Was wondering how many of you got any kind of reactivation in your hands after doing RT? I had RT about a month ago and everything is going pretty good except i keep getting a shooting pain in the bottom part of the palm which is my right hand and my left hand i have this same type of pain in my thumb. Hoping it goes away. Very nervous because i don't want this stuff creeping back in my hands. I hate this disease. Anyway i go for my follow up with doctor on the 16th. I will keep everyone posted. Even thought i got his shooting pain going on if i needed to do something for my hands it would be RT in a flash -I'M THERE. Take care everybody

Unrelated to the RT that I had, I also had shooting pain in my right palm near my thumb but closer to my wrist. After going to a orthopedist hand specialist, I was surprised to learn that the pain in my palm was due to arthritis in my thumb joint. I have no pain in my thumb joint and was totally unaware of the arthritis! Just a thought but you may have something else going on other than reactivation.

To date I have mixed results.
Left hand small finger was/is the most effected. A single large nodule at the base of the pinky with a heavy cord from lower mid-palm up to the second knuckle of the pinky. I was experiencing a fair bit of pain and cramping which is what led me first to this site and then to RT treatment. Both pain and cramps quickly disappeared after treatment but returned after 4 months and the finger has added another 15 degrees of contraction to the previous 30.
Right hand has 3 cords and 3 nodules. The two cords and nodes in the center of the palm seem to be inactive but I have had a nodule appear on the 2nd knuckle of my right pinky since October. This was outside the treatment area. There is also a thumb cord which was at the perimeter of the treatment area which I am watching closely.
My MD at MCV suggests re-treating the right hand if it progresses any further but doesn't advise additional treatments on the left hand.
Tom

It's hard not to want to have the original functions of our hands back. My grip is much stronger, my hand is not as tight and the crawly feeling has gone. It continued to improve for about 3 months after RT. It is not perfect though, but I can't complain at all. The dang progression was stopped and that is what RT is all about.

I agree that having the whole palm including the Meta joint seems indicated. If it is active, more nodules may show up anytime, like tomorrow. Because of my personal schedule, I waited 3 months after NA to get RT. Looking back, that was fortunate because nodules just kept forming. By the time I went in, I must have had 10-12 nodules scattered throughout all quadrants of my palm. Dr. T saw that and mapped the whole palm to be radiated. It was a good call and I am glad he diagnosed it that way. While Dr. T is for as little radiation as possible, he is aware of how this disease works. If my whole palm had not been radiated, I think there may well be little areas with active Dupuys wherever radiation was not done.

This just is my take now almost a year after RT. It's hard to know because every hand is different. There is no way to know exactly what to do, but this Forum allows us to compare with others and try to figure out the best treatment for our individual condition. Thank you, Wolfgang, and all who share so that we can benefit from everybody's experiences and make a truly educated decision about treatment.