Collecting data on the effect of NAC |
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03/29/2007 08:49
wach Administrator
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03/29/2007 08:49
wach Administrator
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Collecting data on the effect of NAC
For those who are not registered in our forum:
Dupuytren Society in cooperation with Dr. Charles Eaton started to collect experience that people have/had with taking NAC. We are interested in any effect on Dupuytren and Ledderhose when NAC is taken for a longer period of time, e.g. several months. If you can contribute to this please have a look at our questionnaire at
http://www.dupuytren-online.info/research_funding.html
Thank you for your support!
Wolfgang
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04/25/2007 14:44
beamer1
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04/25/2007 14:44
beamer1
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Re: Collecting data on the effect of NAC
Wolfgang, Will you please tell me what NAC is and where I could purchase? Sounds like something I would like to give a try as at this point, anything would be better than doing nothing. Thanks!
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05/27/2007 12:04
wach Administrator
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05/27/2007 12:04
wach Administrator
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Re: Collecting data on the effect of NAC
You might have a look at
http://www.dupuytren-online.info/other_therapies.html
and google for "N-Acetyl-L-Cysteine" or search in Wkipedia for Acetylcysteine
http://en.wikipedia.org/wiki/N-Acetylcysteine
Sorry for my late response, I just found your post!
Wolfgang
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Wolfgang, Will you please tell me what NAC is and where I could purchase? Sounds like something I would like to give a try as at this point, anything would be better than doing nothing. Thanks!
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06/01/2007 00:36
dirknot registered
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06/01/2007 00:36
dirknot registered
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Re: Collecting data on the effect of NAC
Hi Wolfgang, I did some research on NAC and found the possibilty of some side effects was a need to take three times the rate of NAC in Vitamin C to offset future problems. I'm interested because others have reported vitamin C intake can increase collagen formation. I wonder if this should be of concern?
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06/02/2007 08:53
wach Administrator
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06/02/2007 08:53
wach Administrator
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Vitamin C and NAC
I don't know whether it makes sense to additionally take Vitamin C. Did you fidn any publication on that? I would guess taking 1-2 g Vitamin C daily for a while wouldn't cause much trouble but I personally I don't believe in taking excessive vitamins. Eating fruits probably makes sense, taking pills probably less (my opinion). I am not sure either whether NAC helps for Dupuytren, we are just collecting data to get a better picture. I myself have been taking NAC now for about 3 months. I have the feeling that it might have helped for my Ledderhose nodules but those are small anyway. I doubt that it works on Dupuytren cords but, as I said, we are still collecting data and I don't want to have any prejudice. Comments on C would be interesting.
Wolfgang
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Hi Wolfgang, I did some research on NAC and found the possibilty of some side effects was a need to take three times the rate of NAC in Vitamin C to offset future problems. I'm interested because others have reported vitamin C intake can increase collagen formation. I wonder if this should be of concern?
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06/05/2007 18:21
marjorie
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06/05/2007 18:21
marjorie
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Re: Collecting data on the effect of NAC
Wolfgang, I tried the NAC but had to stop as I had too many side effects, a really upset stomach. Marjorie
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06/06/2007 05:54
wach Administrator
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06/06/2007 05:54
wach Administrator
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Re: Collecting data on the effect of NAC
Sorry about that, Marjorie! Would you mind filling out a form and mailing it to NAC at dupuytren-inline.info? (I don't want to type the real address here). You can find the NAC form at http://www.dupuytren-online.info/research_funding.html. If you prefer I can fill it out for you as well if you let me know (w.wach at ...) how long you took it, what side effects you observed, changes of disease status (if any) etc.. We would like to get a complete as possible picture and that includes side effects and failures.
Thank you! Wolfgang
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Wolfgang, I tried the NAC but had to stop as I had too many side effects, a really upset stomach. Marjorie
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06/06/2007 15:18
marjorie
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06/06/2007 15:18
marjorie
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Re: Collecting data on the effect of NAC
Hi Wolfgang. Can you wait a couple of weeks and I will fill in the form? I am going on holiday on Saturday and my computer is going away for twitching. Marjorie
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06/12/2007 03:11
dirknot registered
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06/12/2007 03:11
dirknot registered
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Re: Collecting data on the effect of NAC
Hi Wolfgang. My info. came from my local chemist's print out on NAC. From a CD-ROM (Hyperhealth Natural Health & Nutrition). It implies some people get kidney stones from the cysteine. They recommend at least 3 times the quantity of VitC to NAC. ie. 200mg NAC with 600mg of VitC. The symptoms Marjorie has mentioned also follows the possible NAC side effect (in some people) to remove mucous layers in the intestines. I'm still going to try NAC & believe your survey will help in deciding if NAC will be useful for Dup. sufferers despite side effects Regards Dirk
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