I had my doctor's appt today. We had a nice discussion and I was able to talk about a lot of the things I've learned here.

The one weird thing he said is that he does not think my fingers will go into a contracture or need surgery later on because I did not develop DC until I was in my 40's. He said that usually happens when it develops in someone much younger like in their 20's or at least that has been his experience.

Does this make sense to you?

I agree, you never know how it will progress. Mine started in my early 40's, surgery at 48 - couldn't wait any longer - and then it came back in 2 years after surgery. I did the clinical trial injections and snap the cords - painful but worth it - Auxilium just started to try for FDA approval which may happen in 2009 - at least they will numb the pain before the big snap of the cords :)

Thank you for your responses. It didn't make much sense what he said. I realize that I may not develop into a contracture, but I want to be prepared for anything that may happen. He did say that ont least one of my fingers have started developing a cord.

I talked to him a little bit about RT. He seemed a little uncomfortable about that and said that he has only had one patient who had had RT. It sounded like that patient pretty much went for the RT on his own and the Dr isn't too much up on RT especially since he said the patient went to "some place" in NYC and I had to mention the name of the hospital - St Vincents, the place listed on this site which he agreed it was the same place.

I also asked him about Xiaflex. He hadn't heard of it by that name, but said maybe it is known by another name. Do you know if Xiaflex goes by another name?