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New here RT on Monday
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11/02/2013 00:21
stephenp 
11/02/2013 00:21
stephenp 
Re: New here RT on Monday

RT has worked for me on both hands with relief of symptoms and some regression. Protect your hands, watch your hands closely, check out your family history and wait and see. The disease progresses in fits and starts.

Remember RT is effective where the disease is active, not when in regression. So when you feel an increase in itchy, achy tight symptoms with nodules increasing and cords developing, it may be time for RT. If left for too long after a contraction develops, it will be too late for RT and other options need to be considered.

My criteria for RT were:
Family history, father developed contractions at about my age, 2 brothers have DD

Nodules and a cord for about 10 yrs or so

A real increase in itchiness, tightness and aching in the hand

A patch of numbness on the side of the finger below the cord

A shooting pain up through that finger upon reaching for something

The last two are specific for my hand, I suspect a nodule or cord was pressing on a nerve.

I do note you have already commenced RT

11/02/2013 11:43
Ipster 
11/02/2013 11:43
Ipster 
Re: New here RT on Monday

stephenp:
RT has worked for me on both hands with relief of symptoms and some regression.

Remember RT is effective where the disease is active, not when in regression. So when you feel an increase in itchy, achy tight symptoms with nodules increasing and cords developing, it may be time for RT. If left for too long after a contraction develops, it will be too late for RT and other options need to be considered.


Thank you stephenp for your feedback about RT and how it had helped you. Up until the last month the cord hasn't bothered me but recently I'm getting an itchy tingling feeling and I'm noticing my DD all the time now. When I first discovered the nodule I went a year and a half without even thinking about it or noticing it and I couldn't even feel a cord. It wasn't until the past 3-4 months that I realized I had a cord along with the nodule.

I start RT this coming Monday.

11/02/2013 14:20
callie 
11/02/2013 14:20
callie 
Re: New here RT on Monday

I wish we could get organized feedback from those who have had RT. The jury is still out on my success (or not). The person on this website who had RT just before me reported no success and was disappointed. I would think that those doing RT would want to report to a central agency whether or not the procedure is successful, especially if it is successful. I know there are a couple of limited studies showing results. I realize that it is so difficult to put Dupuytren's "in a box" because of how random is the disease.

11/02/2013 14:30
Valerie304 
11/02/2013 14:30
Valerie304 
Re: New here RT on Monday

callie:
I wish we could get organized feedback from those who have had RT. The jury is still out on my success (or not). The person on this website who had RT just before me reported no success and was disappointed. I would think that those doing RT would want to report to a central agency whether or not the procedure is successful, especially if it is successful. I know there are a couple of limited studies showing results. I realize that it is so difficult to put Dupuytren's "in a box" because of how random is the disease.





I agree! My Hand surgeon new nothing about RT and he is a well respected hand surgeon! It scared me off of RT, on top of having DD I don't need hand cancer too! ;)

11/02/2013 15:32
callie 
11/02/2013 15:32
callie 
Re: New here RT on Monday

"Hand cancer" is the least of my concerns about RT. The big question is, "Does the cost of RT make it a worthwhile procedure?" Often there is no positive effect from RT and a person really doesn't know because the disease can go dormant without RT.

11/02/2013 17:31
spanishbuddha 

Administrator

11/02/2013 17:31
spanishbuddha 

Administrator

Re: New here RT on Monday

callie:
"Hand cancer" is the least of my concerns about RT. The big question is, "Does the cost of RT make it a worthwhile procedure?" Often there is no positive effect from RT and a person really doesn't know because the disease can go dormant without RT.
I have previously quoted studies with RT where a control group was used. I don't have time right now to find them (Saturday eve ) but they exist. 'The book' was one of them and you can start there. I recall success of 85% in the treated group and 35% in the control group, where success is defined as dormant after a number of years. This is just a vague recollection and probably incorrect, but my point is I believe the premise has been demonstrated.

11/02/2013 17:42
spanishbuddha 

Administrator

11/02/2013 17:42
spanishbuddha 

Administrator

Re: New here RT on Monday

Valerie304:
I agree! My Hand surgeon new nothing about RT and he is a well respected hand surgeon! It scared me off of RT, on top of having DD I don't need hand cancer too! ;)
A respected hand surgeon may know nothing about RT just because he is a surgeon and not necessarily familiar with all aspects of the disease. In that case IMHO he is hardly to be respected. Or he knows about RT and does not approve and so kept quite about. Again, hardly to be respected. It is hard and rare to find surgeon who knows about RT and approves of it as a treatment.

11/02/2013 18:58
Lanod 
11/02/2013 18:58
Lanod 
Re: New here RT on Monday

callie:
... I would think that those doing RT would want to report to a central agency whether or not the procedure is successful, especially if it is successful. I know there are a couple of limited studies showing results.....

There are more than just "limited studies" on RT for Dupuytrens. In fact there are many published studies over a number of decades now. The most recent is the 2012 Phase III Clinical Study where some 500 patients with some 700+ hands were followed over many years and results were compared to a control group. The results are very convincing and stand as a clinical study. I say 'clinical study' rather than 'scientific study' in that the study groups were not fully randomised. However, the conclusions are sufficiently convincing that it would probably be deemed unethical to conduct scientific random trials; as evidence to date is already convincing.

Please look at graphs on the link http://www.dupuytren-online.info/radiation_therapy.html. See the figure 1 graph that summarises some of Betz et al. study of 2010.

11/04/2013 16:12
Fredsabato 
11/04/2013 16:12
Fredsabato 
Re: New here RT on Monday

RT worked on my right hand Dupuytren's nodule, Dr. T, la Jolla, CA. It needs to be done by a specialist in Dupuytren's, who knows all the ins and outs.

It will make your hand very dry and may hurt more afterward, but it works, it really does, I'm amazed and so happy, this is a medical gift to people with this horrible problem, but it needs to be done before the hand contracts and the fibroblasts are gone.

Fred

11/04/2013 17:44
Jolene 
11/04/2013 17:44
Jolene 
Re: New here RT on Monday

Hello Ipster,

I spoke with your oncologist office. He said if need a 3rd round of RT that he does do this! I was very glad to hear.

I just completed RT for the foot 8 weeks ago.
I have 2 new nodules on that foot.
His office is much closer for me that New Port Richie

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