mY BREAST CANCER SURGEON ANDS ANOTHER NEURO TOLD ME THIS AS FROM CHEMO AND AND BC WAS ON MY RIGHT SIDE. jUST SAW A HAND SUGEON AT A COUNTY HOSPITAL IN bAKERSFIELD AND SHE SAID SURGERY. mY RIGHT PINKIE IS BENT AND I HAVE A CORD GOING DOWN MY HAND. ALSO A LARGE NODUALE UNDER THE SECOND DIDGET ON MY PINKIE. i WAS ADOPTED , BUT i KNOW THAT HYPER-EXTENSTION GENE RUNS ON BIO MOMS SIDE OF MY FAMILY. i HAVE HAD NO PROBLEMS W/ THIS UNTIL AFTER CHEMO. i AM FINE AS FAR A BC GOES. bUT SURGERY WITH MISSING LYMPH NODES ON MY RIGHT SIDE? tHE HAND SURGEON IS ALSO A PLASTIC SURGEON AND TOLD ME i WOULD BE FINE IN 7 DAYS?

i AM UP IN THE WOODS. i CANNOT EVEN DRIVE MY STICK SHIFT. i AM HAVING SOME PROBLEMS WITH THE CREDABILITY OF ALL OF THIS. iF MY SENSATION GOES SO DOES MY ART. nOT A PAINTER HERE 3-D FORM AND INSTALLATIONS. SORRY FOR THE CAPS THIS STUPID THING IS NOT MINE . MY MAC BROKE.

oNE WOULD THINK AFTER ALL MY WICKED SARCASM THROUGH CANCER i WOULD GET A HALO NOT SOMETHING NEW. i HAVE MAJOR ..i DO NOT TRUST DOCTORS SYNDROME.

pLUS, "SHE" THE DOC SEEMED A TAD "TOO" ENTHUSIASTIC ABOUT ALL THIS , AS IF i AM GOING TO BE ON SOME PRIME TIME TEACHING HOSPITAL SITCOM.

hELP.......CONFUSED AND VERY SCARED, W A LARGE DOG AND LIVING IN THE UNDERBELLY OF TWIN PEAKS.
cLAIRE

Yes they do seem to sell the surgery enthusiastically. And it can work, but NA is a much better procedure for all but the worst cases. Don't even consider surgery until you've been to one of the MDs that does needle aponeurotomy and gotten his opinion. The handful of NA practitioners in the US are all highly qualified and the procedure, while it takes specialized knowledge, isn't particularly difficult.

I've had 2 surgeries and wouldn't do it again. I haven't had NA yet but I expect to in the future.

Thank you all for your input ,
Any opinions will be greatly appreciated.

I actually wrote a note at 2 am that was coherent but it vanished.

Diane, I used to live in the Bay area, I wish I still did. I am having a friend check to see if the doctor you mentioned takes my insurance.
If there is anyway to prove that a pre existing family trait was brought on by chemo I could possibly get the funds to have it preformed.

Any more input would be appreciated. The thought of not being able to do my art after turning down mediation during cancer due to perm. numbness is a sick twist of fate.Does anyone know if someone is doing a gene search for this?

Thank you all again ,
Claire

splashingfeathers@yahoo.com

Dear Claire

There is a research study being don on Dupuytren's. I have a family that has 3 generations of people who have this and the 2 younger generations are just too young...but I am sure they will get it too. I have been working really hard to talk to my family members to get them DNA tested. The hard part is that I am having kind of a hard time with some of them...it is like they have watched too many episodes of CSI or forensic files.

Kristine Shirk

I am a professional musician and luthier and depend on my hands to perform my job duties. I chose to have Dermofasciectomy surgery earlier this year on my right hand which had contracted over 30 degrees with heavy cords and large lumps/nodules on the ring and little fingers. Today, I'm able to work, my fingers are straight, and the nodules on my fingers are 95% gone. I looked into NA prior to deciding on this surgery, but rejected NA when I discovered that the rate of recurrence is even worse than with conventional fasciectomy which has a recurrence rate of 40-50%, usually within the first two to three years postoperatively, according to the studies I've read. Plus, NA would do little if anything about the large nodules on my fingers. With Dermofasciectomy the rate of recurrence is only 8-11%.

It is true that Dermofasciectomy surgery is much more invasive than NA and takes considerably more time for full recovery. However, the odds (90%) favor that Dermofasciectomy will be a one time procedure, whereas with NA, the odd are more like flipping a coin for returning to the Surgeon for a repeat of the procedure each time you have it done. NA may seem to be an attractive alternative to conventional fasciectomy or Dermofasciectomy surgery to many people, but IMO, it is more than likely just a delaying tactic