Hi mluca

Sorry to hear you have joined our club. But for most it's a slow progressing disease that often never becomes a problem with contracture, at all, or until later in life.

I hope you have read about the main treatments available, RT, NA, Xiaflex and differing surgical options.

Most DD specialist are hand surgeons, and they like to do surgery, but our user experience is that for the majority surgery should be used as a last resort. There are a few multi-skills or knowledgeable doctors around who know about RT and advise on the suitability of NA or Xiafelx ahead of surgery.

There are some related risk factors, alcohol, diabetes, genetics, glucosamine, some epilepsy drugs, etc, there's a list here http://dupuytrens-society.org.uk/disease_info/risk.html which is on our sister UK site. Of course some of these are unavoidable, such as genetics, and others may not personally affect you anyway.

There is an open Dupuytrens Contracture Facebook Group as well, and they have additionally created another group advocating RT (DART). These are friendly helpful groups with lists of Doctors and lots of US users who may have personal experience of Doctors in Washington. Just be aware they are unmoderated so do your own research and draw your own conclusions.

The Dupuytrens Foundation is based in the US http://dupuytrens.org

Best wishes

SB