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Successful self-treatment (so far)
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02/04/2015 14:18
gorbishop 
02/04/2015 14:18
gorbishop 
Successful self-treatment (so far)

I was diagnosed with early stage Dupuytren's about two years ago. At that time, I had a noticeable cord but no contraction. I decided to aggressively stretch my cord by pushing back my pinky. I formed the habit of doing this. There was some discomfort, especially at night. There was significant pain at night, but it only lasted about 30 to 45 seconds and then abated. Otherwise, there was only modest discomfort. Eventually the discomfort and pain abated. There is none at all now at night. The upshot of all this is that there has been no contraction at all. Whether there is cause and effect going on here or just luck, I don't know. But I thought I'd share the experience. Good luck to you all.

02/04/2015 14:54
Stefan_K. 
02/04/2015 14:54
Stefan_K. 

Re: Successful self-treatment (so far)

I didn't have any contracture until at least seven years after diagnosis, my successful "self-treatment" until then consisting of doing nothing, which I resumed after successful NA at age 52. But if it doesn't hurt you and it makes you feel better, and there is even only a slight chance that it could actually have a positive impact on the evolution of the desease, why not. I wish you to succeed in keeping the contracture away for the longest time!

02/04/2015 19:15
Lanod 
02/04/2015 19:15
Lanod 
Re: Successful self-treatment (so far)

gorbishop:
I was diagnosed with early stage Dupuytren's about two years ago. At that time, I had a noticeable cord but no contraction. I decided to aggressively stretch my cord by pushing back my pinky. I formed the habit of doing this. There was some discomfort, especially at night. There was significant pain at night, but it only lasted about 30 to 45 seconds and then abated. Otherwise, there was only modest discomfort. Eventually the discomfort and pain abated. There is none at all now at night. The upshot of all this is that there has been no contraction at all. Whether there is cause and effect going on here or just luck, I don't know. But I thought I'd share the experience. Good luck to you all.

Hello Gorbishop,

Your report of 'fixing' your condition by aggressively stretching the cord is a bit unusual. However, what your report is really interesting! There are mentions in the medical literature, and indeed on this forum, about persons who acccidentally break a DD cord by extreme exersion, by falling on the finger for example. I wonder if your treatment, on a young forming cord, has caused that cord to break at some point. If this is so then this could well be a form of treatment to be investigated. The relatively short-time pain and discomfort could well be explained if your were exerting the cord; and then on one occasion you broke it - and then ... relief!

I wonder has anybody got any more scientific, or more realistic comments on the feasibility of this suggested self treatment? I don't think that we should dismiss the concept too quickly.

02/04/2015 21:36
spanishbuddha 

Administrator

02/04/2015 21:36
spanishbuddha 

Administrator

Re: Successful self-treatment (so far)

Interesting discussion. Some surgeons in the UK apparently used to offer advice to DD patients to sit on their hands whenever possible, since people with LD rarely get contracture of the toes. But this is just another anecdote in the mix. The lack of evidence of the benefits of splinting run slightly against this.

02/05/2015 03:13
Tusk 
02/05/2015 03:13
Tusk 
Re: Successful self-treatment (so far)

Yep. The literature is all over the place. There are some who advise against stretching as it is thought to aggravate the disease and cause it stimulate contraction. See the last bullet point. http://dupuytrens.org/Why-do-people-get-Dupuytrens.html

Who knows. I do some mild stretching myself but am careful not to push it too far.

02/05/2015 13:57
wach 

Administrator

02/05/2015 13:57
wach 

Administrator

Re: Successful self-treatment (so far)

I believe there is some evidence that the cord is a reaction to pulling on the initial nodule. If the joint becomes stiff (by accident or by surgery) and thus the pulling is stopped, the cord typically regresses and vanishes. This supports the concept that pulling is counterproductive to Dupuytren's contracture.

But it is also well known that the body adapts to constant force. A patient once said to me "if some tribes succeed in Africa in streching the neck to twice ist original length why shouldn't I be able to get my finger straight?". I am pretty sure if you consistently pull on a bent finger to make it straight, eventually the finger will yield and become straight. The question is how long you need to pull and how long the finger will remain straight after you stopped pulling. It might contract quickly.

If you sit on your hand all day, the finger will probably be less contracted in the evening than in the morning. During the night it will re-contract and in the morning you need to sit on it again. But sitting on the hand all day makes your hand pretty useless ... I myself had a similar experience with my night splint: in the morning the finger was less contracted than in the evening. During the day it re-contracted to ist original position. Then, over night, it became a little more straight again.

Ideally you would sit on your hand during the day and wear a night splint to maintain the gain. It might work. But I would hate doing it ...

Wolfgang

02/05/2015 15:00
MizLiz 
02/05/2015 15:00
MizLiz 
Re: Successful self-treatment (so far)

wach:
I myself had a similar experience with my night splint: in the morning the finger was less contracted than in the evening. During the day it re-contracted to ist original position. Then, over night, it became a little more straight again.

Ideally you would sit on your hand during the day and wear a night splint to maintain the gain. It might work. But I would hate doing it ...

Wolfgang


This is the situation I'm in too. 2 months post surgery for a large nodule on PIP joint of RH little finger and a cord in my palm. I wear a night splint and the finger is pretty straight in the morning, although never 100% - there's always a bit of a bend in it, probably from the nodule pulling it down for so long. As the day goes on, though it contracts again, sometimes almost as badly as before surgery. When that happens, I throw the splint back on for a bit, but it's kind of discouraging. Am I just being impatient, or is this as good as it's likely to get?

02/05/2015 15:11
wach 

Administrator

02/05/2015 15:11
wach 

Administrator

Re: Successful self-treatment (so far)

Same finger and same joint as mine. I had Xiaflex injected and with the nightsplint was able to maintain the gain for over a year. When I stopped wearing it, the finger contracted with 1/2 year to the positions as before the injection. But that doesn't mean that this applies to you. too. You had surgery, a completely different game. Unfortunately, irrespective of treatment, the PIP joint of the little finger seems to be the most difficult one to treat and recurrence is likely.

Wolfgang

MizLiz:
This is the situation I'm in too. 2 months post surgery for a large nodule on PIP joint of RH little finger and a cord in my palm. I wear a night splint and the finger is pretty straight in the morning, although never 100% - there's always a bit of a bend in it, probably from the nodule pulling it down for so long. As the day goes on, though it contracts again, sometimes almost as badly as before surgery. When that happens, I throw the splint back on for a bit, but it's kind of discouraging. Am I just being impatient, or is this as good as it's likely to get?

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