By way of an up date, to those that are interested: I was diagosed with Dup's in December 2009. I am at an early stage, on my left hand, middle finger. My GP sent me to a surgeon, who advised that surgery was the recommended treatment, but one had to wait until there was at least a 30 degree reduction in movement before surgery would be performed. I am a long way from that, but still wanted to do something. To make a long story short, I contacted the OMA about Radiation Therapy. After reviewing their response and discussing with another GP, it would seem that RT is not recommended (maybe accepted, is a better term) in Ontario and accordingly not covered by OHIP. Also given that you are competing with cancer patients for access to the service, the prospects of getting RT on Dup's in Ontario is remote, in my humble opinion. I have been advised that the surgery is usually very successful, and it concerns me when I hear of bad experiences, as I am very likely heading down that road - just a matter of when.

Question: has anyone managed to get RT for Dup's in Ontario or other provinces?

Murray

I fully agree with Mike. If it is possible for you, even if you have to pay, do consider NA over surgery. Recovery is a few days and full recovery is two weeks. With Stage 1 contracture, you probably won't need any PT.

Thanks everyone for you comments. It would sound like NA is a good alternative. Frankly the open hand surgery is something I would prefer to avoid. I will see if I can get into see Dr. Binhammers. How long is the waiting list?

Murray