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just diagnosed at 21
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03/03/2010 09:32
shandste 
03/03/2010 09:32
shandste 
just diagnosed at 21

hi, my sons 21 and has just been diagnosed with dupuytrens. he has his first appointment at derby uk hand clinic on march 16th. he has two nodules with a dent in between and some contraction in is little finger on his right hand. this has appeared over the last six months, obviously untill we,ve been clinic we dont know whats goin to happen. but any advice? what should we ask? im concerned about his long term career at the moment, hes a manual worker, hes all ready stopped goin to the gym because he cant push weights anymore because of the nodules. thanks shanste.

03/03/2010 22:09
deeproot 
03/03/2010 22:09
deeproot 
Re: just diagnosed at 21

Sorry about the news, mine started when i was 25 (now 34) and I am also in manual labor (electrician). I do not have contracture but have nodules. The first nodule was mistaken for a cyst, during surgery they realized it was Dupuytrens. This website is great for information on differing treamtments. I would suggest taking some time going through some of the literature available on side of screen under Home. Hopefully the drs. will be knowledgeable at the clinic. I would not hesitate to ask some of the people on this forum about the treatment they decide. Many on here have a lot of knowledge about this disease. Take care!

03/04/2010 01:25
jimh 
03/04/2010 01:25
jimh 
Re: just diagnosed at 21

21 is early, but I had signs in my 30s, I'm 58 today and haven't been unduly hampered by this disease. I've had 2 surgeries, but there are better options now, and probably even better ones coming. So my main piece of advice is - don't be rushed into surgery, especially at a young age, because the accumulation of scar tissue tends to close off other, better treatments later on. Start researching NA (needle aponeurotomy ) which I've also had and recommend. Xiaflex injections are just getting started and may be another good alternative in the near future.

Edited 03/04/10 03:31

03/04/2010 18:23
shandste 
03/04/2010 18:23
shandste 
Re: just diagnosed at 21

thankyou for your replys, i think i have alot of reading to do on my sons behalf... it just resuring to hear from people in the same position, nobody i,d spoke to seemed to have heard of dupuytrens. jakes goin to go and buy some cycling gloves at the weekend and hopefully he,ll beable to get back into his gym routine. will post the out come of clinic visit.shandste

03/16/2010 00:13
subtlenuance 
03/16/2010 00:13
subtlenuance 
Re: just diagnosed at 21

I was first diagnosed about the same age,early twenties with just a few nodules.My Dupuytren's lay dormant for 15 years or so but has recently got a lot worse,now 40 years old,going to have my first consultation in a couple of weeks at the hospital but I have had to wait 4 months to get this far after seeing my local GP,the NHS is a slow moving beast!!

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