| Post surgery advice |
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04/23/2015 22:48
econn 
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04/23/2015 22:48
econn
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Re: Post surgery advice
My Xiaflex treatment was administered by a great plastic surgeon who specializes in all hand surgeries and procedures related to DC. He admitted that most surgeons prefer to do surgery because Xiaflex isn't as profitable. I am extremely satisfied with my Xiaflex procedure.
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04/24/2015 04:38
Cherise 
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04/24/2015 04:38
Cherise
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Re: Post surgery advice
BRIANB:
I always wonder if any hand surgeons follow this forum ... because there are many that want to do one thing.... and that is surgery ... even though it can create many problems in some cases..
Hi Brian ,
Exactly, surgery in general is considered to be more risky because the collagen forms thicker scar tissue already creating the fingers to curl. Extra collagen is what the autoimmune system signals to attack the own bodies soft tissue. That is what DC is collagen around the tendons pulling the fingers in.
My surgeon was a hand surgeon. He knew it was DC yet he never warned me it could cause all my fingers to curl.
The hand surgeon was at a major teaching hospital and after he saw my hand after the flare three months later after surgery, he said, "well I have done all I could & sometimes that happens with DC". Now he tells me flares from surgery are a huge Risk.
I was left on my own to find other alternative treatments. I read about Xiaflex and contacted a plastic hand surgeon trained in Xiaflex injections as well as he took part in the clinical studies in my area for Xiaflex. I got in with him just in time he retired two months after he finished my treatment.
If you are interested in Xiaflex injection look it up and the site which will direct you to the hand surgeons trained with the use of the bio drug. Also a plastic hand surgeon who is experienced with DC would be the way to go.
My hand surgeon was not experienced enough with DC. He made an inexcusable mess of my whole hand. Now I'm stuck with a painful condition all tight tendons and little use of my hand. At least I know now thru experience to go in to treat my other fingers with Xiaflex when needed.
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04/24/2015 04:51
Cherise
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04/24/2015 04:51
Cherise
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Re: Post surgery advice
econn:
My Xiaflex treatment was administered by a great plastic surgeon who specializes in all hand surgeries and procedures related to DC. He admitted that most surgeons prefer to do surgery because Xiaflex isn't as profitable. I am extremely satisfied with my Xiaflex procedure.
Xiaflex for the bio drug alone the cost is $3000 for one vile for a total of 3 injections in one finger. It takes the Dr. 15 to numb the hand and inject with Xiaflex. A few weeks later another 15 minutes to numb the hand to straighten the finger.
It was a lot less time for a trained plastic hand surgeon with Xiaflex injections and a few visits for therapy and finger splints.
This dr. had his patients interest at heart not his pocket book. His total bill was less than $300.00
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04/24/2015 09:39
BRIANB
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04/24/2015 09:39
BRIANB
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Re: Post surgery advice
Exactly my point ... money must be the motivator for many docs ... I just wonder if they ever read this forum and still go the surgery route anyway ... just for the bucks...
Again ... would like the names of you Dr.s ... good ones can be hard to find ..
Glad you are doing well ..
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04/24/2015 09:45
BRIANB
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04/24/2015 09:45
BRIANB
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Re: Post surgery advice
I had a plastic surgeon- hand surgeon ... I asked him about N.A. procedure ... his responce .. " I do not do that ..I have to sleep at night ". Meaning that the N.A. procedure is worthless..
Well I went to another dr. had N.A. and it worked out great ...my problem is .. now another finger is getting nodules forming.. ugh !
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04/24/2015 15:06
newman 
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04/24/2015 15:06
newman
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Re: Post surgery advice
Hi You might try a web search on" DeRoyal LMB Spring Finger Extension Assist" easy to adjust and wear about 2hours a day. Available in different sizes on Amazon USA Regards from down under.
Edited 04/25/15 08:48
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04/24/2015 21:20
Cherise
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04/24/2015 21:20
Cherise
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Re: Post surgery advice
BRIANB:
I had a plastic surgeon- hand surgeon ... I asked him about N.A. procedure ... his responce .. " I do not do that ..I have to sleep at night ". Meaning that the N.A. procedure is worthless..
Well I went to another dr. had N.A. and it worked out great ...my problem is .. now another finger is getting nodules forming.. ugh !
I tried NA before Xiaflex it did not work on me I was at level 4 the 130' curve the disease was to advanced at that point.
My surgeon has used it on other patients in the earlier stages on DC. I talked with several in his waiting room & saw the results. It's very unpredictable what treatments work at different stages of the disease.
Hope you find what helps your hand soon. It's such a frustrating disease to cope with.
Good Luck.
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04/24/2015 21:22
Cherise
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04/24/2015 21:22
Cherise
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Re: Post surgery advice
newman:
Hi You might try a wed search on" DeRoyal LMB Spring Finger Extension Assist" easy to adjust and wear about 2hours a day. Available in different sizes on Amazon USA Regards from down under.
I think I will give it a try too.
THANKX!
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04/24/2015 22:08
BRIANB
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04/24/2015 22:08
BRIANB
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Re: Post surgery advice
just ordered one .... can't hurt ..
one of the difficult issues of this crazy disease is .... when and or how early .. or what stage to get EX. steroid injection .. Xiaflex treatment .. radiation ... N.A. or open surgery ...
Because as most know ... needles and poking around can real stir things up ... and you could end up with a worse problem ..
As the saying goes " timing is everything " ...
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04/24/2015 23:50
Cherise
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04/24/2015 23:50
Cherise
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Re: Post surgery advice
BRIANB:
just ordered one .... can't hurt ..
one of the difficult issues of this crazy disease is .... when and or how early .. or what stage to get EX. steroid injection .. Xiaflex treatment .. radiation ... N.A. or open surgery ...
Because as most know ... needles and poking around can real stir things up ... and you could end up with a worse problem ..
As the saying goes " timing is everything " ...
Absolutely...I can't agree with you more. I am just now after years of searching for answers finding out that different techniques work at different stages of DC. Didn't even know there were different stages till last February .
Also not everyone reacts the same to these procedures no matter what the stage of DC each patient is at the time.
I also have Palm Psoriasis on my palms which complicates any procedure and PsA. I have told each dr. Some are better informed and the older they are the more experienced they have with different complications with DC.
Edited 04/25/15 02:51
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