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Newly diagnosed with Dupuytren's disease
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06/10/2011 18:17
Jennie 
06/10/2011 18:17
Jennie 
Newly diagnosed with Dupuytren's disease

Where to start...
My disease is at the beginning stage and is at present just a nodule in my right palm. I was in a car accident about 5 years ago and wound up on crutches for about three and I still use a cane. The nodule is right below my right ring finger where I put the most pressure on my hand. Searching for gloves and Dupuytren's disease, I was directed to your forum. Using a bicycle glove makes sense but I don't know how much it will help as I average 7000 steps a day - though not all with the crutch.
A friend who is really into yoga gave me a MELT Program that uses different sizes of balls to stimulate the fascia of the hands and feet. When she first gave it to me, the nodule was a bit larger and my hand stiffer. It definitely wasn't created for this but it did seem to help. I was wondering if anyone else had ever tried it and if there were any suggestions on how to best maintain the mobility in my hand. My orthopedist said I'm at least 3 years from needing any type of surgery and I would like to postpone the need for it as long as possible. I suppose I should mention that I work with the deaf and I need my hands to sign.

06/10/2011 19:13
spanishbuddha 

Administrator

06/10/2011 19:13
spanishbuddha 

Administrator

Re: Newly diagnosed with Dupuytren's disease

Hi Jennie

Welcome to the forum. There's lots of information on this site that should help you, from approved and recognised treatments and other things that have been tried by patients with varying degrees of success.

There are also a number of risk factors but then often none apply to people who get the disease. A trauma or injury does come up regularly. Are you sure it's a nodule and not a ganglion? I have both in the palm and they're very similar.

One of the risk factors is genetics, so it would be worth finding out if your parents have/had it.

Many cases do not progress to a debilitating contraction of the hand and fingers, but you're doing the right thing by finding a way now to protect your hand, and also start watching for further symptoms, changes, then you can consider if early treatment is needed.

Find out who your nearest hand specialist is, not a hand surgeon, but maybe a therapist (they may also be a surgeon though) and make friends with them. But do not if they say come back to me when you have x degrees of contraction. There's treatment you can consider before that via radiotherapy.

There is a page on the site that discusses massage of the nodules, also this has come up with nodules on the feet where a special spiky massage ball has been used to give some relief. This may be similar to the balls you mention with the MELT program.

Explore, then come back again if you have more questions.

Edited 06/10/11 22:18

06/17/2011 15:02
sg0620 
06/17/2011 15:02
sg0620 
Re: Newly diagnosed with Dupuytren's disease

Hello; I have been told that I have DD, the hand specalist told me that until I have 40 degrees of contractures. The problems I have with that is I work in the medical field as a plebomtist and naturally use my hands all day. I don't want to wait until I can't perform my job. any suggestions

susan

06/17/2011 15:32
spanishbuddha 

Administrator

06/17/2011 15:32
spanishbuddha 

Administrator

Re: Newly diagnosed with Dupuytren's disease

sg0620:
Hello; I have been told that I have DD, the hand specalist told me that until I have 40 degrees of contractures. The problems I have with that is I work in the medical field as a plebomtist and naturally use my hands all day. I don't want to wait until I can't perform my job. any suggestions

susan
Hello sg0620 and welcome. Explore the treatment options on this site. You will see that radiotherapy is often successful for DD if it is done in the early stages before any contraction, and whilst the disease is active, as indicated by changes, tingling, aching, soreness, and so on. There are lots of reports from users on the forum who have undergone radiotherapy. If you have cords and some degree of contraction or stiffness you may want to consider NA or Xiaflex (collagenase) injections. All explained under Treatments pages on the site.

You also need to find a new specialist who is up to date with treatment options! Really.

06/17/2011 15:39
sg0620 
06/17/2011 15:39
sg0620 
Re: Newly diagnosed with Dupuytren's disease

THANKS A BUNCH I AM CONTINUING MY SEARCH ON THIS. ABOUT A MONTH AGO I HAD FOOT SURGERY FOR BASICALLY THE SAME.

06/23/2011 21:12
Jennie 
06/23/2011 21:12
Jennie 
Re: Newly diagnosed with Dupuytren's disease

Thanks.

There is no history of Dupuytren's in my family

I have been looking around the site for treatment options as I feel that doing something before I lose strength and flexibility in my hand to be preferable to waiting until I can't use it. The chord that extended from the nodule across my palm seems to be almost gone - so I will definitely continue the MELT exercises. It definitely won't hurt any way.

06/23/2011 21:54
callie 
06/23/2011 21:54
callie 
Re: Newly diagnosed with Dupuytren's disease

Jennie,

You said, "The chord that extended from the nodule across my palm seems to be almost gone ....".

If that is actually true, you are on to something worth $millions. I have never heard of a Dupuytren's cord getting smaller. It is a one-way trip (staying the same or getting larger).

06/24/2011 14:44
lori 
06/24/2011 14:44
lori 
Re: Newly diagnosed with Dupuytren's disease

Callie,

My cord got smaller and regressed into my palm after RT. If you go back to 9/09 and look under "pictures of my hand from MRI to now, you can see how much the cord regressed and became smaller.

Lori

06/24/2011 23:21
LubaM. 
06/24/2011 23:21
LubaM. 
Re: Newly diagnosed with Dupuytren's disease

In Nov. 2009 I had RT on my left hand. I had multiple nodules all over the palm, and a very small (tiny) thin cord running from the base of the index finger to the first joint (PIP) of that finger. There are still some nodules left, but those that are left are much softer and smaller. The tiny cord is gone.... I have a few new nodules on the web between the thumb and index finger, but these new nodules are outside of the radiated area in 2009. In my opinion, RT is the best treatment for active DD in the early stages of the disease, especially if there are only nodules present and before any contracture occurs.

06/27/2011 19:46
Jennie 
06/27/2011 19:46
Jennie 
Re: Newly diagnosed with Dupuytren's disease

I am still learining about this disease and radiation therapy is something I may consider if the chord starts progressing again - Since I work at a school for the deaf, I need to be able to have hand flexibility in order to sign effectively. Right now, the MELT program seems to be helping - it definitely doesn't hurt. I'll know more when I go back to my doctor in a few months. Objectively, he would be able to say if there is any significant change.

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