Dupuytrens Support Group on Facebook |
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02/16/2016 15:40
LubaM
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02/16/2016 15:40
LubaM
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Dupuytrens Support Group on Facebook
When I joined this Forum in 2006, it was a life-saver for me. I was desperate, confused, angry at the negativity of hand surgeons and other doctors who didn't know about other treatmens besides surgery. I have learned so much about this disease, so much information has become available in the last decade. I continue to read, on this forum, and join any groups that I can. My nodules on foot are gone, with RT, my pinkies are badly contracted, but both my hands are totally functional, which is great. I you are on Facebook, you may want to join : Just copy and paste this Facebook link: https://www.facebook.com/groups/879351412113444/ It is mostly a support group, but they also have morning Coffee Talks, with Q&A, doctors who are members, and lots of good information
Edited 02/16/16 17:57
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02/23/2016 02:01
CLJ
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02/23/2016 02:01
CLJ
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Re: Dupuytrens Support Group on Facebook
Here's another with over 1,300 members https://www.facebook.com/groups/DupuytrensContracture
History: 1st Nodule started 6/2015 ring finger, left hand. Untreated Trigger finger started 11/2013, middle finger, left hand. Treatment: 3 corizone injections over past 2 years (effective for 8+ months) D.C. Family history: 2 older brothers; multiple DC surgeries, same with father, uncle, aunt, & grandfather.
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