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NA Experience
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01/24/2008 20:33
tbro

not registered

01/24/2008 20:33
tbro

not registered

Re: NA Experience

Quote:



I'm so glad to hear you're not getting your PT at the Stanford Hand Clinic. I'm in the trial there and I've never dealt with such an unprofessional, disorganized and arrogant group of people in my life. They totally discount NA, they talk out of both sides of their mouths and cite different statistics on OS vs NA vs Auxillium/Xiaflex each time you speak with them. During my weeks in the trial so far there they've lost my phone number several times, have actually run out of "equipment" for blood draws and I've had to re-schedule an appointment after showing up with no prior notification of the problem--a 1.5 hour round trip,- I've had to wait 1.5 to 2 hours for "guaranteed" appointment times, they've skipped part of the exams and measurements listed in the study, they've been rude and blase about adjusting my splint, they've given me incorrect paperwork and wrong ID numbers for blood draws, they've called me 5 times, automatic robot calls- I just hung up in fact-- about appointments I have coming up or appointments I've missed-- all of them incorrect. They even billed me and my insurance company for the cost of the blood draws. And-- the principal investigator in the Stanford trial is on the Scientific Advisory Board of Auxilim and is compensated for this-- can you say conflict of interest?

Good luck on your hand therapy. Should you need a recommendation on a hand PT specialist, I can recommend one in the Peninsula area.

quote:
hi all. well, it turns out that i'm not getting my physical therapy at stanford--they didn't seem at all happy about dealing with someone who had had na rather than surgery , so i am going to a place called hand rehibilitation associates, which is actually closer to me. the person scheduling the appointments clearly knew nothing about dc or na, but was very nice. so we'll see.



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