Re: Add another to the mix - Dupuytren maybe caused by lack of use of the hand (because of De Quervain)
I haven't seen you mention cords. Do you have them in the affected fingers? Nodules shrinking by 2/3 in a few days sound odd for DD nodules. If I wanted a firm diagnosis, I'd go to a DD expert, even if it cost me a couple of hundred Euros.
Stef
[55, Dupuytren diagnosis 2006, RH contracture and PNF/NA 2014, radiotherapy RH 2015, LH 2017 & 2018, night splint glove RH since 2015]
Re: Add another to the mix - Dupuytren maybe caused by lack of use of the hand (because of De Quervain)
Stefan_K.:I haven't seen you mention cords. Do you have them in the affected fingers?
Never developed cords - I went from nothing to very visible nodules (painful in screwing tight my son's milking bottle cap) in at most 3 months while wearing the hand glove for the really really painful blasts in my wrist.
Stefan_K.: Nodules shrinking by 2/3 in a few days sound odd for DD nodules. If I wanted a firm diagnosis, I'd go to a DD expert, even if it cost me a couple of hundred Euros.
Stef
[55, Dupuytren diagnosis 2006, RH contracture and PNF/NA 2014, radiotherapy RH 2015, LH 2017 & 2018, night splint glove RH since 2015]
I've read a lot and I'm aware regression sounds odd, let alone almost a complete one.
The hand surgeon who saw my hand does DD treatment, both Xiaflex and actual surgery, and took all of 1 minute to diagnose DD by manipulating the palm of my hand.
The ultrasound scan of a few months ago was confirming nodules compatible with DD.
I would bet my surgeon would retract his diagnosis - and am I interested in shelling out 100EUR for that?
Thanks for replying, I appreciate - but it's not the kind of thing that (given my condition of almost absolute normality right now) would steer me towards another visit. I will be looking forward other opinions as well and perhaps change my mind afterwards.
Re: Add another to the mix - Dupuytren maybe caused by lack of use of the hand (because of De Quervain)
wach:There is a lot of other reasons for nodules in the hand, Dupuytren's being only one of them. That's why we are emphasizing on our website to first exclude other causes https://www.dupuytren-online.info/dupuyt..._therapies.html.
That's part of the large amount of data I read, and that's why I went to a hand surgeon to get a diagnosis, and why I took the ultrasound scan, none of which pointed to anything else.
wach:If your nodules are gone and you are happy, why not just enjoy that? It likely wasn't Dupuytren's.
Wolfgang
That's right. Or it was, and it regresses for some individuals after all, who knows. Too bad I didn't take pictures.
As of now, I am in fact in the happy and enjoying camp.
Re: Add another to the mix - Dupuytren maybe caused by lack of use of the hand (because of De Quervain)
If you don't have cords in your fingers, and never had, your extension deficit must be due to something else. You asked what we would do in your shoes. If it was me, I'd like to know what is going on in that finger, even if it cost me 100€ (which is peanuts compared with the sums some here spend on Xiaflex or RT)
Stef
[55, Dupuytren diagnosis 2006, RH contracture and PNF/NA 2014, radiotherapy RH 2015, LH 2017 & 2018, night splint glove RH since 2015]
Re: Add another to the mix - Dupuytren maybe caused by lack of use of the hand (because of De Quervain)
Stefan_K.:If you don't have cords in your fingers, and never had, your extension deficit must be due to something else. You asked what we would do in your shoes. If it was me, I'd like to know what is going on in that finger, even if it cost me 100€ (which is peanuts compared with the sums some here spend on Xiaflex or RT)
Stef
[55, Dupuytren diagnosis 2006, RH contracture and PNF/NA 2014, radiotherapy RH 2015, LH 2017 & 2018, night splint glove RH since 2015]
Thanks again Stefan.
My understanding is not that everyone with DD develops cords. And yes, on one hand (pun intended) I'd like to know what's going on.
For the rest, I don't know how many people here have the kind of hypermobility I have, for which I have described a few characteristics earlier on, and which I guess make me a fairly rare case.
Let me attach a couple pictures (and forgive the spots, as my phone camera is slightly damaged) of what my left, sane hand can still do without external aid... and the bent-backwards middle finger of the right, with-nodule hand, which can go further - but not while I hold a camera with the other hand!
Re: Add another to the mix - Dupuytren maybe caused by lack of use of the hand (because of De Quervain)
On top of that, let me also attach a couple pictures where I drew a circle where the (very small but still discernible) nodules are - I will let you judge whether that's classic DD or otherwise.
For sure those aren't the 15mm-17mm thingies that the ultrasound scan easily picked on in October 2017.
Re: Add another to the mix - Dupuytren maybe caused by lack of use of the hand (because of De Quervain)
alessandro.s:My understanding is not that everyone with DD develops cords. And yes, on one hand (pun intended) I'd like to know what's going on.
No everyone with DD develops cords, but cords are what limits extension in DD fingers, and from your description you seem to have such a limitation if not contracture on one finger.
I wouldn't be able to tell what it is that you have, but I'd do a table top test: put your hands on a flat surface and check if any of the fingers cannot be put flat. Then pull up each finger separately with the other hand and check if there are any that cannot be lifted at all. Those aren't normal.
Furthermore, I'm afraid you don't realize what is "reduction of movement" for an hypermobile individual - have you looked at my attached picture of the middle finger (where a very small nodule is still present) bending backwards almost to 180 degrees?
In September that finger could "just" be bent 90 degrees backwards. Not a single bit more, as its joint was rock hard at that point. Which would be a very desirable condition for anyone with DD, but it was a really stiff finger for me.
If you're not making any effort to factor hypermobility in this discussion, I guess we'll just keep talking past each other. Let me please have another try.
Did I have lumps compatible with DD in my hand? Yes - mildly painful ones if I pressed on them. Did my GP doctor suspect Dupuytren? Yes. Have I been to a hand surgeon specializing in Dupuytren? Yes. Did he have me do the flat palm on table test? Yes. Was any of my movements limited to the point of fingers not being perfectly flat? No - all fingers were getting down flat. Was the available mobility normal/satisfactory for my own standards? Hell NO. That's why I was getting that visit. Did he feel my finger for lumps? Yes. Did he think it was Dupuytren? Yes, with not a shade of doubt. Did the ultrasound scan confirm it was Dupuytren? Yes, two lumps of 17mm.
fast forward a few months, look at the pictures.
Do I still have two lumps of 17mm in my hand? No, they're much smaller even by cursory observation - especially the middle finger one. Do I still have stiffness in my hand? No, not at all. Can I press on the remainders of the lumps without pain? Yes. Do I have my full hypermobility back (and again look at the pictures for what that means)? Yes.
A final note. I am not stating nor implying any causation here, just showing a correlation of facts on a statistical sample of one. At the same time, I think it's valuable to note how the sample might be a fairly rare one because of hypermobility.
That's all folks. And thanks again for your time and thoughts.
Re: Add another to the mix - Dupuytren maybe caused by lack of use of the hand (because of De Quervain)
I agree that you are unique. Thanks for the link to the 2013 post. My takeout is that the patient had no apparent cords, but that cords were present deeper in the palm and finger. I am not a medical doctor. However, logic suggests that something physically causes contracture, typically a cord, but I can also imagine nodules in certain parts of the finger, notably joints, causing an extension deficit. All the best.
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