| Is Plantar Fibromatosis a chronic inflammatory disease? |
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10/16/2016 22:48
Sammy 
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10/16/2016 22:48
Sammy
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Is Plantar Fibromatosis a chronic inflammatory disease?
Hi All,
I'm new here, so let me know if I should post this in another forum. I come to you rather spooked by the rapid acceleration of my nodule growth in the past four months.
I'd had "bumps" in my hands for years. I thought they were just calluses from the gym. But I have a new primary care doc who said that's Dupuytren's. I was not totally unfamiliar with it. A friend and both her parents and grandparents have/had it. In some, it contracted; in others it didn't. I wasn't really too worried until...
Nodules started appearing in my feet, the one on the arch growing fast. It doubled in size in two months. Now I have a "pad" forming on my right knuckle.
I've been reading all I can find. I'm a writer/editor by profession, and I used to have a health beat. It helps somewhat with the reading of studies, but some of the papers I'm looking at are dense in biochemistry. I could use your help.
I don't agree with wait and see.
What I see is that this is a disease whose population is too small to attract money for studies. (But large enough that I know a half dozen people who have nodules.) So we have to be our own sleuths.
I'm 51 and I was seeing the new doctor to deal with vitamin D and B12 deficiency/absorption issues that weren't improving and weren't iron or intrinsic factor based. She's diagnosed IBS and pursuing gut issues, which is where I was headed anyway. I'm on an ancestral diet - it's called the Perfect Health Diet if any of you are familiar with it. I describe it to outsiders as Paleo + rice. It has helped a great deal with some symptoms I was having like exhaustion, cold extremities, sleep disturbances, hair thinning. I'm still working on dry skin, dry eye, brain fog, and tingling in hands and feet.
I'm seeing a gastro specialist who has a progressive outlook. My blood lipids provide a clue that I'm fighting an infection. It's just a matter of finding out if it's protozoan, bacterial or fungi. We're doing stool tests, sibo tests, upper GI.
I've read that palmar/plantar fibromatosis may be a chronic inflammatory disease.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1798044/
That's how I'm approaching it via my diet right now. I've given up grains, sugar, beans, soy, all chemical additives. Eating grassfed/organic food and only eating in a window from noon - 8pm. The morning fast starves the gut pathogens. I can have coffee with coconut milk and coconut oil during the fast, and that keeps me from feeling hungry. Limiting alcohol to a few glasses on the weekend. I'm supplementing with B12, B complex, C, D3, NAC, Glycine and Hyaluronic acid. I'll be adding iodine, selenium, copper and zinc as soon as my doc gives the go ahead. I'm low or deficient in most micronutrients and need to get all of them up to speed, but without feeding the pathogens.
Sufferers of other types of chronic inflammatory diseases have improved using these strategies:
http://perfecthealthdiet.com/2014/01/cur...ng-spondylitis/
Is anyone here taking a "gut" approach?
I'm also very interested in the injections with hyaluronic acid, if anyone has had that.
I appreciate any info you have to offer.
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10/17/2016 05:42
wach  Administrator
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10/17/2016 05:42
wach Administrator
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Re: Is Plantar Fibromatosis a chronic inflammatory disease?
Hi Sammy,
Dupuytren and Ledderhose disease surely have some characteristics of an inflammatory disease. But both diseases are obviously associated with tissue remodelling and to me it is unclear to what extent special cell types are related to this remodelling and are not an indication of a chronic inflammatory disease. The inflammation might be a transitional phenomenon.
Although some patient posted good experience with various diets, generally diet does not seem to have a strong effect on Dupuytren or Ledderhose disease http://www.dupuytren-online.info/dupuytr...s_research.html (at the bottom of the page). An alternative to reduce symptoms and growth rate might be radiotherapy http://www.dupuytren-online.info/radiation_therapy.html , which was rated quite well in our recent patient survey http://www.dupuytren-online.info/patient_survey.html , specifically for Ledderhose.
Wolfgang
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10/17/2016 19:13
Sammy
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10/17/2016 19:13
Sammy
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Re: Is Plantar Fibromatosis a chronic inflammatory disease?
Wolfgang and SB, thank you so much for these links. I'll read them all.
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10/17/2016 19:18
Sammy
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10/17/2016 19:18
Sammy
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Re: Is Plantar Fibromatosis a chronic inflammatory disease?
Is tingling in hands and feet a symptom right before nodules appear?
I'm trying to sort out the B12 deficiency symptoms from what might be palmar/plantar fibromatosis symptoms.
I feel like I had tingling in my feet before the foot nodule appeared and I know that I recently had tingling in my fingers before the knuckle pad appeared.
I didn't mention in my initial post that I had frozen shoulder two years ago - seems that is sometimes related? I recovered from that with about 8 months of PT and acupuncture.
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10/17/2016 20:31
spanishbuddha Administrator
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10/17/2016 20:31
spanishbuddha Administrator
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Re: Is Plantar Fibromatosis a chronic inflammatory disease?
Sammy:
Is tingling in hands and feet a symptom right before nodules appear?
I'm trying to sort out the B12 deficiency symptoms from what might be palmar/plantar fibromatosis symptoms.
I feel like I had tingling in my feet before the foot nodule appeared and I know that I recently had tingling in my fingers before the knuckle pad appeared.
I didn't mention in my initial post that I had frozen shoulder two years ago - seems that is sometimes related? I recovered from that with about 8 months of PT and acupuncture.
Reports of tingling, itching, pins and needles, aches, 'heat' are quite common with growing nodules and fibromas. Frozen shoulder is part of the same systemic fibrosis condition, although not everyone gets it, as are knuckle pads (Garrod's) and for men Peyronies's.
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10/17/2016 21:11
Sammy
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10/17/2016 21:11
Sammy
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Re: Is Plantar Fibromatosis a chronic inflammatory disease?
spanishbuddha:
Reports of tingling, itching, pins and needles, aches, 'heat' are quite common with growing nodules and fibromas. Frozen shoulder is part of the same systemic fibrosis condition, although not everyone gets it, as are knuckle pads (Garrod's) and for men Peyronies's.
Thank you spanishbuddha. When all this happens at once, is that called a flare?
Edited 10/18/16 00:12
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10/18/2016 06:40
spanishbuddha Administrator
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10/18/2016 06:40
spanishbuddha Administrator
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Re: Is Plantar Fibromatosis a chronic inflammatory disease?
Sammy:
spanishbuddha:
Reports of tingling, itching, pins and needles, aches, 'heat' are quite common with growing nodules and fibromas. Frozen shoulder is part of the same systemic fibrosis condition, although not everyone gets it, as are knuckle pads (Garrod's) and for men Peyronies's.
Thank you spanishbuddha. When all this happens at once, is that called a flare?
I think we informally use the word flare to describe a short term sudden worsening of the condition, either swelling, pain, or nodule enlargement. It might persist or develop into a new stage but often recedes. There is a medical definition "A flare is a transient worsening in severity of a disease or condition that eventually subsides or lessens. For example, in many arthritis conditions the joints can flare with worsening of stiffness, pain, and swelling." but I'm not sure as lay people we stick to that.
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