| An insider's view of the Xiaflex sales force |
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02/14/2010 20:33
Xiaflex curiousnot registered
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02/14/2010 20:33
Xiaflex curiousnot registered
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An insider's view of the Xiaflex sales force
It's amazing and a little horrifying to read these public bulletin board posts of sales reps involved in the rollout of Xiaflex. These are the same people who will be pitching the drug to the docs. Shocking how unprofessional some are, makes you wonder about the whole process. http://www.cafepharma.com/boards/forumdisplay.php?f=158
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02/14/2010 21:31
jimh 
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02/14/2010 21:31
jimh
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Re: An insider's view of the Xiaflex sales force
Sales guys are always a little over the top. They have to be. You and I aren't the sorts of people who'd be cold-calling doctors offices, trying to get past secretaries who've been told to brush us off like flies It's all just part of the business and I agree, a lot of it isn't very pretty.
Regarding all the chatter about possible side effects of Xiaflex, I can say that surgery definitely has a side effect: large open incisions that take months to heal. And, sometimes (like in my case), severed nerves. Xiaflex is a walk in the park by comparison.
Edited 02/16/10 01:30
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02/14/2010 21:41
flojo 
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02/14/2010 21:41
flojo
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Re: An insider's view of the Xiaflex sales force
It is critical to find ways to reach every person with Dupuytren's disease and every doctor or professional who makes referrals to let them know ALL of the treatment options for Dupuytren's and related diseases..
17 months ago, I had never heard of NA nor RT as alternatives to surgery, only Xiaflex in the trial stages. I sought to get in a clinical trial, but my contracture was not severe enough. I felt doomed, but I kept searching. About 13 months ago, I found this website! WaaLaa! I learned about NA and RT. 10 months ago I had NA. 7 months ago I had RT!
Knowledge is power. I want everybody to have all of the knowledge about treatments for Dupuytren's, not just surgery. Xiaflex will spend much advertising $. At least they will get the word out that there is their option to surgery.
I don't know exactly how to do it, but I think we can hook into Xiaflex's advertising dollars to tell about NA and RT. They will figure out how to have Xiaflex come up at the top of the page when anyone Googles Dupuytren's. They will probably be on Facebook, blogs, YouTube, etc. All I know is to keep my eyes open and give my input if I can when I see something about Xiaflex.
One thing I did was to become a "fan" of Dupuytren's Foundation on Facebook. That is a great opportunity to get more information. It acts sort of like this Forum. If you haven't done so, you can get on Facebook and search "Dupuytren's Foundation. Then, become a fan.
Also, donations to Dupuytren's Foundation helps. I felt that I owed this website for the knowledge it gave me about alternative treatments. If I hadn't found out about NA and RT, I would have been grateful by now for Xiaflex as an option to surgery.
Wolfgang, please confirm that donations to the Foundation helps this website as well as the Foundation.
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02/15/2010 01:50
LubaM.
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02/15/2010 01:50
LubaM.
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Re: An insider's view of the Xiaflex sales force
Flora,
Your dedication to this Forum and the Dupuytren's Foundation is very much appreciated. You always take the time to offer advice and help out the people who have many questions.
Just like you, I am so grateful to this Forum because it helped me avoid a painful surgery in 2006 when I discovered through this Forum that the option for NA was available to me. I did NA in 2006 (am going for a re-do in March to Florida, which I will follow up with RT in La Jolla).... I already had RT on my other hand last November.
Like you, I also follow regularly the posts on Facebook from he Dupuytren's Foundation...a wonderful website!!! with great information posted.
Lets hope that all of us sufferers of Dupuytrens keep well informed through all these available venues, so that we can make the right choices to treat this disease...and lets look forward to a cure some day !!
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02/15/2010 17:27
flojo
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02/15/2010 17:27
flojo
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Re: An insider's view of the Xiaflex sales force
Thanks you, Luba. I am dedicated to this site. I can imagine where I would be by now if I hadn't found it. Besides, I'm older (now 72) so didn't/don't have the aggressive Dupuytren's that struck at an early age. Even mine was aggressive enough to show some contracture within 6 months. I want everybody to have the choices for treatment that this site gave me.
Mostly, I want to find a way to get information to all general practitioners and other providers who are in positions to refer patients with Dupuytren's and related diseases to this site and refer to the providers of NA and RT. I wish Dupuytren Society or Dupuytren's Foundation could make presentations at conventions of general practitioners.
Proper treatment early is crucial for careers, pain relief, worry relief and quality of life.
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02/20/2010 03:26
Wolfgangnot registered
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02/20/2010 03:26
Wolfgangnot registered
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Dupuytren Foundation and Dupuytren Society
Though Dupuytren Foundation and Dupuytren Society are different organizations (the Foundation acting in the US and the Society world-wide) we share the same goals and there is no competition in any way. The Society supports the Foundation and vice versa. Jointly we are e.g. currently preparing the Dupuytren Symposium in May in Florida. So, if you are in the US please donate to the Foundation, if you are elsewhere please donate to the Society. But any donation to either organization from whereever is VERY welcome and useful. Neither of our organizations is funded by the medical industry, we live from donations, and your donation will keep this web site going.
Thank you to all of you, for your donations, for participating in this forum and for helping to fight this disease!
Wolfgang
PS: sorry to flojo for my late response, I am travelling with only occasional access to the Internet.
Quote:
It is critical to find ways to reach every person with Dupuytren's disease and every doctor or professional who makes referrals to let them know ALL of the treatment options for Dupuytren's and related diseases..
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Wolfgang, please confirm that donations to the Foundation helps this website as well as the Foundation.
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