Jolene,
I know for a fact Prof. Seegenschmiedt treated a lady, I met her in his waiting room, for a 3rd time. I did ask him the specific question if a 3rd time would be ok should nodules appear again, he said "yes". He would then only treat the nodules, not the entire original area of RT.
Callie is right, we should all report our RT outcome here on this site. Seems it works for some, not for others.

Good Luck!

Christl

Jolene, my Dr prefers to wait until 1 year after RT was finished to retreat unless progression seems very aggressive. Other Drs surely have different parameters. I'm 6 months out & have a very dry, flaky large triangle in both palms from the RT but it doesn't bother me. What is annoying is that since the RT my hands are extremely stiff every morning - but I suppose that could be from the DD or the onset of arthritis.

A database would be a good idea although it would need monitoring and updating. I think RT helped me somewhat but only time will tell to what extent. Initially I had reduction of nodules, but tenderness & stiffness still comes & goes, although the nodules on my RH have not grown, and possibly are getting smaller (so hard to be sure). There is a nodule on my LH in the radiated area that was very sore recently for about a month, & it has grown a little, but now everything seems quiet again. I may have cords under the surface but I can't feel them.

All that said, when I pass the 1 year mark, when things become active again (and you know they will), I'd still spring for a 3rd round of RT.

Edited 11/05/13 21:14

Also had my feet done, will be one year in December. They are somewhat holding up. I can walk, Thank God, but it's nothing like it used to be, but I am not complaining. I am good. At first after RT , for about 6 month after, my feet hurt to the point were I could barely walk anymore. Prof. S warned me that this could be happening, so I did not freak out, just looked at it as the healing process. Gradually they got better and one fine day I could walk again. So all takes time. Shoes are the key.
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Really pleased to see you have had some progress Christl.... I know you were a little worried after RT but being patient and looking after your feet have stood you in good stead......I hope they continue to improve......my feet are still loosening up 18 months after Rt.....they generally feel much better than b 4 Rt.....but there is still slow progression of the disease.....

Gazza

Christl:

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Hello Gary, nice to see you on the board. How are you? Sorry to hear you have some progression. I read you might be going back to Germany, are you in touch with Prof. Seegenschmiedt already? Did you get new nodules or what's happening? I wish you all the best.


Christl