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New and have a question
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04/05/2012 17:33
fivestring

not registered

04/05/2012 17:33
fivestring

not registered

New and have a question

Hello,

I don't know for sure if I have dupuytrens yet. I see my hand specialist this week. But I have developed tight tendons across my palms over the past few months. It was one tendon on my left hand initially. It has become three on the left hand and now two on the right. My fingers do not curl, the tendons just stick out on my palms.

I'm wondering if anyone knows if dupuytrens has any connection to scleroderma? I was diagnosed in the fall, so with this problem on my palms I can't help but wonder!

Thanks for any input.

04/05/2012 17:55
callie 
04/05/2012 17:55
callie 
Re: New and have a question

Dupuytren's is not the same as the tendons. It looks like tendons but it is not the tendons. Do you have any kind of bumps or anything unusual connected to these cords?

04/05/2012 20:47
fivestring

not registered

04/05/2012 20:47
fivestring

not registered

Re: New and have a question

No, they almost look just like the bones on the back of my hand but are on my palm. There is some swelling or bulging near my fingers....sort of in between them on the palm. My thumb pads have been killing me, too. Maybe it's not dupuytren's at all.

04/05/2012 21:57
callie 
04/05/2012 21:57
callie 
Re: New and have a question

It sounds like Dupuytren's. Normally there is very little pain from Dupuytren's, but some people report having pain. Often there is a nodule that can appear like a callus somewhere along the lines of the cords.

04/06/2012 08:24
fivestring

not registered

04/06/2012 08:24
fivestring

not registered

Re: New and have a question

Thanks....at first I thought it was from scleroderma (maybe it is related), but when I looked around online and read about dupuytren's I got a little nervous. It appears the younger you are when you start this the more likely your fingers will contract. I'm in my mid-40s...not sure if that's considered young for this! I got nervous that I'll lose my ability to play my banjo and knit (two of my favorite things)....my daughter suggested seeing someone in case there's something that can be done early to keep that from happening. We wondered if there might be braces or something. Thanks for your input.

04/06/2012 13:05
wach 

Administrator

04/06/2012 13:05
wach 

Administrator

Re: New and have a question

mid-40s is not VERY early. Mine started 10 years earlier. I am now 64 and still doing OK, so don't worry. There are enough means to take care of Dupuytren's. Keep reading ans asking.

Wolfgang

04/06/2012 14:44
callie 
04/06/2012 14:44
callie 
Re: New and have a question

fivestring,

I think most people would discourage braces etc. for Dupuytren's. The disease seems to be more active when resisted or "messed with". Many people go through their whole lives with this disease not developing to the contraction stage... nothing to panic about. It is good to pay attention, however. If you notice nodules associated with the cords, or any independent nodules, you might consider irradiation. If the hands start to contract most people will now recommend NA in early stages of contraction. These procedures are explained very well in the drop down menus above.

04/06/2012 16:43
fivestring

not registered

04/06/2012 16:43
fivestring

not registered

Re: New and have a question

Thanks so much for the responses...I'm wondering how quickly this usually moves from bands to contractions. I've gone from one hardness (band?) on one hand to three on that hand and two on the other in just a couple of months....is that how quickly it usually moves? Sorry if I'm asking too many questions! I've never heard of this until just this week!

04/06/2012 16:52
callie 
04/06/2012 16:52
callie 
Re: New and have a question

It is usually much slower, sometimes decades.

04/10/2012 13:38
lori 
04/10/2012 13:38
lori 
Re: New and have a question

Mine moved from a nodule to a cord to the beginning of contraction in less that 6 months. Callie is right...some take decades, others like me are not so lucky. My nodule and cords were extremely painful. Take pictures of your hand(s) and document the changes and date the pictures. If you feel that your hands are changing rapidly then you have the ability to decide how soon and what kind of treatment to pursue.

Lori

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