Hi Wolfgand
Thats quite interesting article as Id got the impression from UK surgeon I saw they didn't like it in the UK at all, as the surgeon told me that NA is "dangerous and experimental!". Ha Ha!

I think in the UK that the knowledge of alternertives to surgery varies from region to region. I understand Poole hospital do Radiation and in Derby they do NA and I have been told there may be a doctor in London who does NA too, so while there is knowledege perhaps it depends maybe where you live whether you will be told about different treatments to make an informed decision....which is why this site is so good.

Be G8 if NA became more widely known about so that people can make informed choices early on as the NHS link you posted sugests and more UK doctors were aware of it.

The first I heard about NA was when I discovered this website 24 hours before I was due to have surgery last summer and after an hour thinking about it (in turmoil)I grabbed the phone and cancelled that surgery at my local hospital, and I felt real bad at the time about cancelling at such short notice. But at same time I feel real good later on that I made a better decision for me. I did for one hour after finding out about NA seriously consider going ahead with the surgery that day so that the hospital didnt think I was impolite or rude in cancelling it

At the same time I figured that as Id not been told about any other method which might work I felt it reasonable to investigae NA further. and Im very glad I did as my NA worked so well even though it was quite a severe case and a tricky position on the little finger

I know that for me I made the right choice but I shudder to think that I could have had needless surgery with general anaesthetic and skin grafts if Id not been curious to look on the internet and found this site the day before I was due to have surgery last summer. Phew! That was a near miss!

For me cancelling that surgery in the UK and having NA in Paris instead was the best decision I ever made. If it came back I loved Paris and be happy to go again as its such a small procedure that it doesnt spoil a stay in Paris. I still cant believe how close I came to getting such an invasive procedure as surgery done in the UK when it was made perfect in 15 mins in Paris without any surgery

Jonni, the UK based doctors listed on http://www.dupuytren-online.info/NA_list_UK.html offer NA and are experienced with Dupuytren's disease. Regarding pros and cons of NA, surgery, or radiotherapy you might also have a look at the according pages of our web site, e.g. for potential side effets on http://www.dupuytren-online.info/NA_side_effects.html, http://www.dupuytren-online.info/dupuytr...ideeffects.html and http://www.dupuytren-online.info/radioth...de_effects.html .

Wolfgang

Hi Jonni, I have Dupuytren's in both hands. My palms ache and many things that cross the cords, such as a steering wheel or a bucket, hurt. My father and sister also have it and don't have any pain. I had not read of anyone else complaining of this until reading your post. Thanks.

Quote:

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There are thousands of surgeries done every year around the world for Dupuytren's. There are very, very few who have complained about the results. You can bet that they would be on this forum complaining in droves if the fear presented here was accurate on a wide scale.

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Edited 02/08/09 21:56

Hi all, hope all is well.

I had an appointment with a surgeon last week- £100 for about a 5 minute meeting, who unfortunately confirmed that they couldn't do any procedures yet as the cords weren't prominent enough. This means that the risk is too great due to being unsure of any nerves inbetween the skin and the cords. Unfortunately that means that i'm going to have to just wait until it gets worse which is frustrating, however permanent damage would be a millions times worse. The positive thing is that the pains in my forearm and wrist have almost gone and i'm still able to play the piano almost freely and i can now operate the computer mouse without any pain. I still have pain with pressure on the cords though, so cycling and playing squash is still painful.

A slightly frustrating thought, is that i wished the Radiotherapy procedure had been tested further and that GPs would know about it and be able to suggest it as a possible preventative, therefore avoiding the waiting until it gets worse, which no doubt it will. I do understand though, that testing would cost tax payers money, however i imagine most people on this website pay tax and would be more than happy for some of it to be spent on this disabling disease, as it not only affects the person who has the DC but others around them as well, may it be with loved ones or fellow workers.

Anyway good luck with all your dealings with DC, i'm trying to get on with things as normal, just wish mine was pain free.

Jonni