), but I did have a severe (90-95 degrees) contracture. Although the doctor did not accept insurance and asked to be paid up front, my insurance company (Blue Cross POS) surprisingly covered the NA procedure 100% without any inquisitions.
Mike,
You say that you have new nodules/dimples and maybe chords as well..... that indicates active disease. Have you considered or are you interested in doing RT to prevent further growth and hopefully stop the progression? Just a SUGGESTION.... I (as others on this forum) had RT on my other hand and foot (for Ledderhose) almost a year ago and it has stopped, for now, the growth of nodules, they are definitely much smaller and softer, there is also no more itching or burning.

I remember now that you had NA at about the same time as I did with Dr. Denkler in 2006. Glad you are still posting on this forum, that is how we can really learn from eachother about the long term success of the different treatments...

09/25/2010 08:12
wach 

Administrator

09/25/2010 08:12
wach 

Administrator

pinkie

Paula; my pinkie bends in the middle = PIP joint qnd the contrqcture is cuased by nodule sitting close to the joint; no recognizable cord there.

Wolfgang

patandpaula:
Thanks for your comments, Dr. Rose. The more information and discussion we can have about this crazy condition, the better.
Wolfgang, would you mind telling me, the pinkie you referred to earlier, how many degrees has it bent approximately? And is it bent from the actual PIP joint like mine is? And also, if you dont mind, why do the docs say that NA is not feasible? Is it because there is no actual cord? Because at this point I am not sure whether there is a cord or just the nodule causing the contraction in my pinkie. Dr. Eaton said it "appeared" there was a cord from my pics, but I have never seen him in person. Anyway, thanks for any help.

Paula

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