What sense does it to apply for the collagenase trial with a 50 percent chance of not being treated if I can get the same effect now from NA where I can choose an experienced doctor?? Just wondering.

Sandie,
Thank you for all the great information! From you description it seems as if there should be more disease awareness information available regarding the importance of seeking treatment even if there is no pain associated with the contractures. Before your husband had the NA, was there any he did to cope with his embarrassment or frustrations? Something I did not think about before you response was the aspect of help or support. If the contractures limit your physical functioning such as not being able to grip items or do necessary housework, a support system is very important, would you agree with this?

Thanks,
Stephanie

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Sandie,
Thank you for all the great information! From you description it seems as if there should be more disease awareness information available regarding the importance of seeking treatment even if there is no pain associated with the contractures. Before your husband had the NA, was there any he did to cope with his embarrassment or frustrations? Something I did not think about before you response was the aspect of help or support. If the contractures limit your physical functioning such as not being able to grip items or do necessary housework, a support system is very important, would you agree with this?

Thanks,
Stephanie

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I know there are people with much worse cases than my husband's. I'm sure in those cases they are not able to use their hands. My son took medical classes in college and he said then, that it was Dupuytren's and that if he didn't get help for it soon, he would become disabled. That is true. My husband didn't want to admit to anyone, including himself, that he was becoming disabled. He compensated whenever possible, like wearing a mitten instead of a glove, etc.

I am 72 years old and was just diagnoised wtj Dupuytren. How fast does this disease progress in people my age.

Faruk - you're exactly right. I wouldn't be interested in wasting all that time (many followup visits) even if there was a guarantee of real treatment at the conclusion of the study. For one thing, Auxilium's history provides no assurance that these trials will ever complete.