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DOCTOR EDUCATION
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01/15/2013 17:12
mmeduchatelet 
01/15/2013 17:12
mmeduchatelet 
Re: DOCTOR EDUCATION

callie:
Do you go to a plumber to ask advice about electrical circuits? You were asking the wrong group of people about Dupuytren's. Surgeons do surgery, they are not experts on Dupuytren's as a disease.
Callie, as Fate would have it, my handyman is both a licensed plumber AND a licensed electrician!! Since the little sore bumps were on my hand, I naturally started with a doctor in the hand business. I suppose we all are on a learning quest in this Dupuytren nightmare. Besides, it breaks my heart to think of other Americans trusting that their doctor will advise them of the right course of action, and then to have to endure surgery that could have been avoided. That could have been me!

Thank you, tusk and wach, for the informative websites given here and on the thread by MerryMom(see "Information on packet for physicians", http://www.dupuytren-online.info/Forum_E...ans-0_1318.html). She too was asking for info to pass along to doctors. I'll also get in touch with her to check out her progress.

And thanks, flojo, on that same thread, for the added reasons that I think we all should be concerned about DD education for the public and the certainly medical/insurance industries.

And thank you, fellow DD'ers.........I'm truly beginning to feel less alone in this journey. =^}

01/15/2013 20:01
mmeduchatelet 
01/15/2013 20:01
mmeduchatelet 
Re: DOCTOR EDUCATION

callie:
Linda, this could be the best information from what could be considered a third party direction.

http://www.aetna.com/cpb/medical/data/800_899/0800.html

Callie, thank you so much for the link - this is perfect!! And thanks, too, lori, I'll keep my options open for Charlotte, especially since I used to live there! Best regards, Linda Sarka

02/12/2013 20:41
JeffD 
02/12/2013 20:41
JeffD 
Re: DOCTOR EDUCATION

"I just couldn't believe this - wait until something worsens before fixing it!? So I dug around until I found the Dupuytren Society and the wealth of information offered. From that information I learned about early radiation treatment, and was able to track down a radiologist at Emory University-Atlanta, who is familiar with the German protocol. I just need to be referred by a doctor, so I'm returning to the orthopedic surgeon who gave me the literature, to ask for a referral."

Linda - could I ask who you saw at Emory University for the radiation. My insurance is requiring that I go to Emory as opposed to one of the out-of-state clinics.

Thanks in advance

02/22/2013 20:05
RetiredTeacher 
02/22/2013 20:05
RetiredTeacher 
Re: DOCTOR EDUCATION

lori:
Callie,

That is great and very informative. I wish I could find that under my BCBS benefits.

Lori


Lori, I also have BCBS and they paid for all of my RT. I live in Texas, have BCBS of New Mexico and had my RT in Portland!
Vicki

02/22/2013 23:43
flojo 
02/22/2013 23:43
flojo 
Re: DOCTOR EDUCATION

Medicare paid for RT done on my left hand at Loma Linda UMC. Anthem BC supplemental covered the rest.

The reasons I went to LLUMC for RT on my left hand were:
(1) the radiologist was interested in treating DD, researched the protocols, and I had complete confidence in him. I was the first patient he considered for RT on my DD. A second patient who I know was a week ahead of me for the actual RT. I am very happy with having RT done capably by Dr. Katerelos at LLUMC.

(2) LLUMC's radiation billing department was very aggressive in researching how to bill Medicare so it would be covered and they had all their ducks in a row ahead of time and there was no problem. Although not triggered by any problem with my RT, they have now put one person full time to do appeals in case of denial of coverage by Medicare and insurance companies. I think this is with any radiation, not just for RT on DD.
In contrast, Scripps San Diego/La Jolla did not even bother to appeal but just billed me for the doctor/radiologist's charges to plan, map, and managing the RT that Medicare denied. Yeah, I know, couldn't even have gotten the radiation without a doctor ordering and managing it, but Medicare did deny it then. I did alert LLUMC about that, and I don't know how, but they were aggressive in researching and knowing how to bill and diligent in making sure that didn't happen.
I am very happy with the competency of their billing department

03/20/2013 22:02
stephenp 
03/20/2013 22:02
stephenp 
Re: DOCTOR EDUCATION

I gathered the RT publications from medical journals, most of which are referred to on this site and presented them to my GP to get a referral to an radiology clinic where I knew there was a radiologist who was willing to use RT to treat benign conditions. If DD is a clear diagnosis and active, my suggestion is to do as much research as possible and be firm, polite and assertive and do not assume that your GP will have any knowledge of DD treatments other than surgery. I was prepared to have to argue my case but the GP was very receptive, maybe I was lucky.

04/02/2013 13:43
steveo 
04/02/2013 13:43
steveo 
Re: DOCTOR EDUCATION

Re: Surgeons - If the only tool you have is a hemmer, all your problems look like nails.

BCBS covered my RT in Austin, TX without a referal, just an admission of seeing a hand surgeon for Dupuytren diagnosis.

04/03/2013 18:50
Randy_H 
04/03/2013 18:50
Randy_H 

Re: DOCTOR EDUCATION

And with our fingers and surgeons, the nail has to be bent about 35-45 degrees before they want to take a whack at it. I've never had this fully explained as to why that is. My guess is that up to that point the hand is still highly useful and they are well aware that a hammer is a blunt instrument.

You've got to love this very bad advice from WebMd:

"Surgery may be recommended for severe cases of Dupuytren's disease in which the tissue beneath the skin in the palm thickens to the point that your hand movement is limited. Consider the following when making your treatment decision:

Before considering surgery, you might try nonsurgical treatment including physical or occupational therapy and home stretching exercises."


Hello........WebMd. NA? Collegenase? RT? Anyone? Anyone?

Apparently not.

04/03/2013 19:36
zinkadoodle 
04/03/2013 19:36
zinkadoodle 
Re: DOCTOR EDUCATION

Cripes!!! Not to mention that PT and OT are proven to not work, as this is not a simple soft tissue injury, but rather a collagen-related disease, and the disease is going to progress how the disease progresses, regardless of those therapy modalities. What freakin' nonsense. This makes me angry. ~ Diane

04/03/2013 20:22
callie 
04/03/2013 20:22
callie 
Re: DOCTOR EDUCATION

This is from WebMD. All the procedures are mentioned on this site and many other WebMD sites.

http://www.webmd.com/a-to-z-guides/dupuy...eatment-options

"Enzyme Injections

If your finger is already bent, your doctor may recommend Xiaflex, a mixture of enzymes that is injected into the affected area to break up the tough tissue. The drug loosens the tissue. If the contracture is still present on the following day, your doctor will stretch your finger and try to straighten it. The injections are given in the doctor’s office and may be used as an alternative to surgery. Your doctor will also recommend certain stretching exercises after the injections.

Most people need one or two injections in the affected joint, but some people may need up to three injections to straighten or nearly straighten the finger. The most common side effects are swelling in the affected area or bleeding, bruising, and pain at the injection site. Rarely, more serious side effects, such as damage to a tendon, nerve injury, or allergic reaction may occur."

Needle Aponeurotomy

An alternative to open surgery is an office procedure called needle aponeurotomy. The surgeon uses a hypodermic needle to divide and cut the diseased tissue in the palm and fingers.

This procedure is less invasive and leads to a quicker recovery than open surgery. Many do not need rehabilitation with physical therapy following the procedure. A presurgical evaluation can determine whether you are a candidate for this procedure.

Surgery for Dupuytren's Contracture

What if it becomes difficult for you to grasp objects or perform other daily activities? Your health care provider may recommend surgery if your disease progresses. The goal of surgery is to restore motion in your fingers.

Open Surgery

The surgeon makes an incision and either divides (fasciotomy) or removes (fasciectomy) part or all of the thickened bands of tissue.

A variety of techniques are used to close the wound. Sometimes a skin graft is needed for the incision to completely heal. To do this, the surgeon takes healthy skin from another area of the body and attaches it to the area in the hand that needs to be closed.

Edited 04/03/13 23:22

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collagen-related   eatment-options   disease   information   Injections   referral   corticosteroid   EDUCATION   a-to-z-guides   Dupuytren   Aponeurotomy   radiologist   treatment   contracture   University-Atlanta   radiation   rehabilitation   surgery   anti-inflammatory   dupuytren-online