I have read that 66% of patients with Dupuytrens don't get contractures. I have been recently diagnose myself with nodules and cords in both of my hands. I have no contracture and was going to take a wait and see approach since only about 1/3 of dupuytrens patients get contracture. Does this make any sense ? I must admit I need to learn a lot more about this disease, and this is a good place to start


I hope that you do not get contractures.....from my experience the first symptoms that I had for DD was 20 years ago after playing cricket......I was........Late 20 s at the time and the DD has nt really bothered me or progressed significantly.....will I get them in the future??....time will tell......these days I look after my hands......wear gloves for most activities.....and ensure they do nt get the pounding that they did in my youth.......I also keep on top of my general health.......good balanced diet.....natural foods.....low sugar....plenty of exercise etc.......but DD does nt affect the enjoyment of my life......

Having said that I have fairly advanced LD in both feet....which does....

I would say that in that your case being diagnosed so young would generally indicate a more aggressive form......however, some patients have reported early onset only for the condition to go dormant for decades.... I would read the forum and learn from the many experiences that people have had....this will tool you up for the best path to take in years to come......keep a diary of your hands and also keep an eye on your feet.......this will help you to decide if the condition is progressing and that you may opt for treatment....

Wishing you the best


gazza

newbie:

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newman:

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Hi being only 23yrs of age ,I would not like my daughter to undergo RT ,even though there is no comparison to the dose rate used in the treatment of cancer. I've had RT both for Dups and Ledderhose. Having had surgery to your right thumb it may be difficult to carry out PNF .( called NA in US.)
Dr Meinel in Germany has had good results with patients only wearing a night splint to reduce the contraction . Dupuytren's in the thumb is not the norm.I have had many surgeries including both thumbs. Should your only option be surgery for the thumb I would consider a skin graft .(I've had four grafts.) The disease has not progressed in my fingers or thumbs after the graft. Should you wish contact me through the private message supplying your email and I can send you some photos of splints made for me by Dr Meinel. (Index fingers) Regards.

I have read that 66% of patients with Dupuytrens don't get contractures. I have been recently diagnose myself with nodules and cords in both of my hands. I have no contracture and was going to take a wait and see approach since only about 1/3 of dupuytrens patients get contracture. Does this make any sense ? I must admit I need to learn a lot more about this disease, and this is a good place to start

Garza, I am glad your dupuytren's hasn't progressed or bother you over the last 20 years. Sorry to hear your LD does affect your life. Did you consider getting RT for your LD?



I had RT in Germany 3 years ago.......initial success for a year then more progression.......works for many people but in my case not as affective....