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Anyone with successful treatment of knuckle (PIP) joint? Any doctors in NJ?
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05/16/2009 15:01
Wolfgang

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05/16/2009 15:01
Wolfgang

not registered

Re: Anyone with successful treatment of knuckle (PIP) joint? Any doctors in NJ?

Paula, a nodule growing in the right spot can cause contracture as well. As you mention, NA won't be able to help if it is a nodule. I am trying to maintain my finger straight (well, somewhat straight) by wearing a night splint and by having the nodule radiated.

Wolfgang

Quote:



Scion,

In an earlier post, Wolfgang indicated he had a nodule on his pinkie without a cord and another member, Joe also has this I believe. If you have a cord, then I can understand how NA can fix it. At this point, I cannot see any cord on my pinkie and the doc I went to confirmed this. However, the finger is getting more curved every week I guess because the nodule is growing? You might know I would have something even weirder with this weird disease! Thanks for your reply.


Paula


05/16/2009 18:11
scion111 
05/16/2009 18:11
scion111 
Re: Anyone with successful treatment of knuckle (PIP) joint? Any doctors in NJ?

Wolfgang,

Thanks for the input and links! I'm really hoping that the pinky nodule can be treated so that I regain full extension of the finger. As a pianist with relatively small hands, the slight contracture of my pinky at the knuckle is making very difficult to play octaves comfortably and I'm finding that I'm not hitting notes as accurately with my pinky because it is not fully extended - very frustrating :-(

I'll let you know what the other doctors I visit have to say and how my chosen treatment works.

05/16/2009 22:22
brian123

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05/16/2009 22:22
brian123

not registered

Re: Anyone with successful treatment of knuckle (PIP) joint? Any doctors in NJ?

I DON'T UNDERSTAND WHERE YOUR NODULE IS,SO I'LL PASS ALONG MY HISTORY.

I HAD A LARGE PIP JOINT NODULE WITH NO VISABLE CORD AND A 95 DEGREE CONTACTURE.

DR. EATON DID NA AND INJECTIONS 3 MONTHS AGO.. MY PINKY IS JUST ABOUT PERFECT NOW AND THE NODULE IS ONE TENTH THE ORIGINAL SIZE.

05/16/2009 22:30
scion111 
05/16/2009 22:30
scion111 
Re: Anyone with successful treatment of knuckle (PIP) joint? Any doctors in NJ?

Brian123,

Wow! That's good news. Glad to hear you had such good results! I'm seeing 2 more doctors next week just to get other opinions, but Dr. Pess seems to be the most experienced in my area (from what I understand he is just about as experienced as Dr. Kline but anyone please feel free to voice an opinion!) and I'm hoping to experience the same result as you!

05/16/2009 23:19
brian123

not registered

05/16/2009 23:19
brian123

not registered

Re: Anyone with successful treatment of knuckle (PIP) joint? Any doctors in NJ?

I CAN'T SAY IF THE TWO DOCS YOU MENTIONED ARE GOOD OR WHATEVER,,,I HAVE HEARD GREAT THINGS ABOUT PESS
MYSELF...I WOULD WALK TO FLORIDA TO SEE EATON IF NEED BE ..AND I LIVE IN NEW YORK..

YOU ONLY HAVE TEN FINGERS.......AND YOU AINT GONNA GROW ANY NEW ONES

05/17/2009 02:35
scion111 
05/17/2009 02:35
scion111 
Re: Anyone with successful treatment of knuckle (PIP) joint? Any doctors in NJ?

Brian123,

Thanks for your comments. It seems that Drs. Eaton and Pess are THE go to doctors for this cruel disease. I'll keep everyone advised as things progress...

05/17/2009 13:12
patandpaula 
05/17/2009 13:12
patandpaula 
Re: Anyone with successful treatment of knuckle (PIP) joint? Any doctors in NJ?

That is good news, Brian! I did get an email from Dr. Eaton yesterday. They said they couldnt help me at this time, probably because the contracture isnt very bad at all yet, anyway, I am just guessing on that. If they helped you with a 95 degree that is really good. I dont know about the degree I have, but it is only slightly curved at this point, so probably too early. I cant afford the radiation treatments so that is not an option for me right now. So I guess Ill just wait and see... Thanks Wolfgang for your reply.

05/20/2009 13:58
scion111 
05/20/2009 13:58
scion111 
Re: Anyone with successful treatment of knuckle (PIP) joint? Any doctors in NJ?

Saw another doctor today. Wow! Totally different opinion. He is a hand surgeon by specialty. Said Dupuytrens is so common that he sees it sometimes 5 times a day. It was even the first item on his coding chart!

He only believes in surgery. Does not trust NA or xiaflex because he feels it's very difficult to be able to stick a needle in your hand/finger without seeing what you're doing and risk damagin something. Mentioned the possibility of a ruptured flexor tendon several times. Scary...

He said my 6 degree bend only warrants monitoring and he adamantly stated that the risks of NA or xiaflex (when it becomes available) totally outweigh the potential benefits.

All I know is that this is seriously affecting my piano playing - but I can still play - so is NA really that risky?

Thoughts anyone?

05/20/2009 15:02
SteveAbrams

not registered

05/20/2009 15:02
SteveAbrams

not registered

Re: Anyone with successful treatment of knuckle (PIP) joint? Any doctors in NJ?

This is exactly what the hand surgeon I initially saw said. However, it comes from an ignorance of NA since these physicians have never performed NA. Eaton has the most comprehensive data base on nerve damage with NA; it demonstrates that the risk of nerve damage is LESS with NA, compared to surgery. With surgery, there is the additional risk of general anesthesia, which does not exist with NA. Finally, the recovery times are simply not comparable - a few days with NA and months, possibly a year, with surgery. The only time I would contemplate surgery would be if NA could not be used due to the type and location of Dupuytren's.

Steve Abrams

05/20/2009 15:06
flojo 
05/20/2009 15:06
flojo 
Re: Anyone with successful treatment of knuckle (PIP) joint? Any doctors in NJ?

In my opinion, NA has some risks, of course, but nothing like the risks with surgery. I had immediate release of my pinkie and thumb and some cords in the palm beginning to contract my ring finger. Dr. Denkler who did my NA is a hand surgeon and did full surgery all the time before he ever did NA. He knows the anatomy of hands and has gone to NA whenever possible because the risks are less than surgery. Besides, the contracture after surgery due to scar tissue is irreversible. Any other hand surgeon will know the anatomy of hands, where tendons, ligaments, etc. are
If I get contracture again, I'll get NA in a New York minute. I don't ever plan to have surgery. I'll have alternatives or nothing.
Flora

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