RT Left Hand Surgery Right Hand |
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10/31/2016 19:02
Joyce
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10/31/2016 19:02
Joyce
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RT Left Hand Surgery Right Hand
6 months since RT on left hand and all well so far. Worrying about Right Hand as new nodules already appearing outside perimeter of surgery which was only 4 months ago. I am going to Sarasota Fl for year and wondering if I will find an Ocologist there who can treat new nodules with RT. Appears DD in hands is going to be unending battle. I can always tell when it's active as that spot itches beyond belief. Anyone else have that symptom or know of Radiation Ocologist treating DD Sarasota Fl?
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10/31/2016 20:38
spanishbuddha Administrator
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10/31/2016 20:38
spanishbuddha Administrator
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Re: RT Left Hand Surgery Right Hand
Joyce: 6 months since RT on left hand and all well so far. Worrying about Right Hand as new nodules already appearing outside perimeter of surgery which was only 4 months ago. I am going to Sarasota Fl for year and wondering if I will find an Ocologist there who can treat new nodules with RT. Appears DD in hands is going to be unending battle. I can always tell when it's active as that spot itches beyond belief. Anyone else have that symptom or know of Radiation Ocologist treating DD Sarasota Fl?
A quick search on the forum suggests that this place will treat DD with RT http://www.sivr.net. In 2011 it was a Dr Grubbs.
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10/31/2016 21:27
Joyce
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10/31/2016 21:27
Joyce
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Re: RT Left Hand Surgery Right Hand
Thanks! I looked on website under treatment/RT/Clinics and closest place listed was New Port Richey in Fl.
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11/01/2016 13:56
Joyce
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11/01/2016 13:56
Joyce
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Re: RT Left Hand Surgery Right Hand
FYI: called http://www.sivr.net. (Dr Grubbs) Sarasota FL regarding Radiation Therapy for Duypretren..was told they don't do.
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11/02/2016 00:07
Doblake
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11/02/2016 00:07
Doblake
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Re: RT Left Hand Surgery Right Hand
Owen B. I am getting RT at Ackerman Cancer Clinic in Jacksonvijlle Florida. Dr.Ackerman is a well known doctor for RT. Hope this helps. I need to know a doctor who will do xiaflex on LD in case the RT doesn't work.
Edited 11/02/16 02:40
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11/02/2016 05:27
Stefan_K.
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11/02/2016 05:27
Stefan_K.
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Re: RT Left Hand Surgery Right Hand
Doblake: Owen B. I am getting RT at Ackerman Cancer Clinic in Jacksonvijlle Florida. Dr.Ackerman is a well known doctor for RT. Hope this helps. I need to know a doctor who will do xiaflex on LD in case the RT doesn't work.
Hi, I don't know about xialflex but if the RT doesn't work you can also have NA done: http://www.dupuytren-online.info/NA_list_North_America.html
It worked for me.
Stef
[54 year-old male, DD diagnosis 2006, RH contracture and NA/PNF 2014, RT 2015, wearing night splint glove]
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11/02/2016 12:04
Joyce
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11/02/2016 12:04
Joyce
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Re: RT Left Hand Surgery Right Hand
Thank you all for your info. I wish everyone in initial stages DD had RT option. I am 69 female DD 20 years, very good health, monitor my weight and diet and exercise regularly. DD is my only nemesis. My DD progressed rapidly in right hand to point of 45° closure this year with nodules covering palm up two fingers and contracting all but thumb. I had xiaflex twice in Sarasota years ago but DD.returned with vengeance within a few years and also nodules began forming on left hand. Don't know why I never considered NA but guess I thought DD was something I could live with and surgery was too invasive and.that xiaflex was my answer Came back hometown upstate NY early this year and had surgery on right hand.(near family ) It is healing but Doc couldn't get it all after a 3 hour surgery with local anesthesia. I can now open my hand but DD still active At same time this was happening I hand RT here in NY on left hand as the DD was in its initial stages when RT is most effective . (RT ruled out on right hand too much DD progression. I had 3 RT treatments repeated in 3 month interval. (I learned about RT from this site and found Ocologist was.in vicinity of my surgeon) I am very pleased so far and wish it was available years ago. This is where I'm at now. Already worrying DD is acting up in my right hand after surgery. New nodule and horrific itching Relocating back to Sarasota and wonder if this continues at a rapid rate there is an Ocologist there I can see. That's where I'm at.
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11/03/2016 02:33
newman
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11/03/2016 02:33
newman
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Re: RT Left Hand Surgery Right Hand
During a meeting of the Dupuytren's Society, in Munich a couple of years back Prof. Seegenschmiedt could see no reason why patients having had surgery and also had active aggressive Dupuytrens ,that radiotherapy could be carried out. I would investigate. In my case in 07 I had radiotherapy some 6 to 8 weeks after a repeat surgery .
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11/03/2016 05:51
wach Administrator
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11/03/2016 05:51
wach Administrator
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Re: RT Left Hand Surgery Right Hand
Hi Newman, I believe Prof. Seeegnschmiedt is currently working with several German surgeons testing the effect of RT after Dupuytren surgery. Naturally, it will take a few years until results on recurrence will become available.
Wolfgang
newman: During a meeting of the Dupuytren's Society, in Munich a couple of years back Prof. Seegenschmiedt could see no reason why patients having had surgery and also had active aggressive Dupuytrens ,that radiotherapy could be carried out. I would investigate. In my case in 07 I had radiotherapy some 6 to 8 weeks after a repeat surgery .
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