| Choosing no surgery and no raditation |
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09/15/2013 17:36
mountain_runner 
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09/15/2013 17:36
mountain_runner
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Choosing no surgery and no raditation
I've had Dupuytren's for about a year and a half. I have 2 nodules with 2 smaller ones above those and I can see cords. I only have Dupuytren's on one hand. I don't want to have radiation and certainly not surgery (that jagged scar freaks me out, and I read something about tourniquets). Can we have a roll call where forum members write if they have had surgery, radiation, or nothing done? Please share.
Edited 09/15/13 20:38
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09/15/2013 18:14
sherrin
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09/15/2013 18:14
sherrin
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Re: Choosing no surgery and no raditation
So far I have had NA on one of my cords in my right hand. I have several more cords in that hand but they are not to the point of doing anything about them, and radiation in not available in my area. I also have a nodule and cord in my left hand, but they are not a problem and don't seem to be growing much at this time.
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09/15/2013 19:19
callie 
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09/15/2013 19:19
callie
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Re: Choosing no surgery and no raditation
I have had surgery (90 degrees contracture) and RT. The surgery turned out great and I would do it again (11 years post surgery and zero contracture). The RT was about seven months ago and the jury is still out on that.
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09/15/2013 19:55
TrevB
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09/15/2013 19:55
TrevB
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Re: Choosing no surgery and no raditation
mountain_runner:
I've had Dupuytren's for about a year and a half. I have 2 nodules with 2 smaller ones above those and I can see cords. I only have Dupuytren's on one hand. I don't want to have radiation and certainly not surgery (that jagged scar freaks me out, and I read something about tourniquets). Can we have a roll call where forum members write if they have had surgery, radiation, or nothing done? Please share.
I had radiation about 5 years ago and so far so good. Didn't want it but then again I didn't want Dups either & wanted surgery even less. I also wasn't prepared to do nothing while I still had some control.
Cambidgeshire, UK.
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09/15/2013 20:22
tomceunen 
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09/15/2013 20:22
tomceunen
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Re: Choosing no surgery and no raditation
I posted a separate thread but I do not see it. So I share my story here again.
I corrected Dupuytren in my hand myself today. I'm likely ok for the next 20y (if I hang in so long :) )
Anyway I fell on the stairs today and to keep my balance I used my hand to brake the fall. Doing so I over flexed my fingers where I have the contracture. I heard 2 cracks and has some acute intense pain at the same time. But my fingers is back straight (from 5% deformation) and I also see the two cracks in my handpalm on the contracture.
So despite all therapies etc I hope this case might lead to a common easy correction. Maybe it's already known?
Cheers
Tom
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09/16/2013 00:00
moondanc
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09/16/2013 00:00
moondanc
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Re: Choosing no surgery and no raditation
tomceunen:
Anyway I fell on the stairs today and to keep my balance I used my hand to brake the fall. Doing so I over flexed my fingers where I have the contracture. I heard 2 cracks and has some acute intense pain at the same time. But my fingers is back straight (from 5% deformation) and I also see the two cracks in my handpalm on the contracture.
So despite all therapies etc I hope this case might lead to a common easy correction. Maybe it's already known?
Cheers
Tom
I sure hope you recover OK. I seem to remember several years ago on this forum that someone had something similar happen while lifting weights-- a spontaneous/pressure assisted? breaking of the cord.
Diane
Edited 09/16/13 03:01
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09/16/2013 19:33
lori
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09/16/2013 19:33
lori
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Re: Choosing no surgery and no raditation
I had a cortisone shot which slowed down the progression for about 2 months. I did this because my DD was aggressive and I needed time to see a doctor and decide how to treat. I then had RT and that was 4 years ago with no reoccurance.
Lori
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09/17/2013 15:58
mountain_runner
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09/17/2013 15:58
mountain_runner
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Re: Choosing no surgery and no raditation
What are the initials? RT is radiation therapy, but what are the other common initials you guys are using? NA? OT? Etc?
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09/17/2013 17:30
spanishbuddha  Administrator
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09/17/2013 17:30
spanishbuddha Administrator
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Re: Choosing no surgery and no raditation
NA needle Aponeurotomy, same thing as PNF percutaneous needle fasciotomy
OT likely orthopaedic therapist, but I'm guessing
PT likely physical therapy
LD Ledderhose disease
DD Dupuytren's disease
Others?
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09/17/2013 20:54
pia2some
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09/17/2013 20:54
pia2some
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Re: Choosing no surgery and no raditation
spanishbuddha:
NA needle Aponeurotomy, same thing as PNF percutaneous needle fasciotomy
OT likely orthopaedic therapist, but I'm guessing
PT likely physical therapy
LD Ledderhose disease
DD Dupuytren's disease
Others?
OT is Occupational Therapists in the USA. "An occupational therapist is a professional in the health discipline who practices occupational therapy. The goal of the occupational therapist is to help their patients to function, perform daily activities and to promote their general well-being. Occupational therapy, often abbreviated as OT, can deal with a patient's emotional, physical, psychological, oral, motor, or perceptual skills. The occupational therapist often deals with any of an unlimited number of ages, occupations, illnesses, addictions and disabilities."
You will often find them working in PT (physical therapy) clinics. My hand splints were made by an OT.
~ dawn
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