| Dupuytren's and chronic dehydration - is there a link? |
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07/06/2011 14:30
Jennie 
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07/06/2011 14:30
Jennie
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Dupuytren's and chronic dehydration - is there a link?
First, I am not a member of the medical profession - just an educational diagnostician with way too much time on their hands so I tend to think a little more than I should.
As a newly diagnosed individual with Dupuytren's I immediately tried to find out as much as I could about it - this site is a goldmine of information.
I have learned that fascia covers the entire body and is just below the skin and for some reason, some individuals get a thickening of the fascia in the hands and or feet that is often associated with chords extending from these nodules that causes the hand or foot to contract. No one really knows why.
I have had dry eye for a long time and just before I was diagnosed with Duputren's, it became much worse. One of my eyes felt like I had little pieces of glass in it. My eye doctor assured me that nothing was in fact in my eye and that it was just extremely dry. He told me to increase putting my bion tears in my eyes to 3-4 times a day as well as using a genteal gel at night.
Since the fascia covers the entire body like a sheath - including the eyes - I wonder if the dryness in my eye fascia is reflected also in my hand. I wonder if the nodule in my hand is caused by drying facia that in my eye felt like grains of glass or sand. I wonder if the reason this seems to run in families might be the order that the dna in your cells determines who gets the moisture first. The brain and organs would get it first - then bones, muscles, etc and thenmaybe instead of the fascia - it goes to the skin first. I don't have a clue. But I do know that your hands and feet are at the end of the pecking order for nutrients including oxygen - hence loss of feeling in your hands and feet during hypotherimia. So, what if the reason radiation thearapy works in the initial stages of dupuytren's is that it changes this pecking order. The body would preceive it as injured so itwould rush nutrients and fluids to it. What if the injection of collagin works in the same way as rubbing in vitamin E creme or cocoa butter into a scar/ I wonder if slowing this disorder could be as simple as increasing your hydration level.
With my limited knowledge, it seems to fit. I also recognize that it may not. I'm adding 1+2+3 and getting 6. But the formula may include multiplication or division which would generate a different answer.
I am curious as to how many individuals with Duputren's als have dry eye though.
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07/06/2011 20:16
cindy850 
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07/06/2011 20:16
cindy850
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Re: Dupuytren's and chronic dehydration - is there a link?
Wow i like your post and it makes sense to me. I have already had my radiation 15 months ago and still good. I'm very impressed. And yes i have extremely dry eyes and have had them for years but now that i think about it my eyes got worst when i started having hand problems. Take care
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07/06/2011 20:32
deeproot 
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07/06/2011 20:32
deeproot
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Re: Dupuytren's and chronic dehydration - is there a link?
Interesting theory? I have slighly dry eyes but may very well be from contacts. I have noticed in the past ten years I am more thirsty and people that know me say i drink a lot of water. I have a bottle next to my bed at night because i get thirsty. I also suffer from hyperhydrosis in the hands and feet since i can remember.
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07/06/2011 21:55
spanishbuddha  Administrator
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07/06/2011 21:55
spanishbuddha Administrator
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Re: Dupuytren's and chronic dehydration - is there a link?
deeproot:
Interesting theory? I have slighly dry eyes but may very well be from contacts. I have noticed in the past ten years I am more thirsty and people that know me say i drink a lot of water. I have a bottle next to my bed at night because i get thirsty. I also suffer from hyperhydrosis in the hands and feet since i can remember.
Not sure if this is relevant to the conjecture, but statistically there is a link between Dupuytren's and Diabetes, and one of the early symptoms of diabetes is thirst or increase in consumption of water. Have you checked with your physician for other signs of diabetes?
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07/06/2011 22:11
cindy850
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07/06/2011 22:11
cindy850
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Re: Dupuytren's and chronic dehydration - is there a link?
My husband is type 2 diabetic and the thirst thing is not true for everyone. Even if you are not sure you have diabetes. Doctors are no help for testing you for diabetes just go buy in home kit. But this hydration thing and DD sounds good
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07/06/2011 22:42
deeproot
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07/06/2011 22:42
deeproot
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Re: Dupuytren's and chronic dehydration - is there a link?
Yes, have been tested twice. I even bought a glucose tester to check and everything is in normal.
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07/07/2011 01:15
cindy850
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07/07/2011 01:15
cindy850
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Re: Dupuytren's and chronic dehydration - is there a link?
I also own a glucose monitor and mine is fine. And i still think there is something to this.
Edited 07/07/11 16:39
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07/07/2011 03:16
flojo
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07/07/2011 03:16
flojo
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DRY EYES - Re: Dupuytren's and chronic dehydration - is there a link?
Yep, seriously dry eyes for me, especially my left eye. Does fit my profile for DD now that you bring it up. Funny you'd describe your dry eyes as like having sand or glass in them. I described it as like a cat scratching across my left eyeball, and that is only at night. Does anyone have just one eye that is significantly dry as compared to the other eye? (An observation, my left eye is the dry one but it is my right hand that DD hit first and hardest.)
Here is what really helped - the prescription drops, Restasis morning and night. My ophthalmologist told me that it would help, but that it would take about 3 months. I've been using them for 4-5 years. That would be about the time my DD really kicked in. Now, the vials are for one use only then throw it away. I keep the vial in a cabinet and get 3-5 days of dosage out of one vial if I don't miss getting the drops in my eye. My new ophthalmologist says that it doesn't work for everybody. I still have dry eyes, but not the cat scratching my eyeball kind. I still wake up at night sometimes and my eyes, mostly the left eye, feel very dry and the ONLY thing that helps is the Genteal brand eye gel in a tube. It is 40% petroleum jelly and 60% mineral oil (or the % may be the other way around.) I just cannot pay $6 for a 1/2 ounce of that, so I was going to mix my own. My new eye doc was bothered by me mixing my own, but when I told him I would NOT pay that much, he gave me a bunch of samples. I don't have to use it often, but when I do, that was the only thing that worked until I discovered something else.
So my new eye doc told me that flax seed oil is good for the health of eyes and to take several capsules daily. He didn't really know how many but said one would probably not be enough to be therapeutic for the eyes. So, I take 2-3 flax seed oil caps in the morning and my 2-3 fish oil caps at night. I thought, if the mineral oil/petroleum jelly works, why not put the flax seed oil directly into my eye since it is good for the health of eyes as a supplement? So, I puncture the end of the capsule with a pin or sharp knife tip and put a drop in each eye. It helps. I use it whenever it feels like I need it, AM and PM or I skip many days, but I think I should be diligent and use it at least once a day. I do get lazy.
When I went back to my new eye doc, needless to say I was a little hesitant to mention putting flax seed oil directly in my eye since he didn't like the idea of me mixing my own formula of Genteal eye gel, but I told him my theory and what I was doing. He covered his dismay well, and said, "I don't have anything against the flax seed oil in the eye, but these are supplements that aren't inspected like meds are by the FDA and I might get an infection. I told him I hadn't had any infection or problem and it seems soothing and to help the dryness. He said to notice the brand I used and if it works, that was OK. FYI - I buy whichever one is on a BOGO sale and have had no problem.
Not only are my eyes dry, but I have severely dry skin and was given a lotion with prescription strength lactic acid. (I now use OTC lotion with 12% lactic acid, Amlactin brand from Costco.) I like the non-greasy feel, and I think it helps. When I really take the time to do what I think helps most, I use Amlactin on moist skin and then right away use a light coat of oil over that - grapeseed oil, sunflower oil, jojoba oil, etc. I should do that twice daily, but don't even do the whole procedure every day.
Look forward to others' input about this interesting idea about dry eyes and dry skin.
I love this site! Never imagined I'd be describing details of my creative dry eye treatments!
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07/07/2011 13:43
Jennie
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07/07/2011 13:43
Jennie
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Re: Dupuytren's and chronic dehydration - is there a link?
The genteal with my Bion tears and upping my liquid intake seems to help. My neice makes a "Crazy for Coconut" skin balm that is wonderful for dry skin and I do use it religiously. I hadn't thought about markers for diabetes or what the call prediabetes. as of my last doctoe visit a few months ago - I have neither.
It seems like there might be some connection between dry eyes and dupuytren's - but until there are more respnses either way it's hard to tell. If there is a connection, then maybe effective treatment for dupuytren's could be developed to slow this disorder by hydrating the fascia in some way and perhaps measure the response to some extent by the amount of moisture in your eyes. Again, I'm not a member of the medical profession, just someone who has had more dealings than I wanted with them and who tends to ask alot of questions.
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07/07/2011 13:55
wach Administrator
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07/07/2011 13:55
wach Administrator
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Re: Dupuytren's and chronic dehydration - is there a link?
I am also having dry eyes occasionally, though probably not as bad. In my case the culprit is definitely the computer. The longer I look at the monitor the drier my eyes get. Obviously under normal conditions you are blinking frequently and the frequency goes significantly down when looking at a monitor. Thus the eye gets dry.
Maybe what we have in common, besides Dupuytren's, is that we are all using PCs?
Wolfgang
flojo:
Yep, seriously dry eyes for me, especially my left eye. Does fit my profile for DD now that you bring it up. ... Look forward to others' input about this interesting idea about dry eyes and dry skin.
I love this site! Never imagined I'd be describing details of my creative dry eye treatments!
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