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Forum for Dupuytren's and Ledderhose 
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  • Xiaflex information
    • Xiaflex information
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    04/30/2010 22:59
    SusanfromIN

    not registered
    04/30/2010 22:59
    SusanfromIN

    not registered

    		 Re: Xiaflex information

    [email][/email]Indiana Hand to Shoulder Center
    8501 Harcourt Road
    Indianapolis, IN 46260
    (317) 875-9105

    These folks are great and were a part of the original trials for Xiaflex. Highly recommend these folks.

    I missed the trials by couple of months so did not participate in the trial. I did have surgery 2-3 years back on one finger to correct the contracture b/c I did not have time to wait on the approval of Xiaflex at the time. I had good success with straightening of the finger. However, this past year I am developing more nodules in the palms of my hands. Not unexpected. I also have Ledderhose and frozen shoulder. I am a female, age 44 currently. This started when I was around 30. Not bad though that I had the disease for around 12 years or so before I had to resort to surgery.

    Had Xiaflex been approved at the time, I would have chosen it and will down the road[email][email][/email][/email] if I have the need.
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