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Dupuytrens surgery and nerve pain
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10/06/2013 00:44
lorraine 
10/06/2013 00:44
lorraine 
Dupuytrens surgery and nerve pain

I had surgery 11 weeks ago and have proably not been without pain since. Initially I accepted the pain was to be expected for sometime after surgery. However probably after 3 weeks of Panadol/Nurofen regime having no effect I realised the pain was different to surgery and healing pain. It was stabbing, burning pins&needle and numbness. I spoke to my OT who sent me back to the Dcotors at the Hand Surgery Clinic and I was prescribed Pregabalin 75mg twice daily. I took one at night and went to bed, took one the next morning and went off to work only to be lead to sick bay by 12noon to have 2.5 hrs sleep. Went back to the Doctor and they prescribed 25mg twice daily, no improvement in pain. Since then I have played around with my dosage and can manage 75mg at night and 50mg in the morning. However, the results are minimal and in particular night time is the worst, not getting much sleep and have to work.

My biggest concern is that this may become a long term thing as the way it has been described to me is the nerve had been bruised and will heal or it has been damaged and????????. Can anyone give me any hope that after this length of time the nerve may still only be bruised or if you have ongoing nerve pain have you been able to control it?

10/06/2013 01:37
moondanc 
10/06/2013 01:37
moondanc 
Re: Dupuytrens surgery and nerve pain

lorraine:


My biggest concern is that this may become a long term thing as the way it has been described to me is the nerve had been bruised and will heal or it has been damaged and????????. Can anyone give me any hope that after this length of time the nerve may still only be bruised or if you have ongoing nerve pain have you been able to control it?

I can try to give you a little bit of hope. I just had NA for the fourth time. I had NO side effects or problems with my three prior procedures. This time I had the pins and needles/electric shock pain, pain when my needled areas are touched and numbness. My NA surgeon said these side effects were unusual with NA BUT previous patients who had them took 8-12 weeks to resolve, one patient took longer. My pain and tingling has finally resolved 90% after 3 weeks, the numbness has not yet-- maybe 10% better. So--what I can tell you--and I know this is not very comforting is to just be patient and hope that it resolves. Are you doing OT hand therapy? I find this is very, very helpful to me in reducing pain and helping with mobility-- massage, ultrasound, light therapy, stretching and other manipulation.

When I had cervical spine surgery and resulting numbness in several of my fingers I was told that it could take up to one year to resolve.

Worrying about it--I know this from personal experience makes it worse. I also know that it puts you off balance and it's hard not to think about it--I'm still struggling with that because you're reminded of it every time you use your hands. OTOH, all you really can do is try to have patience and not worry.

I guess this is just the universe's way of trying to teach me patience at my ripe old age!

Best to yo and hope this helps a little bit,
Diane

10/06/2013 06:18
lorraine 
10/06/2013 06:18
lorraine 
Re: Dupuytrens surgery and nerve pain

thanks for that, I am doing OT seeing her weekly, obviously doing exercises and massage. I now have a little handmassage machine which seems to be more effective than my two finger massage. Wearing silicon on fingers and palm up to 23 hours a day. Scars are still very tight, raised and hard OT is not happy I am on Pregabalin so it puts me in the middle a bit. For me the frustrating thing is doing all I can to achieve a good outcome but seeing little reward thus far. Ongoing pain tends to wear down your abiity to cope and I am trying to remain positive. Hoping this will be temporary.

10/06/2013 21:42
moondanc 
10/06/2013 21:42
moondanc 
Re: Dupuytrens surgery and nerve pain

lorraine:
Wearing silicon on fingers and palm up to 23 hours a day.


Hi Lorraine,
Can you give me details of wearing silicon up to 23 hours a day? I have Otoform silicon in my splints but would love further information.

Thanks,
Diane

10/07/2013 01:54
lorraine 
10/07/2013 01:54
lorraine 
Re: Dupuytrens surgery and nerve pain

Hi Diane

During the day I have silicon tube on my fingers and a piece of clear silicone which is very thin and sticky on one side on my palm supported by pressure tube. At night I have moulded silicon apparatus for my palm held in place by the splint. I wear only pressure socks on my fingers to help reduced the swelling. OT told me the silicon can be worn up to 23hrs per day and that is what I try to manage. The silicon piece I wear during the day I have only had for 3 weeks but the scars have softened quite a bit. Also the massage apparatus which I have only had since last Wednesday is making quite an improvement as well.

Regards
Lorraine

10/07/2013 03:21
pia2some 
10/07/2013 03:21
pia2some 
Re: Dupuytrens surgery and nerve pain

I'm curious ... what is the purpose of using silicone? Does it have properties that promote healing? I can tell already that the incision in my palm is going to be a problem. My body creates awful scarring. Keloids. I've had problems internally and externally from almost every surgery I've had. Now that the palm incision has been infected and one area of the Z incision is not staying flat as it heals, I am certain scarring is going to be an issue.

I just started working with the hand therapist last week, so we've not done much except bend my fingers. lol. Any more info on the silicone (or links to info) would be great.

~ dawn

10/07/2013 04:23
lorraine 
10/07/2013 04:23
lorraine 
Re: Dupuytrens surgery and nerve pain

Dawn, I have been with the OT since day 4, however, not too much they can do while you have stitches and scabs. once they were gone the silicone was moulded onto my hand for the night splint, maybe week 3or4. The silicon softens the scars which apparently helps with healing. OT just told me silicon is very good for scars and it certainly has softened them. She didn't go into the properties of silicon and how it works. The tubes do make my fingers feels confortable especially when working.

Lorraine

10/07/2013 04:34
pia2some 
10/07/2013 04:34
pia2some 
Re: Dupuytrens surgery and nerve pain

lorraine:
Dawn, I have been with the OT since day 4, however, not too much they can do while you have stitches and scabs. once they were gone the silicone was moulded onto my hand for the night splint, maybe week 3or4. The silicon softens the scars which apparently helps with healing. OT just told me silicon is very good for scars and it certainly has softened them. She didn't go into the properties of silicon and how it works. The tubes do make my fingers feels confortable especially when working.

Lorraine

Thank you. I'll have to ask about it when I go this Tuesday. Yes, I started with the OT on day 6 after my surgery. So I've only been twice. I already had custom made night splints. She reheated and remolded it to work with my post-surgery hand. But I'll definitely ask if she works with the silicone. Interesting.

~ dawn

10/10/2013 01:36
moondanc 
10/10/2013 01:36
moondanc 
Re: Dupuytrens surgery and nerve pain

pia2some:
lorraine:
Dawn, I have been with the OT since day 4, however, not too much they can do while you have stitches and scabs. once they were gone the silicone was moulded onto my hand for the night splint, maybe week 3or4. The silicon softens the scars which apparently helps with healing. OT just told me silicon is very good for scars and it certainly has softened them. She didn't go into the properties of silicon and how it works. The tubes do make my fingers feels confortable especially when working.

Lorraine

Thank you. I'll have to ask about it when I go this Tuesday. Yes, I started with the OT on day 6 after my surgery. So I've only been twice. I already had custom made night splints. She reheated and remolded it to work with my post-surgery hand. But I'll definitely ask if she works with the silicone. Interesting.

~ dawn

Here's what my OT uses, it is called Otoform. It is put directly on your split and then your fingers go into it before it hardens so it conforms directly to your fingers. Dr. Eaton recommended this for me in 2011 and I couldn't find anyone who knew anything about it. Luckily I moved and the first OT I called uses it:

'http://www.alimed.com/otoform-k-c-elastomer.html

The material is expensive and that may be why all therapists don't use it. One of these days if I can catch a break from trying to get ready for my husband's upcoming ankle surgery, I'll try to take a picture of my splints and upload them00 or he will :-).

Silicone is used either OTC for scars and in my case, for a scar on my abdomen from surgery which formed a keloid, my dermatologist injected silicone directly into it and the scar/keloid was reduced by 85%

I would like a little more information from Lorraine as to the "tubes" she's speaking of.

10/10/2013 01:58
pia2some 
10/10/2013 01:58
pia2some 
Re: Dupuytrens surgery and nerve pain

Thank you, Diane. You know I saw the OT yesterday and completely forgot to ask about the silicone. She is already worried about scarring with me. She said as soon as the scars turn white, she can start using ultrasound on them to help soften them up.

Did you see the silicone patches someone on the FB forum posted? It was a link to Amazon. I wonder how affective those are.

I'm going to print out the page from your link and take it to the OT next week and see if she is familiar with that product. I'd sure like to see how it looks on your splints. I totally understand that you are running ragged right now. When is your husband's surgery?


~ dawn

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