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New to forum - diagnosing/treating early Duputrens vs. ??
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06/17/2013 21:58
Jaci

not registered

06/17/2013 21:58
Jaci

not registered

Re: New to forum - diagnosing/treating early Duputrens vs. ??

EH577:
Thanks much for your reply Lori. I also had noticed I was dropping things and thought I just wasn't being attentive or not holding on to objects carefully enough. I wonder how common this is? Reading info on the net, there's a lot of descriptions of nodules and cords and contraction, but I haven't come across mention of this type of symptom. Any one else out there experience this early on?


EH577 - definitely notice a reduction in hand strength! Only yesterday I dropped a full coffee all over the floor in my local supermarket. I find I struggle opening jars, and cramp up when scrubbing pots and pans when doing the dishes. My husband doesn't mind the jar opening but I think he thinks I use DD as an excuse to get out of doing the dishes! Ha ha ha

06/18/2013 04:43
wach 

Administrator

06/18/2013 04:43
wach 

Administrator

Re: New to forum - diagnosing/treating early Duputrens vs. ??

Happens to me, too. My grip isn't anymore what it used to be.

Wolfgang

EH577:
Thanks much for your reply Lori. I also had noticed I was dropping things and thought I just wasn't being attentive or not holding on to objects carefully enough. I wonder how common this is? Reading info on the net, there's a lot of descriptions of nodules and cords and contraction, but I haven't come across mention of this type of symptom. Any one else out there experience this early on?

08/17/2013 19:43
tz_louisiana 
08/17/2013 19:43
tz_louisiana 
Re: New to forum - diagnosing/treating early Duputrens vs. ??

Hi..diagnosed 2 days ago, right hand, by hand surgeon and of course the only course of treatment recommended is surgery when it becomes a problem. For now, there are two small hard lumps and one shows signs of a band. Just wanting confirmation or information from anyone that may have been seen for radiation by the clinic in Austin, Texas.

08/20/2013 04:51
bstenman 
08/20/2013 04:51
bstenman 
Re: New to forum - diagnosing/treating early Duputrens vs. ??

Be wary of surgeons who only have a limited knowledge of Dupuytren's treatments. The first one I saw taught at Standford Medical but only knew how to perform a fasciectomy and is still using a tourniquet so in the dark ages as far as procedures go. He also lied in stating the risks of complications and was completely ignorant of the recovery time or need for physical therapy.

In addition to this surgery there is the NA and Xiaflex injections to relieve the contracted area. For halting the spread and progression of Dupuytren's the only procedure that has years of use and many studies supporting its effectiveness is Xray treatment. XRT has been done for decades in Germany but only in the past couple years in the USA.

My GP gave me bad advice and it delayed by getting XRT in Germany by nearly a year. The treatment was 100% effective on the hand where the disease had progressed the least but marginally effective with the hand that had progressed the most prior to the treatment.

When I checked for doctors approved to perform Xiaflex injections the vast majority were not hand surgeons and none had ever performed a NA procedure and most had performed Xiaflex injections on a handful of patients. I found the best doctor for NA on the west coast and that is who did the NA and who subsequently did the Xiaflex procedures. No silver bullet and you will need to sift through a lot of well meaning but misleading advice and decide what is best for your specific situation.

08/22/2013 00:08
tz_louisiana 
08/22/2013 00:08
tz_louisiana 
Re: New to forum - diagnosing/treating early Duputrens vs. ??

Thanks for all the information. I am considering the splint that is posted on this site to sleep in. I have no contracture at this point and hope to continue as long as possible. I have read post on this site from some who have managed to have little to no contracture with wearing it. I realize it isn't a guarantee but feel it doesn't hurt to try. Thanks again for your response!

08/22/2013 02:06
callie 
08/22/2013 02:06
callie 
Re: New to forum - diagnosing/treating early Duputrens vs. ??

The splint is mostly for the surrounding structures. If the Dupuytren's decides to contract, a splint won't stop it.

08/28/2013 22:48
moondanc 
08/28/2013 22:48
moondanc 
Re: New to forum - diagnosing/treating early Duputrens vs. ??

callie:
The splint is mostly for the surrounding structures. If the Dupuytren's decides to contract, a splint won't stop it.

I believe Maddie reduced the contraction in her pinkie from 30 to 15 degrees just by wearing an Otoform splint with silicone. As always, YMMV but you gotta have hope

Diane

08/28/2013 23:03
moondanc 
08/28/2013 23:03
moondanc 
Re: New to forum - diagnosing/treating early Duputrens vs. ??

EH577:

3. Should I d/c lifting weights entirely - is this likely to make this worse? Or just back off on weight/reps? I now have gloves for padding, which I wasn't using before. I hate to quit when I've finally gotten into a routine and am making progress, but don't want to make this worse if it's Dupuytren's.

5. Does stretching/massage of area do any good? Reading info over the net, it's not clear whether it's helpful, harmful, or of no benefit.

Thanks for any insight/suggestions you can provide.

You've received good advice so far with regard to seeing a hand surgeon for diagnosis. If it is DD and if it does progress to the stage where you need NA be aware that there is a Kaiser doctor in San Rafael, CA who does perform NA. She was trained by Dr. Keith Denkler, who is well regarded by folks on this forum.

I first got DD more than 20 years ago in my early 40s due to aggravating my hand using a chisel to remove ceramic floor tile. It stayed in one finger for 20 years before it finally started advancing to other fingers and other hand. My personal belief is that you can't "cause" Dupuytrens by aggravating your hands. All you can do is cause Dupuytrens to appear much earlier than it original would have. You were always going to get it, it just started earlier. If you're lucky, it will not advance very fast because you're younger and it may not advance at all.

Diane

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