Hello

Since my last post I have received massage therapy for my early onset DD, but I continue to come up against the bureaucratic wall that is the NHS with regards to receiving a consultation for radiotherapy. The problem I'm having is with my local medical practice, who are struggling to work out how the intricacies of referring me to another area.

In the meantime I have been sending photos of my rather pronounced nodules to all and sundry to get their opinion. In this vein I was wondering if anyone had up-to-date contact details for Prof. Seegenschmiedt in Hamburg, to gain his analysis? I sent my message to the following, who's email addresses I extracted from the clinics page on this website:

mhs@szhh.info (mhs@szhh.info);
prof.seegenschmiedt@googlemail.com (prof.seegenschmiedt@googlemail.com);
strahlentherapiepraxis@googlemail.com (strahlentherapiepraxis@googlemail.com);
strahlentherapie@mvz-westend.de (strahlentherapie@mvz-westend.de);
p.m.n.werker@umcg.nl (p.m.n.werker@umcg.nl);
mborg@adradcetre.com.au

Of all these the only response I received was from the clinic in Berlin who offer Electron Beam treatment. They suggested treatment, but weren't able to answer my questions about the hardness of my nodule and cords - one of the big questions I have is whether they've developed to the stage where RT won't be as useful.

To be honest I'm not sure whether I want to go down this route - I'm still pursuing the massage therapy treatment (it was rather unsuccessful first time around but I'm persevering), and to receive a consultation with an oncologist to get my hands palpated and keep my options open. In an ideal world I want to keep costs down, but as my dad says you can't put a price on health...

Thanks in advance

Jim

Thanks buddha. Encouraging to hear he does reply on the email address provided.

Looking at the previous email I sent, I attached a word document containing the photos. This time I think I'll embed it too, and as you say, provide as much details as possible.

Thanks